Hey everybody

[Boroukee07]

Hello everybody

I was diagnoised with CD in Sept 2010 after suffering for 3/4 years. I was too frightened to go to my GP as I was suffering with fatigue, rapid weight loss, no appetite, constant abdominal pain and mucus/bloody D. I was missing so much work that I knew I couldn't go on like this much longer so after much encouragement from my partner I went to my GP.

After much research I had kinda come to the conclusion of CD myself but also had the fear it may be something much more sinister. After months and months of tests and waiting for app's I was finally diagnosed, which was quiet emotional. It was bitter sweet, glad to finally know what it was but also aware how bad it can get and that it was for life.

It has been so difficult to come to terms with this and although I have a fantastic people in my life they still can't fully understand what I go through. The physical pain is one thing but the emotional pain can be very hard at times and I don't want to keep burdening them with my illness all the time.

I am now on my 2nd course of budesonide and will start azathioprine on Monday. My GI tells me that by the time I'm tapered off the budesonide in 3 months the Imuran will start to kick in, I am also on pentasa. I hope that these meds work for me and understand that it does take time to find the right meds for you, fingers crossed.

So that's me and I am so happy to have found this forum of experts. It is one thing to study a disease but I think the real expertise comes from people who suffer from the disease on a daily basis.

Look forward to sharing with you all

Maria

 

[Astra]

Hi Maria
and welcome

we're glad you found us too! lots of friends here for you.
That sounds like a good combo of meds you're on, fingers crossed now that they work, good luck with the Aza.
lotsa luv
Joan xxx

 

[Nancy Lee]

Hello Maria and welcome!

I understand how hard the emotional pain of Crohn's can be.
But take heart when I tell you that when they get your symptoms
under control and you head for a remission,
you are going to start feeling so much better!!

Let's hope that happens real soon!

Once again welcome!
Sending healing hugs your way~Nancy

 

[Boroukee07]

Hi Joan and Nancy

Thank you both for your kind words, it so great to have somewhere to speak with people who know what they are talking about! Hopefully once the aza kicks in I will be feeling better. Some days are a little harder than other and it's nice to vent!!

I look forward to 'venting' to you both in the future!

Take care
Maria

 

[sinead]

Hi Maria

It's good to see someone else from Ireland on this forum. Hope you begin to feel better soon and the meds start to work.

My crohns is sleeping at the moment, thank god and its great when the symptoms aren't taking over your life so hoping you will get to that stage soon.

Take care

Sinead

 

[Boroukee07]

Hi Sinead

Thank you for your reply. It is nice to see others from Ireland on this forum. Everybody seems to know somebody else that has an IBD.... except me!!! It's nice to be able to chat with others in similiar circumstances and from the same area's. I hope that your crohns stays asleep and hopefully mine will get there too.

Take care