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Me tooooo!
Misty I will be eating as well!
Just had some oramorph and a piriton. Off to bed now.
Night night you lovely people
Xxxxxxxxxxxxx
 
Glad you are doing ok and eventually made it home!!!!! I hope a few nights in your own bed will do you the world of good!
 
Hi Shazz!!!

Im so sorry you've been having such a rough time, but am SO happy that you are home now!!!

I hope you are feeling better, and get better and better every day.
 
Thanks everyone.
Have had a fab sleep, last night and this afternoon.
Had a bath and washed my hair!!
Am having my inr done tomorrow at my docs.
Still keep having nosebleeds and palpitations. Will keep an eye on those and gp to my docs again if they don't improve.
Have also still got chest pain but have been told I will have that for another few weeks yet. If it gets worse I am to phone 999 and get to a&e as soon as possible.
The fact that they have sent me home with oramorph is a bit of a comfort.
Will let you know how I get on tomorrow.
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Sorry you are still having problems Shazz. But sleeping and resting will do your body a world of good. I could never sleep in the hospital...never. Hopefully once the drugs are out of your system, and the reactions stop, you will feel much better...all my digits are crossed!
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It is so wonderful to read that you are home and sleeping so well! YAY!

Good luck with the blood test tomorrow!

Take care and be safe...:hug:

Dusty. :heart:
 
Having blood tests every 2-4 days!
They need to get my inr levels right.
On another note have asked my sister to get a consultant at her hospital to read through my discharge papers. The reson being when they gave me my dx in hospital, as to the size of the clot, all they said was that it was in 1/3rd of a lung. On reading my discharge papers the dx on there is different than what they told me. I asked my sister what a few key words meant. She then asked me to read out the whole thing to her and she would ask one of the consultants to have a look at it.
Still very very tired and in a lot of pain again today. Thank goodness they gave me oramorph and codene to take home. Don't like to take the oramorph lots though.
Will let you know what she says
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I sincerely hope you get rid of the pain very soon Shazzy. And I'm curious what the issue is with the discharge papers. Very curious.
:ghug:
 
They have said the pain could last for up to 3 weeks!
As for the discharge papers I really don't know! Will be interesting to see what the consultant thinks.
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Hey Shazz, very odd about those papers, also curious what info you sister gets for you. I am keeping fingers crossed that you can feel better soon hun :hug:
 
Hey hun. How you doing now? Better I hope. Getting on with the new bag ok?

I am currently taking paracetamol, codine and oramorph. Its still not touching the pain though.

My sister has just got back to me. Her consultant has said I have got 30% occlussion in one lung and 90% occlussion in the other! No wonder I couldn't breath and i am still having problems now.

Feel like crap today. Aching, headache and chills. So looks like i will be having a cold on top of this as well!
Oh well back to the sofa and my blanket.
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Hi there can your gp not give you something else for pain? The bag is being a pain in the ass! It's still overactive in excess of 2 litres a day,and I dont get any peace! Feeling stronger in general but having trouble as I did when I had my last stoma keeping magnesium, my body obviously doesn't rate stomas!! Glad your comfy on the sofa after I've been to the shops my plan will be very similar. Take care and get plenty of pain relief.
 
Oramorph is the strongest one they can give me without being in hospital. I will see how it goes, I can sort of deal with it for now.
Sorry to hear you are still having output problems. I am living on ready brek, banana sandwiches, peanut butter sandwiches, crumpets, mashed potato, chicken, rice and pasta. So far my output is doing good. Its the only part of me that's doing what it should be at the moment!
Really hope you get some rest and they can figure out a solution for you soon.
Xxxxxxxxxx
 
What dose of oramorph are you taking? Speak with your GP on monday and he/she will increase the dose of oramorph or give you an alternative.
 
Hi Shazz,

Haven't been on the net in a few days so only just catching up with this thread!

Good to hear you are back home but sorry that you're still feeling awful :-( xx
 
"My sister has just got back to me. Her consultant has said I have got 30% occlussion in one lung and 90% occlussion in the other! No wonder I couldn't breath and i am still having problems now.

Feel like crap today. Aching, headache and chills. So looks like i will be having a cold on top of this as well!
Oh well back to the sofa and my blanket."

