Hello to all. I have suffered for years with numerous symptoms. I evening have family members who tell me I am crazy, I am not sick, that no one has this much trouble with bowel movements, etc.
Where to begin.. I have occasional bouts of low grade fever, mouth sores, diarrhea, extreme fatigue. These bouts last several days, or more. I am coming off one now. I am an RN, so I have had colonoscopy with biopsies, Prometheus blood tests, etc. My bowel movements have have always been a nightmare. I describe my bowel movements as no bowel, slow bowel, go bowel. Essentially, I often don't go for days, then I get severe bloating, and eventually I will finally have major movements, with a sludgy consistency at the end. Following a movement like this I am exhausted to the bone. Often, I have told my husband my BM was violent because of how I felt afterward. He does not understand this-he is as regular as clockwork.
I have a family history of both Crohns's and Celiac via maternal and fraternal aunts. I have tried fiber, but my symptoms worsen. I have great difficulty with dairy such as ice cream, sour cream, etc. Also found to aggravate me are pastas such as macaroni, any red sauces. When we go out to eat it is difficult for me to order and find foods that don't cause symptoms. Fried foods also cause problems.
I know that it is not likely for me to have a slight case of the flu 5 times a year or more. These episodes I have feel like a flu-like illness. For example, on Saturday I felt bad. I had numerous large ulcers in my mouth, and one beside my last upper molar that looked like a crater. My eyes were red, and I ran a low grade fever, dragging myself through the day. I am sleeping 10 hours a day now, and still feeling fatigued. Does this sound familiar to anyone here? I have talked with numerous practitioners I know, and most of them agree that although constipation is not common in Crohns's there are patients who experience it on an ongoing basis. One episode several years ago occurred when I also had a severe bronchitis, and was placed on a course of Prednisone. ( I have asthma, but am well controlled via maintenance med, Advair, and have a nebulizers, etc) My bowel symptoms quickly cleared up.
I discussed this with the doctor as it seemed to me to be indicative of
inflammatory bowel disease since my bowel symptoms responded quickly to
the Prednisone. She agreed, but also felt perplexed about my negative diagnostic test results. She feels quite sure that I have some componet of Inflammatory Bowel Disease. Do my symptoms sound like anyone else's symptoms here? Any comments would be greatly appreciated. Forgot to add that my fathers sister had a colectomy due to obstruction. Thanks in advance.
Where to begin.. I have occasional bouts of low grade fever, mouth sores, diarrhea, extreme fatigue. These bouts last several days, or more. I am coming off one now. I am an RN, so I have had colonoscopy with biopsies, Prometheus blood tests, etc. My bowel movements have have always been a nightmare. I describe my bowel movements as no bowel, slow bowel, go bowel. Essentially, I often don't go for days, then I get severe bloating, and eventually I will finally have major movements, with a sludgy consistency at the end. Following a movement like this I am exhausted to the bone. Often, I have told my husband my BM was violent because of how I felt afterward. He does not understand this-he is as regular as clockwork.
I have a family history of both Crohns's and Celiac via maternal and fraternal aunts. I have tried fiber, but my symptoms worsen. I have great difficulty with dairy such as ice cream, sour cream, etc. Also found to aggravate me are pastas such as macaroni, any red sauces. When we go out to eat it is difficult for me to order and find foods that don't cause symptoms. Fried foods also cause problems.
I know that it is not likely for me to have a slight case of the flu 5 times a year or more. These episodes I have feel like a flu-like illness. For example, on Saturday I felt bad. I had numerous large ulcers in my mouth, and one beside my last upper molar that looked like a crater. My eyes were red, and I ran a low grade fever, dragging myself through the day. I am sleeping 10 hours a day now, and still feeling fatigued. Does this sound familiar to anyone here? I have talked with numerous practitioners I know, and most of them agree that although constipation is not common in Crohns's there are patients who experience it on an ongoing basis. One episode several years ago occurred when I also had a severe bronchitis, and was placed on a course of Prednisone. ( I have asthma, but am well controlled via maintenance med, Advair, and have a nebulizers, etc) My bowel symptoms quickly cleared up.
I discussed this with the doctor as it seemed to me to be indicative of
inflammatory bowel disease since my bowel symptoms responded quickly to
the Prednisone. She agreed, but also felt perplexed about my negative diagnostic test results. She feels quite sure that I have some componet of Inflammatory Bowel Disease. Do my symptoms sound like anyone else's symptoms here? Any comments would be greatly appreciated. Forgot to add that my fathers sister had a colectomy due to obstruction. Thanks in advance.
