Feeling alone

[stacichristine]

I know there are hundreds of posts on here everyday. Just wanting to talk to someone out there like me. I posted earlier today and haven't heard from anyone yet.:shifty: I know I'm feeling sorry for myself, but have to start 4 weeks of appts tomorrow and was just hoping to get some advice or opinions on things. I guess I'm just nervous.

 

[sc757]

I know how it feels Staci. Good days and bad days.... I have a round of appointments coming up too....


edit: I actually registered because I saw your post. So hopefully that shows that even though you may not see overwhelming responses...people are reading

 

[stacichristine]

Thank you sc757! I appreciate you reaching out to me! It is very nerve racking to have so much going on and really no one that understands your worries and concerns. Fighting something with meds and treatments that may or may not work, but we won't know till we put you through this that and the other! I know many know how that feels! Again. just nervous for the upcoming weeks, and was feeling scared and alone. I appreciate you! What are they wanting to treat you with/for?

 

[sc757]

Crohns. I am actually pretty passive about it for most of the time, sort of the "meh" mentality. I haven't changed anything I've done since this mess started in Nov of 2010. No real reason too I suppose. It's been that way since they told me. I guess it's a little easier to open up to others here since I can hide it behind a keyboard. I am taking immuran and remicade infusions.

 

[stacichristine]

I have a ton of trigger foods that can throw me in to a tailspin, so I do watch what I eat MOST of the time. That is the plan my GI wants me to be on too. That immuran/remicade treatment is what he wants me to start also. I didn't remember the name of the antibiotic till you said that. What is it's purpose? How are the treatments working for you? Thank you for your help!

 

[sc757]

I have gone through one remicade treatment and I dont feel any different. I haven't changed my diet at all. The only time I have ever felt any pain from Crohns was before I talked to my GI. They put me on prednisone for a month and have been pain free ever since. No flare ups or anything like that. The only downside I have felt is tiredness and exhaustion (from anemia).

 

[David]

Hi Staci,

I'm so sorry you're feeling alone. I certainly know that feeling. We ARE here for you though and there's amazing people like sc757 (hi SC, I hope you start a Your Story thread since you're obviously a great person and we'd love to get to know you!) out there as well reading everything you have to say.

*hugs* to you!

 

[stacichristine]

Thank you David! I appreciate that very much. I am just very nervous and worried about everything to come.

 

[tots]

The unknown is a scary thing! Once you understand and can predict what's going on you will feel much better. There is alot of experience on this forum. Take advantage of it, IBD is a lonely thing. Where I used to live one of my best friends and her brother had/have Crohns. We would eat dinner together as famlies at least twice a week. Our end of the table was pretty funny as its not common to have three people in a room at the same time with Crohns. We talked about all aspects of this wonderful thing we call Crohns!! I miss those times thats for sure!

Since that type of thing is not common or the norm use this forum for that purpose!!

Feel better soon!