Friday Update on Little Farm Girl

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kimmidwife said:
FW,
. My one big question if it was MS why then would she have some normal days with no medication or assistance? Kind of does not fit the big picture of MS. Just trying to look at the positives. :smile:
Click to expand...

I holding to that! It doesn't make sense to me.
Unless someone knows more about MS and is that normal at early stages?:yrolleyes:

My hubby and I feel that she thinks it's something and we'll go from there.:ghug:
 
They are doing trail on use vitamin d supplement for the threatment of early MS in Australia. Still at the recuiting stage. The aim is see weather vitamin d, is the reason why rates of MS in Tasmania (most southern state Australia) is up to 10 times higher than Darwin (far north Australia). Darwin lots of sun all year round, Tassie not much sun at all.

Just wondering out aloud about vitamin d and Grace.
 
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Catherine her vit. is low. She started vit D drops three days ago. I hope it helps perk her up to. Thanks
 
I am hoping along with everyone it not MS. Just felt it was interesting in light of Grace low vitmain d that these researchers are looking at whether there is a link between vitamin d and MS.
 
Just catching up FW... :( I'm so sorry that you have to explore this path!!! It's all so scary! :ghug: But, keep in mind, many possibilities need to be explored to be ruled out! Last year, Emily's blood results were a bit off and with Stephen's diagnosis, our GP sent her to a rheumi to rule out RA and/or Lupus... a very scary time until it was RULED OUT!

Sending you lots of hugs and good thoughts!!! :ghug: :ghug: :ghug:
 
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Friday Update:

Since upping Zantac she's been doing a lot better.:dance:
Still constipated again and some rectum pain but overall I'm very happy.

My hubby and I feel a lot better about it not being MS but I know the GP still needs to explore those avenues.
What I liked about her (GP) is she came up with plans IF the scopes come back clear, It's nice to know that everything hopefully be covered.

Bad news, Nurse called Mott's and since were out of network we might be denied:redface: but she said we can reapply. Also doc came up with some back-ups.

Son and I have a bad intestinal bug. It makes me having this, that much more sympathies on all of the IBD'er.:kiss:

Love to all
 
So glad the new GP sounds great! Instead of worrying about the possible diagnosis, I want you to be happy that this new GP sounds like she is going to explore every possibility! Leave no stone unturned! That's exactly what you guys need.

Hugs and prayers for answers and some great days coming up! Enjoy the holidays!
 
Wow, I had alot to catch up on. Was missing you guys while in hospital. Hope your bubble is staying in tact for now so you can enjoy the run up to Christmas and the day itself. At least it's not long before the scopes now. Sounds like the GP is great, nice to know she is being thorough. Best to get everything checked then you can heave a sigh of relief when something is cleared!
 
There may be more than one thing going on so it's harder to sort out.

Our GI insists that abd pain like you are describing is due to stretching of the intestines - like you get from having a bunch of gas (think balloon) or constipation causing a bulge. Wonder if that applies to the pain Grace is having.

I used to keep track of sx with a checklist. It was a lot easier to just make a check mark or write in a number than have to write a bunch of stuff out. I don't remember if you do this already but if not you might want to try to do it now that her sx seem to be changing some.

Glad she's feeling better since the Zantac increase. Hope everyone gets over the stomach bug quick.
 
Re Motts - didn't Rowan's mom have some advice about secondary insurance for kids in your state that might help? Just a thought......

I know you'll be glad for the 12/27 scopes.

Hang in! Hope Everyone at your house feels well enough to enjoy Christmas.

J.
 
Just getting caught up on your thread. Glad to hear new GP is working well for your family. Sorry that Motts might not get to help her though. i think it is such crap you cant choose the best in the state if this is what is needed for her. Idk what to do in the case except trying for the CSHC through the state. Idk if they would have to be in network or not to cover it as a secondary it wasn't an issue for us bc they were in our network.

Graces scope is coming up quickly, I am very eager to hear what it shows. Glad to get caught up on you and hear good news sorry I wasn't checking in. I am sure you understand.