Wow. What else are they doing about this Shazz? I really think this should've reduced a bit by now?
 
They only want to hear from me if i I am still in pain and breathless in 3 months time.

I am on 10milligrams of oramorph every 4 hours. I don't like taking it because it spaces me out.

I am on warfarin for 6 months. That is the treatment for me.

I don't know what else they could do.
 
shazz said:
They only want to hear from me if i I am still in pain and breathless in 3 months time.

I am on 10milligrams of oramorph every 4 hours. I don't like taking it because it spaces me out.

I am on warfarin for 6 months. That is the treatment for me.

I don't know what else they could do.
Click to expand...

That is quite a small dose. 10mg morphine is roughly equivalent to 2 tablets of codeine 30mg. As I said give your GP a buzz and see if they can either increase your oramorph dose or give you a twice daily opiate to take that will give you better pain relief over the day.
You will feel much better if your pain is controlled.
 
Why can't they give you something like a Fentanyl Patch and then have the Oromorph for breakthrough pain?

Dusty. xxx
 
Misty - thank you for the waving of the pigmy wand!

I will see if i can get in to see my doc sometime this week and see what he will do. With my unperdicable reactions to drugs I am unsure of what he will do but i will ask.

Xxxxxxxxxxxxx
 
Hi hun. How are you doing now? Better I hope.

I am still not feeling right. I am cold all the time, tired, dizzy, aching so much it hurts and my joints all hurt - a lot.
Don't know whats going on but its driving me nuts!
I did dial back on the codeine but that's not made a difference. Only taking the oramorph at night, 1 dose.
Even when I take all the meds at the proper times and all it still hurts a lot.
Got my surgical review tomorrow. Can't believe i am only 6 weeks post op! Feels like a lifetime ago.
Will let you know what happens.
Have demanded the district nurse comes to me for the time being to do my inr tests at home. She was lovely and said it wasn't a problem. Still got my test results this afternoon. Inr has gone down to 1.5. That is lower than before i started on warfarin. Am now on 3mg every day for the next week.
 
Shazz, I'm sorry, I think the puppy must've broke my pigmy wand!

I'm glad you have a review tomorrow, sounds like everything is far from right! I know, that a couple of months from now, when we're on the beach having a drink together, and eating what we want (and by golly YES WE WILL!) this will be a bad memory. Cause I'm gonna come see you young lady! So get better soon, cause I can cause mayhem wherever I go.

Dont be fobbed off by the surgeon (and I think they will be damn worried to be honest) and get some more help!!!!!!!!!!!!!!!!!
Major belly hugs, puppy licks and heartfelt healing.
 
Misty I love your new photo!! So cute!

Don't know what my colorectal surgeon will be able to do about my p.e.
My Ozzie stoma is working fine and is (touch wood) behaving himself. It is the only part of me that is working! People keep asking me when i am going to have the reversal op but i don't want to get rid of ozzie, not yet anyway. Plus there is no way I am going anywhere near an operating theatre anytime soon!
Have just taken all my meds so hopefully will be able to sleep tonight. Will need all my energy for tomorrow. I normally sleep all afternoon!
Misty better wait until i am completely healed before you come causing mayhem. I do tend to cause my own wave of destruction wherever I go as well!
 
Stoma nurse meeting went really well. Got my template sorted so can have all my bags pre cut. Also ordered a cumberband as well.

Surgeon was ok. He checked my scars. Introduced me to the surgeon who would be doing my re connection surgery. And that was it!!
He said anything else i need to see either my IBD team or my gp.
Back to square 1.
Will go and see my gpgp tyen. Feel llike i aam being pushed from pillar to post though.
 
Hi Shazz!! I'm glad to hear that at least Ozzie isn't giving you hell!! That is the last thing that you need.

Are you still having all sorts of chest pain? I really hope that goes away for you soon.
 
Hi hun.
Sad to say but yeah still got the chest pain. Seems they are reluctant to give me anything else. If thte pain would ease off i would be able to sleep better at night and would probably feel a lot better.

