You know, I thought I had been on this forum a long time ago, but I must have just been a lurker!
I've had Crohn's symptoms since I was 9 years old, but I wasn't diagnosed until I was 16 years old. The first doctor I went to had the audacity to give me some tums and tell me it was all in my head! Luckily, I found a great GI after that.
In the last 5 years I have had 5 colonoscopies, 2 capsule endoscopies, 3 barium swallows, contrast CT scans, MRI's, gallbladder tests, more bloodwork than I can remember; been on Asacol, prednisone, lialda, pentasa, and hyoscyamine. I am sure I am forgetting some things there.
Unfortunately, I seem to just be getting worse. My last colonoscopy showed that not only were the ulcers still there, but my colon now bleeds on contact. Never had that result before. I have developed extreme fatigue and headaches which makes me think I have stopped absorbing things as well as I should be, as well as joint pain along with the never ending stomach pain and bathroom breaks. I can no longer hold down a job.
My families response at this point is pretty much "get over it, you aren't that sick", so I am glad I found a place where hopefully people can relate to what I am going through. I know many people have it worse off than I do, and all of you inspire me.
Anywho, its been very nice to meet you all.
-Ashley
I've had Crohn's symptoms since I was 9 years old, but I wasn't diagnosed until I was 16 years old. The first doctor I went to had the audacity to give me some tums and tell me it was all in my head! Luckily, I found a great GI after that.
In the last 5 years I have had 5 colonoscopies, 2 capsule endoscopies, 3 barium swallows, contrast CT scans, MRI's, gallbladder tests, more bloodwork than I can remember; been on Asacol, prednisone, lialda, pentasa, and hyoscyamine. I am sure I am forgetting some things there.
Unfortunately, I seem to just be getting worse. My last colonoscopy showed that not only were the ulcers still there, but my colon now bleeds on contact. Never had that result before. I have developed extreme fatigue and headaches which makes me think I have stopped absorbing things as well as I should be, as well as joint pain along with the never ending stomach pain and bathroom breaks. I can no longer hold down a job.
My families response at this point is pretty much "get over it, you aren't that sick", so I am glad I found a place where hopefully people can relate to what I am going through. I know many people have it worse off than I do, and all of you inspire me.
Anywho, its been very nice to meet you all.
-Ashley