- Joined
- May 25, 2010
- Messages
- 446
Hello everyone. It's so nice to read stories from people that know what I'm going through. Thanks for being here. I welcome any and all advise for both Crohn's and the use of this website. Took me a week to figure out how to post a new thread, but I'm learning.
Now, about me....I was diagnosed with Crohn's 5 years ago, but had my first abnormal colonoscopy 15 years ago. For 3 years I took Pentasa and Mercaptopurine, but when I lost my job and insurance Oct. 2008, I quit my meds because I couldn't afford them and I thought I was cured! I can be a little stupid sometimes. I was doing great until recently.
Since April 7th, 2010 I have been hospitalized 3 times for a total of 24 days. The first night they did the NG tube, CT scan next day, kept me on IV fluids for a couple of days and transitioned me to mechanical soft diet in less than 48 hours. Started Pentasa and Prednisone. They sent me home on Monday and Tuesday night I was in so much pain my husband had to call an ambulance. Same routine as the first time, except they started me on Remicade and stronger doses of Pentasa and Prednisone. During both hospital visits I saw my GI once or twice and the rest of the time was his associates or other hospital assigned FI. I stayed on the soft diet, but overall did not feel really well. Two weeks later at 2 a.m. I'm vomiting and cramping, but did not want to go to ER again. I waited until 8 a.m. and could not reach my G.I. Dr. so went to family physician. He couldn't believe I was having another attack and that he could not reach my GI Dr. or any of his associates. I told him I needed a new one, so he sent me to a different hospital with a different group of GI's.
This Dr. kept me in the hospital for a week on IV's and liquids and finally did an upper GI series. He informed me the Crohn's was extremely active in 2 places, the iliem and the colon. I also had a fistule that had developed towards my appendix, but was closed with scar tissue. He said my colon needed a break and plan on liquid diet for at least a week or so.
:sign0085:
It's been 2 weeks and I'm afraid to eat. I've been living on ensures, yogurt, baby food, etc. I just started experimenting with mashed potatoes, pasta, creamed soups, etc once a day. It's not bad, but I tend to get this real heavy feeling in my upper right side. It's different from the pain I had when I went to the hospital. I don't know if this discomfort is from the Crohn's or from eating something heavier than liquids and yogurt. I tend to get cramps before I go to the bathroom, the stools have become more solid, and I'm going less often.
I guess I should post something under diet, but I wanted to say hello first. I'm looking forward to getting to know some of you. Thanks again for being here.
Now, about me....I was diagnosed with Crohn's 5 years ago, but had my first abnormal colonoscopy 15 years ago. For 3 years I took Pentasa and Mercaptopurine, but when I lost my job and insurance Oct. 2008, I quit my meds because I couldn't afford them and I thought I was cured! I can be a little stupid sometimes. I was doing great until recently.
Since April 7th, 2010 I have been hospitalized 3 times for a total of 24 days. The first night they did the NG tube, CT scan next day, kept me on IV fluids for a couple of days and transitioned me to mechanical soft diet in less than 48 hours. Started Pentasa and Prednisone. They sent me home on Monday and Tuesday night I was in so much pain my husband had to call an ambulance. Same routine as the first time, except they started me on Remicade and stronger doses of Pentasa and Prednisone. During both hospital visits I saw my GI once or twice and the rest of the time was his associates or other hospital assigned FI. I stayed on the soft diet, but overall did not feel really well. Two weeks later at 2 a.m. I'm vomiting and cramping, but did not want to go to ER again. I waited until 8 a.m. and could not reach my G.I. Dr. so went to family physician. He couldn't believe I was having another attack and that he could not reach my GI Dr. or any of his associates. I told him I needed a new one, so he sent me to a different hospital with a different group of GI's.
This Dr. kept me in the hospital for a week on IV's and liquids and finally did an upper GI series. He informed me the Crohn's was extremely active in 2 places, the iliem and the colon. I also had a fistule that had developed towards my appendix, but was closed with scar tissue. He said my colon needed a break and plan on liquid diet for at least a week or so.
:sign0085:
It's been 2 weeks and I'm afraid to eat. I've been living on ensures, yogurt, baby food, etc. I just started experimenting with mashed potatoes, pasta, creamed soups, etc once a day. It's not bad, but I tend to get this real heavy feeling in my upper right side. It's different from the pain I had when I went to the hospital. I don't know if this discomfort is from the Crohn's or from eating something heavier than liquids and yogurt. I tend to get cramps before I go to the bathroom, the stools have become more solid, and I'm going less often.
I guess I should post something under diet, but I wanted to say hello first. I'm looking forward to getting to know some of you. Thanks again for being here.
