- Joined
- Jul 23, 2010
- Messages
- 3
help to find a surgeon or consultant
hello all.
i have been suffering from crohns for the last 10 years though was only diagnosed in 2006. my mum and my uncle (mums brother) also have crohns. though my uncle unfortunately passed away in september at the age of 44 from it. as i mentioned earlier a long time in being diagnosed but eventually we did. then i went through various medications and treatments, had aziathioprine, pentasa, prednisolone, infliximab, elimental diet etc etc. all of these with no lasting relief. the decision was then taken that i required surgery. my first operation was 27th april 2009 for a resection. this was performed but however 5 days later the join had fallen apart and an anastomotic leak was formed leading to peritonitis of the abdomen. i was then taken down for emergency surgery on 5th may 2006 where i was cleaned out and fitted with a temporary ileostomy. i eventually left hospital 17 days later weighing a mere 6 st. however i learned to live with the ileostomy and put the weight back on. then in septemberthe decision was taken to reverse the ileostomy. so on 14th sept 2009 i went in for the reversal. this all seemed to be well, but to make sure i was re-opened 2 days later to check the join was holding, which it was. i left hospital after 5 days. 2 weeks later i formed a fistuala out of the site of the old ileostomy. i was advised that this would heal on its own. however i could not keep the bowel content off the skin on my right side of my torsso. this resulted in what can only be described as a massive burn about 8 inches in diameter. this all with a little antibiotics all cleared up. however in may it was discovered that my surgeon had in fact "used the wrong stitches" to sew me up internally. he had been advising me for 6 months they were disolvable, until i made him check my medical notes where he realised they were not. therefore another operation in may 2010 to remove these stitches. another fistula has formed that i still have now. my surgeon would like to another resection to basically start all over again!! have lost all confidence in my surgeon therefore was wondering if anyone knew of a very good surgeon or consultant i could get referred to?
thanks for reading
marc
hello all.
i have been suffering from crohns for the last 10 years though was only diagnosed in 2006. my mum and my uncle (mums brother) also have crohns. though my uncle unfortunately passed away in september at the age of 44 from it. as i mentioned earlier a long time in being diagnosed but eventually we did. then i went through various medications and treatments, had aziathioprine, pentasa, prednisolone, infliximab, elimental diet etc etc. all of these with no lasting relief. the decision was then taken that i required surgery. my first operation was 27th april 2009 for a resection. this was performed but however 5 days later the join had fallen apart and an anastomotic leak was formed leading to peritonitis of the abdomen. i was then taken down for emergency surgery on 5th may 2006 where i was cleaned out and fitted with a temporary ileostomy. i eventually left hospital 17 days later weighing a mere 6 st. however i learned to live with the ileostomy and put the weight back on. then in septemberthe decision was taken to reverse the ileostomy. so on 14th sept 2009 i went in for the reversal. this all seemed to be well, but to make sure i was re-opened 2 days later to check the join was holding, which it was. i left hospital after 5 days. 2 weeks later i formed a fistuala out of the site of the old ileostomy. i was advised that this would heal on its own. however i could not keep the bowel content off the skin on my right side of my torsso. this resulted in what can only be described as a massive burn about 8 inches in diameter. this all with a little antibiotics all cleared up. however in may it was discovered that my surgeon had in fact "used the wrong stitches" to sew me up internally. he had been advising me for 6 months they were disolvable, until i made him check my medical notes where he realised they were not. therefore another operation in may 2010 to remove these stitches. another fistula has formed that i still have now. my surgeon would like to another resection to basically start all over again!! have lost all confidence in my surgeon therefore was wondering if anyone knew of a very good surgeon or consultant i could get referred to?
thanks for reading
marc
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