Keep searching Farmwife your doing a great job. :hug:
 
Thinking of you and your little Princess Grace hun and sending loads and love and healing thoughts your way...:ghug::heart::ghug:

Dusty. xxx
 
Thanks,:hug:

Grace is ill.:( On FULL meds she at a 103 degrees for temp.
Waiting for new GP to call. I THINK it's the flu.
Just kind of different. :shifty:
She's vomiting right after coughing for awhile. This has been going on since 5:00 am. Poor Kid!!!:stinks:
 
The new GP called and wants her on TamaFlu (I don't know if I spelled that right). crohnsinct knows which one.

She doesn't want to run the risk of no scopes for Grace.

She scheduled her for Thursday appointment. She's a little concerned about the vomiting.
She called the Infectious Disease (love this new GP) department and asked about the flu and they reported, it is starting already.

Have to go. Grace still doesn't like to vomit in bowls.:stinks:
 
Yep. Flu started here early and strong. The good news is they think the vaccine they have this year is the right one. Yep. Tamiflu. Remember though our ped told us it does tend to cause GI upset so if you see a pick up in diarhrea, nausea etc that could be the cause. Our GI does not advocate Tamiflu unless confirmed flu because of the GI upset but that is for kids with a clear dx and no impending scopes.

Poor pumpkin. I hope she feels better soon! I will just scream if the scopes have to be moved I could only imagine what you are feeling like.
 
Awwww Farmwife :( I'm so sorry things seem to keep piling up on you. Your such an amazing mom and very strong woman I have no doubt you will get poor Grace through this and feeling better soon.

Healing thoughts, prayers and hugz to you and Grace :hug:
 
Since she has asthma she is at higher risk of complications.
Both boys had tamiflu because of asthma and the flu.
DS needed pred as well since his breathing got so bad.
Any trouble breathing make sure to call the gp and or head to the ER .
Asthma and the flu do not mix at ALL.

So in our case any GI upset is over ruled by the need to breathe and avoiding complications like pneumonia .

Hope she feels better
 
Oh no! Poor Grace, hope the Tamiflu works really quickly so she gets better soon! The new GP does sound great - you deserve some good luck getting a really good GP!
 
Poor little Grace :stinks: Hope the Tamiflu kicks in quickly and she is feeling better soon, yep heard about the flu starting to hit around here. I've been meaning to take the boys in for flu shots it just seems like everytime I think of it is about 11:00 at night. We used to get a call from the ped office in September to set up flu shots since he was on aza but they have recently been bought by the local hospital so I'm imagining some things have changed. Although I do like that they moved into the same building as Jack's GI, now his Ped Dr. is on the 4th floor and his GI is on the 3rd.
 
Thanks for the reminder, maybe if I get them now and we are out of school for 2 weeks in 2 more days. Think I should keep them home and not let them go anywhere or be around anybody :ycool: I think they would drive me insane! Well I think I will call the doctor, get them and hope they kick in before they are exposed.
 
:ybatty:Ok MLP you are bursting my bubble with the two weeks to work info. C got his today, and I thought oh this will be great for all the holiday break family visits...the first of which start Thursday!!:ybatty:
 
haha...don't stop posting info MLP, you are my best source of info...I'll just put C in a bubble suit for the weekend!!! That way we'll have matching outfits, my anti reality bubble and his anti-flu bubble...you think they sell those at a medical appliance store?:eek2:
 
No No No MLP...burst away! You keep us all grounded! We tease because we love! Don't you just wish we loved you a little less?
 
:p with friends like you guys ....
who needs enemies:ack:

just kidding:lol2:

Can't get rid of my bubble bursting "PIN"
:hallo3: that easily.
 
So sorry to hear about Grace! Sophia and I have had this flu for almost a week already and it is taking its time going so it is good they are getting her on Tamiflu. Remember the sooner you start it the better it will work. It really does work. Hope she gets better real fast!
 
Oh Farmwife! So sorry that Grace has the flu on top of everything else. I hope the Tamiflu kicks in ang she is better soon! She's gotta feel better for Christmas (and scopes).