Ozzie is a welcome addition to the family. My mum and best friend speak of him as a member now as well. It really does make it easier to deal with. My youngest son(7) asks about him as well. My eldest(12) I think is a bit curious but doesnt want to show it.

How are you doing now hun? A lot better I hope.


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So bit of an up and down week.

Had a few funny turns. One was totally my fault! I went to bed the other night and forgot I had this whole breathing problem! I lay down, on my back! Stupid bloody woman. Anyway I stantly couldn't breathe and dizzy, cold and clammy again. Didn't want to go to hospital again, so just sat up in bed for 3 hours until it eased off again. Still don't feel too good. Also during this turn my head started hurting. Not like a regular headache but more like a pressure in my head on the right hand side. Had funny flashing in my eye as well. Had a headache since and the bloody headache wont go away.

My Mum's friend had a brain bleed out of the blue on Wednesday. Sadly they turned off the life support last night. She was a wwonderful lady who never had a health problem in her life. I will miss her a lot. She was a strong advocate of organ donation and her family and friends are taking a lot of comfort from that.

On the positive this week. My best friends husband works for St. Lukes Hospice as a manager in one of their charity warehouses. He has kindly sorted me out the loan of a wheelchair until i no longer need it. It is the most nicest thing he could have done for me as I have been unable to even go for a coffee with my best friend as i cannot walk more than a few steps without getting tired and breathless. Looking forward to going out for coffee with my Mum and friend next week.

Hope everyone is doing good and looking after themselves.

Xxxxxxxxxxxxx
 
Hey Shazz,

Sorry to hear about your mums friend, that's really sad :-(

Sorry that you're still so poorly as well, will be nice for you to get out and about next week :) xx
 
Am back in hospital! Just waiting to be assessed. Cant breathe. Pain. Dizzy. Same old same old. On a medical assessment unit. As usual my obs are fine. No high bp, sats are fine, temp is fine. I am not fine. I will update when I know what is happening xxxxxxx
 
OH gosh!!!! I can't believe you are back there again :( I was worried when I read about your nasty headache and stuff. You are at the best place you can be, I know.

I'm so sorry you are having such a freaking hell of a time, Shazz. I really wish I could be there to give you big hugs!!! I know that doesn't make everything better... but it might make you feel a bit better!
 
Not enough warfarin in my system. So its not breaking down the pe. They think its got bigger. Big hugs always help! More later xxxxxxx
 
Bigger!!!! I take it that they are now going to do a scan to confirm this? This is soo not on.

Super duper squishy hugs on their way :hug: :hug:
 
Hahahahaha AB. This is the nhs! No scan cause they know I got it. They will take bloods and do an ecg. I can tell them my ecg will be fine. It always is! They are rather concerned about my blue lips and fingernails though! Thanks for the super duper squishy hugs. Thems The bestest
 
Oh NOOOOO Shazz!!! Its not supposed to get bigger! MEN are supposed to get bigger, not PE's!!!

HUGE belly huggggggsssssss, smooches, and best wishes that you get help from the very best people!
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Thanks misty for as always making me laugh!

My hopes for a quick get out are not high. Just had to show a junior doc how to take my blood pressure and tell him what size needle to use to take bloods from me!!
Just waiting now. Getting hungry as well! And would kill someone for a cup of tea!
 
They are sending me home again cause there is nothing else they can do. The consultant thinks I have got ptsd and I need to go home and live my life! I will come back again on monday if I feel no better.
 
I am no dr, but ptsd isnt uncommon with the surgeries you've been through. However, PE and symtoms like yours arent necessarily PTSD! Ya'll need your normal GP and GI honey, ASAP. (sugar (better than a cuss word) it's the weekend!)

Would this be the junior Dr who says you have PTSD?
 
Not the junior doc. This was the brigadeer(?sp) himself. And very condesending he was too!
He said he thought i was suffering from ptsd, so i asked him if I displayed any of the usual symptoms of ptsd. He said well usually heart rate and bp would be up or down. You would be sweaty, nervous, jump, tearful and showing other symptoms.
I asked am I showing any of those symptoms?
No was the answer.
I just have not got the energy to fight to get medical treatment at the moment. Am so tired and in so much pain I can't think straight.
I will see how it goes and take it from there I suppose.
 
