Having a rough day.... just a vent really!

[jaggartini]

I've had a pretty rough few weeks and I think today it's all just hit me. Just having one of those days. The prednisone is playing with my body something chronic. I was going to try and go into work for a few hours (1st time back since 3 weeks) BUT I don't even think I should drive I feel that scattered.
My husband just got me on Skype and said "where did you get that image" I said "what image", he said "the one you just emailed me" I had completely forgotten that I'd just emailed a photo of our last seafood platter on holidays and I was telling him to take me back there. What's with the memory loss, it's freaking me out? ale:

I just went down town, got back home and had to think long and hard why i even went down to the shops anyhow I'm usually a pretty clued on person so this is freaking me out a bit. I look like crap, I've lost weight but my stomach still looks bloated. I've got bruises all up my arms from the drips from 2 weeks ago. It's summer here so I can't hide them. Everyone keeps saying "nice bruises". "Yeah thanks" Grrrrrrrr

3 weeks ago: Major flare, worst I've ever had. Couldn't eat, the thought of eating gave me major stomach cramps.

2 weeks ago: End up in hospital, I hemorrhaged, ICU, blood transfusion.

1 week ago: out of hospital but 2 ambulance visits and one ride to a local hospital later to be monitored for a few hours with possible reaction to Cyclosporin.

Weird thing is I feel like it's the Prednisone that's making me feel like this. My heart rate shoots up at lunch time every day. Weird. Any other time it's fine.
It's making me so moody, I felt like I could have killed someone this morning (never would but you know what I mean). My poor babies, I'm snappy and I hate it. My 4 year old said this morning "are you OK this morning mummy, make sure you don't have anything creamy today to upset your tummy and end back in hospital" Bless Him

I guess I'm just losing patience as I co-own and run my own business with my husband and it's sooooooooooooooooooooooooooooo busy. I am the manager and I'm not even able to go in there to meet the new team we've hired for the Christmas rush. They are wondering where I am. This is where we make our money so we can live for the year which ads extra pressure. Hubby is brilliant, I've got lots of family and friends who have cooked dinners and dropped fresh fruit off at our door. I'm just so teary and pissed off that I am 1 in 33 000 people in Australia to have this pr*ck of an illness. WHY ME

... and now I've got the added pressure of considering surgery as its that or MXT. Trying to get myself well before I even think about that, but it is in the back of my mind.

Thanks for listening to me rant . Praise the lord for forums such as these

gx

 

[kllyeve]

Hugs coming all the way from wintery Canada!!

Must be a bad day pandemic. Here's hoping tommorrow will be better!

 

[ksjacksonjr]

I hate every living moment when I have a bad flare and end up on prednisone. It makes me feel like a basket case. I get moody also. I snap at people when I dont mean to, if anything even remotely sad is portrayed on tv I cry. I usually lock myself in my computer room and play computer games. It seems killing monsters in games helps me. My wife, bless her takes it all in stride. She will walk up and just hug me then walk away, knowing that I do not like to be mothered she give me my space till the pred monster leaves. Just remeber that tomorrow will be different, it may not be better but it will be different. Untill that time death to all computer monsters that stand in my path. MUWAHAHAHAHAHA

 

[jaggartini]

Feeling a tad more human today. Spoke to my GI this morning and said I felt the worst I've ever been yesterday. I'm going down to 30mg tomorrow and going off the antibiotics as well so I guess that's a good thing. Happy to keep reducing the drugs.

Still shaking like a leaf so I'll hold off writing the corporate Christmas cards for now

x

 

[SdN]

I found this website a few days ago while trying to figure out some symptoms I've been experiencing I hope it helps you out.

http://www.cushings-help.com/adrenal_glands.htm

It explains all of the different hormones your adrenal glands produce and side effects from each if they are out of balance. You can have these problems even weeks or months after prednisone is completely out of your body

 

[jaggartini]

Thanks for that link.

 

[bruceleion]

Your suggestion is quite innovative. I would like to try your trick in such a situation. Thanks for this information.