Flu has been going strong here for about a month now. The private school actually closed last week and isn't having finals!
 
Oh dear - Poor Grace and poor you - Hope things improve soon and fingers crossed she doesn't miss out on the scopes - sending big hugs xxxx
 
Hope Grace is doing better! Let me know how Tamiflu works for you, Brooke did not respond well at all.

Praying she is feeling better by Christmas. Hang in there momma and enjoy all that snow! I am so jealous, Cincinnati has no snow :(
 
Thanks everyone. Crohn's Mom tell me what your avatar is? I feel so stupid. I think I should know but I don't.


Update:

Questioning the flu now. :shifty:
Other children you would say virus of some sort, which it still could be but, the vomiting stoped, the fevers are still here and going higher.
Her neck hurts and now she JUST started saying her tummy hurts, she hasn't poo'ed in two days.
My son and I had an intestinal bug. That could be it BUT we never had such high fevers.
My DH and I are a bit worried because her intestines don't work right.
I already called the GP nurse and filled her in on the update.
Never got the Tamaflu because the Drug store ran out of it. :voodoo:
I'm holding off on it because I believe she doesn't have the flu.
Nothing ever is simple.
So when the meds are working she seems happy but not moving much and sleeping a lot.
 
The fevers are higher than 103??
I would take her in to the GP ASAP and not make a phone call.

My avatar is a picture of a canvas that kids with crohns got to paint at the last take steps fund raiser we attended :)
 
That's neat Crohn's Mom. :heart:
Yes fevers near 103 BUT I never let it go beyond and Motrin (I know it's not the best but it works quickly) and I alternate with Tylenol bring it down with in 15 minutes.
The GP's nurse said (love the new GP) said call back in 4 hours.
The GP is off today but the nurse is keeping her in the loop.
I have an apt. tomorrow at 3 if need be.
I'm still hoping this will all go away,:shifty: I'm also hoping to be a size 8 by Christmas too.:dance:
 
Johnnysmom said:
Hope Grace is doing better! Let me know how Tamiflu works for you, Brooke did not respond well at all.

Praying she is feeling better by Christmas. Hang in there momma and enjoy all that snow! I am so jealous, Cincinnati has no snow :(
Click to expand...



:heart::D:heart:

Say the word Tiff and I'll pray with all my heart Y'ALL get this snow instead of us.:voodoo:

All though I would like a white x-mas but the scopes are two days later. So if it melted all by then I would be sooooooooooo happy.:dance:
 
Is she very lethargic or some what playful? Little ones can get high fever and still be pretty playful but if she is just laying around, no playing, eating, or doing much of anything I would get her in.

Maybe it was good they ran out of Tamiful, it made my daughter sooooo sick.

(((((Hugs)))))
 
Maybe it is just her taking more time to get over the flu then?? I know Johnny actually had a harder time recovering before he was diagnosed. His immune system wasn't suppressed by meds but he was so malnourished that it took him forever to get better.

Hope little Grace is better very soon. :)
 
I do not understand why impaction and vomiting with a high fever are not being treated as a medical emergency. That your doctor hasn't got Grace in the ER or inpatient is boggling to me. This makes no sense. She's so small and these symptoms have been going on so long. That she wouldn't be at least under observation getting IV fluids makes no sense. A kid can't go days and days without passing stool, throwing everything up, without consequences.
 
keep that GP appointment tomorrow to get her checked out - fingers crossed she (and you) have a good night. xxxx
 
Does she have any other symptoms of flu?

Vomiting and high fevers in my middle kid are actually symptoms of a kidney infection.
 
Called and waiting,

Her symptoms_
Fever on full meds at 100-101. With out up to a 103. I never let it go higher.
Legs pains, neck pains and cold (watery eyes, cough). Tired and grumpy now.
Any normal kid you would say virus.
I'm not to worried, yet.
 
Good kid with a scope scheduled needs to have the Gi in the loop for any fever and vomiting
Add in constipation well...
Just make them aware
 
Is there a chance the scopes will be canceled?
I'm hoping their's still time to get over this.
It's 8 days away. I will just CRY if it gets canceled.
 