That sounds about right!
Might go back on Monday and see if I can get anywhere then.
Just taken some morphine to see if that helps to deaden the pain a bit.
Xxxxxxxxxx
 
Ah hell Shazz, I hate that this nightmare is continuing for you. :voodoo:

Well aren't they just the biggest bunch of :quack:'s. Every symptom you have described and presented to A&E with is those of your PE so I have no idea why they say it is down PTSD. Because your PE is large it will take some time for the symptoms and clot to resolve and the fact that you were cyanotic is testament to that.

Sending you loads of love, luck and healing thoughts for this roller coaster ride to be soon over! :hug:

Dusty. xxx
 
Thank you so much for all your support. You guys always amaze me with how much you are here for me and anyone else who need you.

It is so annoying that someone who doesn't know me can jump to a conclusion like that based on my bp - which even when i presented with the pe symptoms didn't go up, my says - which yes were fine when sat down, not talking or doing anything but when he asked me a question to which I answered no went from 99 to 75, and my pulse - I have a resting rate of 60 - it only went up to 79, not a huge jump but for me up more than normal.

I am normally a positive minded person, as some of you might have gotten from my posts, but it is hard to stay positive when some medical people keep insisting you have nothing major wrong with you but stress induced symptoms.

I did even try to get across to him that it wasn't so much the breathing I was concerned about but my pain levels, which are still the same as when I first presented.

My sister is down tomorrow, the sister from a&e, so if need be she will come with mme and shout at someone!

My boys are preparing my breakfast in bed for me now and I have had a lovely flower card from my youngest, hand made. Going to try to enjoy that now, even though I am in so much pain.
Xxxxxxxxxx
 
The thing is Shazz, anxiety is a symptom of PE, whether it be from pain or SOB or both. You know yourself better than anyone and if you don't think you are stressed/anxious, mind you dealing with fools will surely do that to you!, then you aren't. But if they are insistent that that is what the problem is then they should be making the connection back to the PE. Grrrrrrrrr.

Oh yes!!! Happy Mothers Day!!!

Dusty. xxx
 
You are such a battler Shazz. You have shown such amazing strength and resilience.
I hope you get some relief soon - it's so hard dealing with the relentless pain that is so often our constant companion.
 
Thank you Samboi.
I think you have the same stuff as i do then!
It is mostly the pain that is my main concern. I had a lot of pain before with my UC and coped with it. But even with my high pain tolerance this is a good 8 on a good day and 9-10 on a bad day. It is just so frustrating when you are not taken seriously. Grrrrrr

But you gotta laugh and try to shrug it off.
 
Thanks Joan.
Had wondered where you were! Hope you are ok hun.

Been having a few problems swallowing my food today. At first thought it was just jy toast, maybe a bit dry, but just had apple crumble and had a little bit of trouble with that as well. It goes down so far then feels like it gets struck. Need to have aa drink to get it down.

Because of the response I got yesterday I am now second guessing myself and wondering if it is all in my head! I know its not but i can't help wondering now if I go and see someone about this are they just going to read the report he wrote and pass it off as that. Also still been breathless again today, on and off. It seems to come and go in waves.

Will speak to my sister and see what she thinks.
Xxxxxxx
 
Well, Shazzy gorgeous, do you do any meditation or grounding excercises to help calm yourself? (I'm an A type personality...so I need it) It helps.

This of course is to help me to open a case of whoop ass in a calm but assertive matter. (did it Sat as a matter of fact) If I didnt ground and center first, he woulda had a black eye, and I'd have been a stressed freak. (and possibly in jail)
 
I don't feel stressed. The anti depressants I am on take care of that for me! Have not felt more mentally together than I do now.

I think my problem is I am now doubting that what I feel is real! It could drive you mad just thinking about it!

Glad you managed to calm and centre yourself Misty. It would be a long way for me to come and bust you out of jail! On the other hand think of all the fun we would have! Xxxxx
 
Sorry you are still feeling grim Shaz. Are you still on Pred? If not did you stop it recently as I just wonder if it could be partly Pred withdrawal as you had been on it for sometime. ( not the food sticking but the sob, lethargy, weakness, painand dizziness etc)
 
Thanks Misty. I dont know what i would do without you hun! If it had not have taken me so by surprise, I would have laughed in his face but I honestly did not see that one coming! I do laugh now, PTSD indeed!

