- Joined
- Nov 18, 2010
- Messages
- 15
I have not posted for a long time now. I have been on remicade for over a year and on the whole it has been fantastic. I was housebound, not only with the effects of crohns but also the arthritis, which involved, as a package liver and kidney problems. It has enabled me to live a virtually normal life, but increasingly I find the fatigue has gotten worse, to the point where i have to force myself to carry on through the day, just performing everyday tasks. I am also feeling increasingly depressed and I realise that this may be because I cannot do the things I used to be able to. Even with the remicade my joints are very painful and I seem to be increasingly clumsy and forever cutting, burning myself or am unsteady on my feet. I find I get very dizzy at times and I know my blood pressure is very low which probably contributes to this. I find myself thinking regularly " I am only 38 now, what will i be like in 5 or 10 years down the line. " My mother has very severe rheumatoid arthritis and is just about to have another operation to basically rebuild her arm because the joints and bones have crumbled and are in such a bad state. I find myself wondering where will it all end and feeling so bad because my life seems to centre around illness and nothing else. I am sure i am not the only one who feels like this and just to communicate with other s who are in the same boat would help and not make me feel so isolated. I think, because myself and my partner relocated to france, i thought life would be rosy but instead i have been diagnosed with this disease and the arthritis, he works all the time ( through necessity ) and I find myself alone and struggling!
