Hello my fellow crohnies

[r0bthe0ne316]

hello my fellow crohnies

I was told. It is not recommended for someone with crohns to get the ostomy bag, but yet someone with colitis can? why is this? :sign0085:

 

[Susan2]

Hi r0bthe0ne. Welcome to the Forum.

I am not sure what is meant by what you were told. There are a lot of people on this Forum who have Crohn's and have colostomies or ileostomies. (I am one of the latter and have had a bag for 13 years.) For some this surgery has been life-saving, for others it has given them a much better quality of life.

Could you explain a little more what led up to this comment or what was meant by it?

 

[Angrybird]

Hello and :welcome: to the forum. Who said this to you? Would you mind telling us a little more about yourself? Are you now facing an operation?

Hope to hear a little more from you soon xx

 

[r0bthe0ne316]

hello again

I am robert from the usa I have had crohns since 2000. 2 resections, many bathroom breaks, I am on Humira and have also tried methotrixate. I am wondering if I should just opt for an ostomy bag. I always have to worry where is the next bathroom is everytime I move.

 

[r0bthe0ne316]

Hi r0bthe0ne. Welcome to the Forum.

I am not sure what is meant by what you were told. There are a lot of people on this Forum who have Crohn's and have colostomies or ileostomies. (I am one of the latter and have had a bag for 13 years.) For some this surgery has been life-saving, for others it has given them a much better quality of life.

Could you explain a little more what led up to this comment or what was meant by it?

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I am robert from the usa I have had crohns since 2000. 2 resections, many bathroom breaks, I am on Humira and have also tried methotrixate. I am wondering if I should just opt for an ostomy bag. I always have to worry where is the next bathroom is everytime I move.

 

[Angrybird]

Hi Robert, have you discussed this with your GI? Are you on anything with the Humira as sometimes being on multiple meds can help?

 

[KazT17]

Hi Robert,

I am a Crohnie with an ileostomy. The reason they say it is not 'recommended' is that we can get Crohns in the colon and in the small intestine, so removing the colon does not cure our disease. UC is confined to the colon, so once it is removed, UC is cured.

My Crohns was only in the colon, and no-one knows if it will come to the small intestine, but I was so ill that I had to have the op anyway.

So now it is fingers crossed - and it is great not having to worry about finding a bathroom.

Kaz xxx

 

[tots]

I was told Crohns is described as having skip lesions. Its one reason its hard to get a positive BX. so if you take out what you think is the "diseased" part- you havent gotten all of it. With UC say it affets 5 inches of your colon (i am using that as an example) when you take that out its supposedly gone. Sorry for any spelling or grammer errors still have the shakes from my Entocourt today!

Hope that helps-