Entocort/Budesonide Oral Suspension Question

[Mballerina]

Hello,

Has anyone used entocort or budesonide? Especially the oral suspension. I was wondering what you use it for, how long, and your experiences with it?

Best,
Magdalena

 

[ronroush7]

Haven't used the oral suspension but I have used Entocort. The doctor used it for Crohn's disease. With me, it was for a few months. It was better for me than prednisone.

 

[Mballerina]

Did you notice any reactions? How many times a day did you take it?

Magda

 

[ronroush7]

I don't remember any reactions. I believe I took it once a day.

 

[valleysangel92]

Hey,

I've used entocort/budesonide on a few occasions for small bowel Crohns disease. I have found it really effective on each occasion and have taken it for about 6-12 months at a time depending on how bad things were. I should say that common practice is to use it for less than that, but we were having really big trouble getting me on a maintenance medication.

The benefits of this med is that although it's still a steroid, it's far more gentle than the alternative of pred and most people find they have less side effects compared with other medications.

Dosage wise, I was on 9mgs a day to begin with and then 6mg and then 3mg, which I would take once a day before breakfast, but it's important to ask your doctors how they want you to take it as it differs for everyone. It is also important that when you stop taking it, you do so gradually to avoid withdrawel symptoms, unless on the specific instruction of your doctor

 

[Mballerina]

Hello Valleysangel92,

I have eosinophilic gastroenteritis and they think i have small bowel crohns. I would love to hear more about your experience, would you mind if we chatted a bit about that?

Best,
Magda

 

[valleysangel92]

Of course not, you can ask me anything you like, you're welcome to send me a private message if you'd prefer

 

[kschorgl]

I was on enticort for UC and then chronic pouchitis after the surgeries. I was on it for about 11 months at one point-three pills a day. I didn't see as quick and significant of an improvement with it as I did with prednisone, however, I found it to be gradual instead and with way less side effects (no puffy face)