Feels like a broken record

[brin25]

Well my story feels like a broken record. My name is Sabrina and I am still in the midst of getting a confirmed diagnosis of Crohns. I go to mayo Clinic next week. Last year I became sick. Fever, pain in my abdomin, headaches, eye aches, joint aches, and a rash all over my legs. I went to numerous docs and finally my OB ordered a CT. The Ct came back showing inflammation throughout much of my small intestine. It showed my colon to be fine. The gastro that I saw ordered a colonoscopy which came back fine as well. Since then I have had numerous episodes in which I have ahd to go to the hospital because of the pain and the bowel problems. My liver enzymes are always up when this happens. Last time my liver ALT's were in the 120's. Fast forward to now, a year later I am seeing a different gastro and just had another CT and another colonoscopy. My CT showed thickening of y bowel wall in the small intestines to be at about 3cm with numerous tiny lymph nodes in the adjacent area. My colonoscopy was oh course, normal again. I would expect it to be since my CT keeps saying my thickening is only in the small intestine and is located somehwat in the middle area. I love any feedback if anyone has had a similar experience.

 

[scaredgirl]

maybe see if you can get a sigmoidoscopy(sp) done instead as if it only in small intestine or whatnot. i could be wrong though

 

[brin25]

I think they do an entercrolyisis(sp) for the small intestine. That is why I am going to Mayo. My primary says that even here in Tampa, docs shy from doing the procedure because it is more risky. There is also the capsule camera test, but it is not very reliable.

 

[kello82]

hey sabrina & welcome to the site
youll find lots of good info and supportive people here, and hopefully laugh a lot too, this place really cheers me up.
my crohns has always been in my colon and my sm bowel has always been clean, total opposite from you! just goes to show how different this disease is from person to person.
keep asking questions! theres always someone on here who will be able to relate

 

[brin25]

I should add that my symptoms first started when I ws 15. I had numerous laproscopic surgeries to "look around" and see what was wrong. My parents alawys thought it was a female issue. Then at 19 my went crazy, and during Christmas dinner I passed out from pain an was taken to the hospital. I had gone to my doctor and the ER a number of times, but they kept telling me it was heartburn. Since then it has just been the same thing over and over until finally the right doctor did the right test. I am so excited to go to mayo as I hear they are the best of the best.

 

[terps02]

A note on liver enzymes...FWIW.

I just had blood work a couple weeks ago. My liver enzymes came back high. I was concerned. Doc said not to worry, it's "normal" for Crohn's to cause higher than normal liver enzymes.