If it is a virus the likelyhood is she will get over it in time for the scopes - I think everyone is just a bit worried in case it's not a virus and maybe she needs the scopes and/or other investigations sooner - I think you should definatly call thet GI and also keep your appointment with the GP. Hope things improve soon xxxx
 
Thanks,
GI nurse called and they wants an update on what her poo looks like when it comes out. She's updating the GI now. She also hopes it's a virus.

The GP nurse (love the new GP) call just to check in. She said the doc wants a call first thing in the morning. We have a big storm hitting tomorrow and the GP nurse said we can talk over the phone if we can't make it in.

Grace is still asking for food and drinking a little. So let's all hope this is a virus and she'll get over it quick. Oh, hope for poo with no blood!!!!!!!!!
 
FarmWife, Can you let me know what natural remedy you have found successful for joint pain? We are trying the natural route with my 3 year old son Clark but haven't had alot of success thus far so we are starting EN on the 23rd to try and get him in remission before we consider the BIG GUN(methotrexate). He has Crohn's and also arthritis in his joints that he is constantly complaining about. The poor little guy is pretty miserable. Thank you for your help::ghug:
 
I'll pm you EthanClark.
One thing I started right away way rotating ice and heat. 1o minutes of icing the joint (for Grace it is her left knee) and 10 heating pad. I do this 2 or 3 times in a row. This was done in by my sports trainer when I was in volley ball. I believe it helps blood flow and aids in healing faster. Grace seems to enjoy it, until she no longer wants to set.
Also Tiger Balm, I use Icy hot rub works good for Grace. Some won't use it because it has NSAID's in it. I never use much and never use it after a hot bath. Tesscorm or Twiggy930 told me about this. Works great.
 
David
Yes she can move it with out pain.
She does say her brain hurts so I think it's a head ache (her first) and maybe a pulled muscle. But it was one of her first symptoms.
 
Really hope she gets better soon! I'm sure 8 days is long enough to get better. I believe the main worry with anaesthetics is if they have a cough because they may cough with the tube in their throat. My mom has had anaesthetics with sore throats/colds. Keeping fingers and toes crossed for you!
 
I hope poor little Grace begins to feel better soon!!! Praying that this doesn't have an impact on her scope date!!! But love hearing your comments about the new GP - so glad she's on top of it!!


EthanClark - yes, my son used Tiger Balm when he had/has a sore back and swears by it. FW, I'm not sure why you're saying it has nsaids in it??? Have I missed something? :eek: Tiger Balm ingredients are below (just from Wikipedia...). Did you mean the Icy Hot Rub? I know Stephen also used Voltaren SPARINGLY which is also an anti-inflammatory gel which does have nsaids???


Tiger Balm Composition

Ingredient[3] Red White
Menthol 10% 8%
Camphor 11% 11%
Dementholised mint oil 6% 16%
Cajuput oil 7% 13%
Clove bud oil 5% 1.5%
Cassia oil 5%
The remainder is a petroleum jelly and paraffin base. The packaging label states that the active ingredients are menthol and camphor.
The original Tiger Balm Red and Tiger Balm White have 25% of Camphor.[4] A new product named Tiger Balm White HR uses Eucalyptus oil instead of Cajuput oil.[4]

And, repeat what FW said - do NOT use Tiger Balm immediately after a bath, can be very irritating to skin at that time.
 
Grace is feeling a bit better.
She went poo last night and.......
this morning no fever! INTERESTING!!!!!:yrolleyes:
I'll still be watching for any sings of the virus.
Last night I started with a cough and:yfaint:
this morning I seem to be coughing up stuff but NO fevers.


Edit::ybatty: Just as I type this Grace is coughing up a HUGE amount. It's in her lungs for sure! Time to get her nubulizer out. I just hope I still have some meds for it!:eek:
 
Ugh! So sorry to hear that Grace has been feeling so bad! I hope she feels better soon...and while I hope it was a virus, I hope you do not have it!

(((Hugs!!!)))
 