Peter thank you for your kind words.

Going to bed now as I can't hold my head up anymore. It hurts to much!

Tomorrow is a new day and it will be interesting to see what it holds for us all. Got a feeling a few docs might wish they had stayed in bed but we shall see. Depends on how much sleep I get. Been averaging 4-5, sleep then wake up cause cant breathe, go back to sleep, wake up in agony. You all get the picture!

Its not till you write/type it that you see how bad it is!
 
Don't ever doubt yourself Shazz...:hug:...what you are feeling is real what ever the cause.

If you are having difficulties with your breathing then that can have the potential to cause swallowing problems and dry crumbly type foods are the hardest to swallow.

Dusty. xxx
 
It is seriously not in your head shazz!!!

You are right, everyone around here is always there for everyone during tough spots. This is a truly great place to find support and comfort.

I really do hope that things start getting better for you. I hate this for you. My offer still stands to kick some ass by the way!! I might be small, but I can be mighty LOL

Get some good sleep tonight!
 
shazz,
I was recently in the big city ER for severe pain from a serious disc protrusion in my neck. I didn't present in the textbook way, I had not had ANY sleep for over a week and I had to continually pace with my arm up over my head to get relief from the burning shock-like pain down my arm. Even with a private MRI showing the large disc protrusion, the ER doc thought I was "nuts". Yeah, nuts from the pain! And she would have been too if it had happened to her! Long story-short, I found the right doctor to get me sorted out with the right meds and gradually I am getting better.

I was so exhausted from the pain, I could not advocate for myself and I also began second-guessing myself even though I have worked as a health professional for many years and know how serious my condition was. (I had partial paralysis of my arm and the protrusion was so large it was touching my spinal cord.)

Trust yourself Shazz. Please get in to see another doctor and take someone with you to advocate. Even if you do have anxiety (which is possible from all you have been through!) it would be an acute stress reaction, not chronic like PTSD because the event which would have started the anxiety is still ongoing--your MEDICAL condition! They need to get you sorted--and soon. Any talk of chronic anxiety is a discussion for later.

Good luck tomorrow Shazz.
 
Aw you guys rock!

Usual story last night, again! Took 2 paracetamol, 2 codeine, 1 piriton, 10mg morphine. Dozed on and off most of the night. Must have eventually fallen asleep cause i had a dream where i was talking to someone and I had the most horrendous pain in my head. Yep I woke up to find I had a horrendous pain in my head, like a migraine but slightly different. With my migraines, when i get them, I get a gradual build up of pain over a few days. Not this, I know that at 3.43am I had no headache but at 4.30am that's when it woke me up. Couldn't move for a few minutes because of the pain. Eventually got out of bed and went to get some more paracetamol and codeine, managed to get those down, one got stuck in my throat - hate it when that happens then just sat up in bed waiting for them to start working.
Gave up at 6am and got up with hubby and made a cup of tea.

I will phone my gp and get him to come out to me and see if i can get any sence out of him. Or i might go straight to a&e. Have not quite decided yet.
Will let you all know what i do. I know, like Happy, that if i get my pain under control I will start to get better.
 
Oh Shazz :( I really hope that they get it together and give you some relief. i would go to A&E if you are hurting so badly.
 
At last for somewhere today!

Was about to phone my gp this morning when my phone rang. Answered it and it the idiot brigadeer that told me I had PTSD on Saturday. He was very worried about me over the weekend and apologised for sending me home without doing more tests. He arranged for me to come into hospital today for another scan to see what was going on.
So off I toodle and wait for my scan on the same medical assessment unit. Really didn't feel well at all. Called the nurse over who did my obs. Bp up a bit, heart rate up to 95, sats down to 92, temp up to 38.8! She asked me how I felt, I replied crap - my sats went down to 80 with that one little word.
Well what do you know? They come to the conclusion that i am unwell!
No **** sherlock! Excuse my french.
So I have my scan and it shows my left lung, 30% occluded, is now clear. YAY!!
My right lung, 98% occluded, is still between 50-60% occluded now!!

