"Findings appear to suggest Crohns Disease" New Member, Lots of questions.

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Feb 5, 2011
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First of all I'd like to thank a lot of the posters on here. Ive been lurking the forums for a day now and everyone just seems really nice and really helpful. Im glad a place like this is here for other new users like myself. Here goes nothing...

Im a 20 year old male. About 5'10 and 155lbs. Ive always been freakishly healthy and active. Always played a lot of sports, and couldnt remember the last time I had to go to the doctor (aside from physicals) until my visit to the ER two weeks ago. I was suffering from sharp stomach pains that would come and go. Right above my belly button. My stomach felt really sore like I had done a million crunches, and every 5-10 minutes I would get this super sharp pain.

I called my doctor to make an appointment, he couldnt see me that day and told me to go to the ER instead and I did. The ER diagnosed me with 'Gastritis" and sent me home with a perscription for Protonix. I couldnt get the Protonix because of insurence issues... I called my primary again and he told me to try over the counter prevacid for a few days instead and call back if it wasnt getting better. I started feeling a little better. I then played basketball 3 nights in a row and after that third night it was worse then ever. I could barely move. I went back to the ER the next morning and again he said it was probly gastritis and gave me a perscription for Lansoprazole. He also scheduled a ultrasound and an appointment with a GI specialist.

The Lansoprazole was helping. I think. I was feeling better though.. I went to the Ultrasound and saw the GI doctor the next day. He said for the most part the Ultrasound looked good, and the blood work looked great. He saw some inflammation though and wanted to make sure it wasnt something serious. He said he was 75% sure it was from and infection, but wanted to make sure.

So I had my Upper GI Endoscope and colonoscope yesterday. My doctor performed the tests and was no longer there ( or with another patient ) when I woke up. The nurses gave me some pieces of paper and said that "The findings appear to suggest Crohns Disease". And the Doctor would call me later that night. Here is the exact impressions the doctor wrote down:

-Erythematous (hyperemic) and ulcerated ileal mucosa. This was biopsied.
-Mucosal Ulceration of the entire Cecum extending into the proximal ascending colon. This was biopsed.
-The normal appearing colo was also biopsed.
-Normal examined duodenum. This was biopsed.
-Diminutive Antritis. This was Biopsed.
-Normal Esophagus.

His Recommendations:
-Await Pathology Results.
-Return to GI office in 2-4 weeks.
-Prednisone Taper(10mg), Pentasa (500mg), and Cirpo(500mg) prescriptions sent to pharmacy.

I have been taking the medicine as perscribed, and like I mentioned .. I have felt pretty good for about a week now. I feel fine right now. I just dont really know what any of this means. The impressions sound really bad, and im confused how all of this just "happened" over the course of 3 or so weeks. I have never really had stomach pains until recently. Going to the bathroom has been kind of hard at times for various reasons, but nothing I thought was a real problem. I just figure I had some bad food or something. I dont know, the whole situation is pretty shocking to me. I know my Cousin and his mother has suffered from Crohns. He had to have some of his intestines removed a little over a year ago... and Im just scared of the potential of this disease.


Im also confused about what all the medicine is for exactly, and how it will effect me. I have only been taking them for a day, but I feel normal so far. I know a lot of people dont like to take Prednisone, so that one has me worried.

I dont feel informed enough about my situation, and that is stressful to say the least. Im not sure what foods are good or bad, what medications are good or bad .. Its been a rough couple of days.


So thats that. Feels good to write it all out. Any impressions/adivice/help would be appreciated.
 
Last edited:
Hi New Guy
and welcome

If you have inflammation the Pred will reduce that, but 10mg is very low, the usual dose is 40 or 50mg to start with then taper. The Pentasa is one of the 5ASAs, amnio salicylate, it acts like an aspirin, and once inflammation is under control, Pentasa will help to maintain and keep inflammation away. Ciprofloxacin is an anti biotic.
Have a good mooch round the sections on here re diet, treatment etc.
A low residue diet is a good one to start with, this will reduce pain and diarrhea and give your bowels a rest. This link will help.
http://www.healthcastle.com/low-residue-fiber-diet.shtml

Once you have everything under control you'll be able to manage everything, there's no reason why you shouldn't be able to lead a normal life and still play sports.
And, look at this as a positive result, many people on here have had to wait hundreds of years for a dx, me included!
Any questions, fire away, always someone here to help
lotsa luv
Joan xxx
 
Thank you for the Kind words!

I went to my Doctor on friday. I told him I feel great which I do. He confirmed that I DO have Crohns, and possible Celiac disease? Im waiting on the blood work to confirm that one.

Should I be concerned that I dont really feel any symptoms of Prednisone? I started off on 40mg of it a day and I am now down to 20 .. working my way off it totally in about two weeks. I cant say I see any symptoms... I havent gained any weight ( I have actually lost a bit since I have been diagnosed .. hard to describe, I just dont feel as safe putting food into my body ).

I have to go back and see him in another month when I have been off Prednisone for 2 weeks. Is that enough time to determine if I need to take it longer or not?

He said If I feel good after that then he will probly keep me on Pentasa as long as its working for me. Are there any side effects while using Pentasa long term?

Also, is there any way to tell how severe my Crohns is? I know there are many levels of severity, and Im hopeing mine isnt too bad.
 
Hiya again!

It sounds like you've nipped it in the bud and caught it early! Your Pred has worked it's magic and healed you nicely. That's not to say it won't come back tho, so be extra vigilant and don't become complacent! You're already active and eating healthy, which will hold you in good stead to stay in remission.
And time will tell whether you flare back up when you quit the Pred. Sometimes Pred can mask symptoms, so that's why you feel so well too.
Don't worry about the Pred side effects, you're the first on here to worry about NOT having any!
I only got side effects maybe 5 months in. I was on it for nearly 11 months tho.
Maybe your Crohn's is at a mild stage and hopefully the Pentasa will maintain that it stays that way. I've been on Pentasa for 5 years now, no side effects at all.
You could have another scope in a few years time to keep it in check, but enjoy your new remission!
good luck for when you see the doc, hope it doesn't come back.
xxx
 
Hey, Newguy! Welcome.
I did not have major side effects from pred either until I was on in for a very long time. Then I became a horrible grump! But istarted out on 80 mg a day & tapered from there at a rate of 5 mg every other week.
Keep asking questions, but don't freak yourself out too much.
Advice from an old crohnie,
Michele
 

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