I'm officially worried.:shifty:
It's in her chest pretty bad.
She can still breath for the most part
and she still wants to play but the coughing is starting to get physically hard on her.
She's still coughing though,
it's when it's stops that I need to be worried.
I've been through this before with her.


Plus we're officially snowed in.
We lost power last night and it's only getting worse.
My hubby doesn't even know if the tractor will be able to get through this icy/slush/snow mix, :ywow: 3 feet of it and more coming.
So getting new meds for her nebulizer won't happen till early afternoon. Hopefully the new GP will be able to help.
I would hate to end up in the hospital during Christmas.
I'll be calling the GI too.
Her fever has started to go up and this will be day two of no poo.:voodoo:
If scopes get canceled I will just scream.:voodoo:
BTW my son got the virus last night and I'm still feeling horrible.
We'll see what the day brings.:kiss:
 
Sorry Grace is worse. Have you tried asthma releiver for the cough? It may make her lungs a little clearer.
 
Sarah uses ventolin, its a puffer. Normally given to stop an asthma attack. When Sarah has cold she uses her puffer to help with her breathing as it reduces the cough when exercising.

Forgive my spelling its after midnight and I can't sleep.
 
OK, I thought that's what you meant.
Yes Grace has meds like that, that we put in her nebulizer. She's to young to use a puffer. However.....she's out of the med or should I say it (Arbuterol) expired in April (bad mama).
I'm calling GP to make sure it's OK to use.
She out of Budesonide completely but that's more of a rescue med.
 
Oh Fwife :kiss:
I am sad to read this.
V was asthmatic from ages 2-4 and used a nebulizer but always needed pred to stop an attack, 3-5 days at 30mg.
Remember inflammation is a component in asthma, not just bronchospasm and sometimes the bronchodilators don't do it.
I got nervous just reading that you are snowed in with a tiny child who is in respiratory "distress" to a degree.
Will be watching this thread; may be a good idea for her to be in hosp as she can get a full assessment by a TEAM, scoped etc all in one admission. :heart:

Edited to add:
drugs are "good" up to 12mos post expiry.
Albuterol IS also a rescue med.
 
When sarah little we used puffer + spacer + mask which went over the face and nose.

We were told if any asthma involved with the cough the puffer will stop or reduce the cough. Sarah has asthma but does not have asthma attacks (3 in total only) has constant cough without medication.

If she cough is worsing with exercise it could be exercise induced asthma. Just thought from our experience with asthma and colds.
 
Thanks imaboveitall, unfortunately Albuterol was the only med the doc felt safe enough to use on her multiple times a day, until her flares went away. Nothing else worked and she was only 1 1/2. She hasn't had much of a problem for 2 years. A flare up every now and then. We've been very fortunate.

I'm off to rest with my sick household. What a Christmas break!!!
 
Catherine said:
When Sarah little we used puffer + spacer + mask which went over the face and nose.

QUOTE]


That's neat!!! We were never offered anything like that. I should ask.
I also in time past had to be put on a puffer during a cold.
My brother had SEVERE asthma as a child. Almost dies multiple time.
Click to expand...
 
As the med can be used many times a day, its the same type of med as we use.

off to bed myself as its almost 1 am.
 
Oh my goodness - I totally feel for you guys - If you can get through the snow can you get to see the GP? Maybe Grace should have some antibiotics for her chest - really need to make sure it is clear for the scopes.
I am hoping you all start to feel better soon and that the snow stops so you can get Grace her meds xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
(In the meantime try lots of steam inhalation to try to shift the mucus - it may make her breathing a little easier since you don't have the meds).
 
Black coffee is a bronchodilater if she has an attack and you can't get out in the snow. It's no replacement for albuterol but it beats nothing. Sweeten it up so she'll drink it. It might even help her pass stool.

That kid should have been in a hospital a month or three ago. :(
 
Oh my muppet!!!

You just brought back so many memories of my brother at age 5 drinking coffee. That's right 5! People would get mad at my mom or dad if they saw this and my dad would smile and say, doctors orders!!!
I think that's why I'm addict to the stuff. I never got any till I was 18, dads' orders.
 