The doc i saw today was one of the good ones. Plus it didn't hurt that my sister had worked with her before and so they knew each other! I gave her a rundown on my life since January 30th. Took a while but we got there. She was disgusted at my treatment to date. I told her about my problems swallowing, she had a look in my throat. Turns out the oral thrush I had from the oxygen treatment has gone down into my throat. Some had blistered and some had ulcerated. Got some drops for that.

Told her about my headache. She gave me a stroke test, just to rule out any possibility, all ok there. She checked my eyes and pupils. My right eye was a bit blurry and sore when I looked upwards. She said this was probably due to exhaustion caused by poor pain management and lack of sleep.

She took my temp again and it had come down to 38.0. She checked my glands and they were up. As a precaution she has given me a week of antibiotics. This she explained was just in case I was heading towards an infection of some sort in my lungs/chest.
She has also phoned my gp's surgery and told them to book me in for a pain management appointment with my gp on Thursday morning!

Now if she can figure all that out in half a day then why couldn't anyone else?
Sorry this has gone on for so long but wanted to get it all out!
I do finally feel as if i have been listened to today. With that and my appointment on Thursday I am hoping to be on the road to recovery!!
 
Well, that means all our prayers have been answered that you are getting help, Finally!

Now, onwards and upwards sweet pea!! You have got the ear/nose of the medical community, and thank goodness. You are on the mend...or getting there!
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Oh Shazz,
I've been waiting to hear. Thank you for letting us know how you made out at the hospital.
Thank goodness someone finally decided to give you the care that you have needed all along. Good news all around :cheers: but keep following up and get in to your GP anytime you think you are having a change for the worse.

May you soon be out of pain, on the mend and on to doing what you want. :)
 
That is great news!! I'm glad someone finally listened to you and that you are getting taken care of!! FINALLY!!!
 
Well Halle-bloody-lujah!!!
bear-somersault.gif


I so hope it is all plain sailing from here! :goodluck:

Onwards and Upwards!
Dusty. xxxxxxxx
 
Finally! Awesome! So glad to hear you finally got a real Doc! What a relief for you to be finally listened to and treated! I hope you are feeling better soon! :thumright:
 
Haha, that's me turning somersaults cause you finally got some where! YAY!

Dusty. :heart:
 
Being listened to by a Doctor:ghug: takes care of a percentage of the mental and physical healing process. Now you can concentrate on being well . I hope you can get some peace of mind and a few good days ahead.
Peter
 
Had few really bad days. Not been able to swallow anything thicker than milk and water so been really weak. Just been sleeping lots.
Saw my gp this morning and has tweeked my pain meds so that should make some difference. He has doubled my intake of oramorph for a start. He has also arranged for me to see a specialist about my eye. Its been hurting when I look upwards, been having stabbing pain in it, my vision goes blurry and also get flashes of light as well. He has set up an appointment for me tomorrow. I had been mentioning it for just over 3 weeks to various professionals at the hospital but nobody would take a look.
He has given me some omeprazole and gaviscon advance to see if that helps with what he thinks could be acid reflux.
He has given me some cream to help with my poor dry skin and some irritated spots I have got.

In a 20 minute consultation he has sorted out all my issues and possibly prevented a few more from occurring.
He has told me I do not have PTSD and we had a good laugh about that! He had also told me to phone up and ask to speak to him if in want to for any reason. I am still running a bit of a temp so will keep on eye on that.

All i want to do is sleep so that is mostly what i am doing.

Hope you are doing ok hun.

Xxxxxxxxxxxxx
 
I'm sorry things are still not right with you! But I am happy to hear that your GP seems brilliant! I'm very happy you are getting treatment. I suppose once the pain management is good, its just a matter of being patient for the PE to reduce? As for the other bits, is that because your immune system is a bit wacked out right now?
Belly huuuuugggggggggggggggggggggggggggssssssssssssssssssssssssss
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Oh Shazz,
Sorry to hear that your path to recovery is still not smooth. It will be good to have an eye specialist take a look. Last year, I developed some blind spots in both eyes from being malnourished (lack of blood flow). Fortunately, they have completely healed. Scary, but once I knew what it was and that it would get better, it helped me to relax a bit. Hopefully your problem will resolve soon as well.
Keep us posted.
 
My gp says with the amount of stuff my poor body has been through recently it is amazing tthat not more is going wrong. He explained it as a your body feels one thing going wrong ie the colitis so it puts extra energy into dealing with that. Then I have my op so it turns to that, then i get my pe so it tries to sort that out, then I am still in pain so it tries to deal with that as well. Not enough energy, nutrients and other stuff to go around. It does make sense.
He said it could take the pe a little while yet but it will go, eventually!
So, its one day at a time and if I feel like sleeping then sleep. No house work, no heavy lifting. I am allowed to make a drink, a simple snack/meal and go to the loo. That's it for another few weeks.
He has told me the district nurses will continue to come to me until he says otherwise.

It was nice for someone to finally say - right do this, take this, don't do this and you will slowly get better but its not going to happen overnight.

Thanks for the hugs Misty - always welcome. Xxxxxxxxxxxxx
 
Shazz! :) I'm so happy that you had a good appointment and someone is finally taking care of you the way that should have been all along. You sleep as much as you can sweetie and take it easy!!
 
So went to the eye infirmary today. They gave me the most thorough examination I have ever had. They put various drops and dye in my eyes to do different things so they see all the different aspects of my eye.
They couldn't find anything conclusive so they have asked me to have an mri scan. They are concerned that with the size of my pe and the fact that there were no outward signs, that a small clot could have gone behind my eye or is affecting my eye somehow.
I am so grateful to my gp and the staff at the infirmary for taking me seriously and listening to me.
The blurry vision is now constant and the pain is slowly getting worse.
Of course this could all be stress, which really would not surprise me, but at least I will know there is nothing going on.
I didn't take any pain meds this morning cause i didn't want them to interfere with the tests. Am now in agony so have taken my new dosage of oramorph and can feel it starting to work. Going to have a nap and will check in later.
Xxxxxxxxxxxxx
 
I'm so happy you have good people watching over you right now!!! You really need it and deserve it :) I do hope it is all chalked up to stress, but I am so pleased they are at least looking into your eye problem!
 
Glad you have a good team working all the angles! Now, if you can stop being in pain! I am hoping for good news only from now on, cause you deserve it!
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I know you're trying, they let you get too far down, and now you have a long climb up! :ymad:

But if anyone can...YOU CAN!!
:kiss::hug::kiss::hug:
 
Still having trouble swallowing food.
Was able to get a peanut butter roll down yesterday, with a lot of water to help.
Today couldn't even manage more than 2 bites. I am feeling hungry but just can't get anything down.
I don't understand what is going on. My throat isn't sore or dry.
The food gets so far down then wont go any further. I have to swallow loads of times and drink something to get it down.
Have tried soup with small bits of carrots and potato, rice pudding, bread, rolls, toast, apple crumble with custard to name but a few.
I have had a cup-a-soup today and that was ok because it had no bits in it.
Anyone had anything like this before? Any ideas what is going on?
Also, probably unrelated, I keep forgetting things. My memory is usually really good but recently I have to be told something 4-5 times before it gets in my head. My hubby talks to me and I forget what he is talking to me about half way through.

On the positive side the chest pain has actually eased a bit in the last day or so!! Its still there but not as bad. Still really hurts if i forget and cough or yawn or sneeze but it is an improvement. Yay
:dance:
 
Ahh Shazz you have been through it. I was allegic to warfarin, but reacted to it immediately.

You are probably forgetful because you are tired and stressed. If you can, get as much sleep as possible.

Maybe the thrush is affecting your swallow? I hope you get some relief soon. Glad the pain is easing.

Love Kaz xxx
 
That sounds like problem indeed. I think you need get back to the GP Shazz if you cant swallow.
:ghug:
 
My gp looked in my throat and said the thrush had all gone. Am wondering if it has gone further down.

Can't speak properly again and it feels like there is something blocking the way. I can breathe fine so not too concerned about that side of things.

It does kind of feel like i am falling apart! Get one thing sorted and something else goes wrong.
 

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