My middle child (now aged 4) is on a beclomethasone inhaler (twice daily), and ventolin inhaler (when he needs it) both used with a spacer. He also has montelukast - with all of these he now only suffers when he has a cold - maybe Grace needs some of these? Your GP will know best but they have made an amazing difference to his life. - I am thinking of you guys xxxx
 
Hugs....
Two things albuterol is the generic name for ventolin.
It is a rescue med meant to be given during an asthma exacerbation ( flare).
It is a bronchodilator . It can be given typically every fours hours.( talk to you doc)
If you see no response or improvement after 20 minutes of giving it head to the ER.
The ER docs can up the dose etc but monitor other things when doing so.

Buesonide is an Inhaled corticosteroid ( ICS) so is pulmocort / Flovent.
Pulmocort can be used with a neb Flovent uses a chamber mask.
These are used to reduce inflammation in the lungs so the extra inflammation from a cold flu etc... Still let air in for asthmatics.
ICS has less side effects than pred since they only effect the lungs but take two-6 weeks to reach optimum levels.
Both are maintence drugs to prevent flares and can be used in infants.
They do not replace rescue meds since they take weeks to work.

Cough can be as serious as wheezing in an asthmatic.
If the albuterol does not improve things she needs to go to the ER.

If she had the flu bad things can piggy back on it for an asthmatic so at least the gp needs to see her.
Again I am not a doctor just mommy advice so ask your doctor what is best for her case.
 
Yep inhaled steroids used chronically are better for keeping the airway open during cold/flu season, and that's what I do. Albuterol can still be useful for an intractable cough, though, but typically shouldn't be the primary method of treating one.

I've never been totally clear on the consequences of using inhaled steroids when you have a bacterial resp infection but I imagine antibiotics are a must in that situation. I know you are supposed to rinse and spit after using one of those inhalers and I always do but many (most?) patients don't (and that's bad).
 
Just catching up/ sending along some love and healthy wishes...hope Grace is feeling her best soon and you and your son are doing better in time for Christmas (or well before ;)). C'mon power company, get farm fam some electricity~!
 
Thanks the power came back on! YA!!!!:dance:
Thank God I had the frame of mind to fill the bath tub up.:D
Never, I say NEVER will I go with out flushing my potty on this farm.
My hubby teases me and says when have two big outhouse on the property.:voodoo:
I said good here a roll of TP and try not to fall in!!:wink:
 
Just catching up sorry I have been sick myself and have fallen behind. How is Grace feeling today? Does she still have fever? How is her cough?
 
Going ask the wonderful Dusty post what this puffer + spacer + mask looks likes as I can't work out how to post pictures ect.
 
Thanks Dusty! That's just cute is a sad kind of was!:D

Grace's cough is better:dance: but.....
stomach cramps have started up and liquid poo. :ywow: New for her.
Welcome to that time of year. I hope.:shifty:
The smell reminds me of c diff. I tell ya Mary, if you sent this to us because were State fans, your gonna get it!!!!:voodoo:


Scopes 6 days and counting!:dance:
 
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We don't use ventilon as Sarah as primary treatment of her asthma cough now. Both Sarah and my sister had these coughs as 3-7 years which were dx as nervous coughs.

But a gp who Sarah saw as 8 year felt that it was asthma at that time she had never had an asthma attack. She took ventolin 3 times a day a month to find out.. The cough went away and we moved on to seredite her as maintenance ped.

My sister on the other hand had this untreated cough her whole childhood with my parents being told she was putting on the cough. She was always sick with colds, flu, etc. When she in her 30s she referred to a chest? specialist who dx her the most severe case of asthma he has ever since in a person who had never had an asthma attack.

This is my family experience with asthma.
 
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Glad Grace's cough is better. No you can't move on with clear scopies without some other test that shows the rest of the small bowel.

Farmwife what are we hoping for?

Eg. Scopies find something bad but Grace get treatment and starts getting better.

Or nothing found and it not ibd disease which is great but Grace is still sick with no answers.
 

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