Hi and new to the site and newly diagnosed

[kev1986]

hi and new to the site and newly diagnosed

hi all i am new here my name is kev i am 25 yrs old and have been told i have chrones disease , i thought it all came on so sudden but now we sit and think back there has been a lot of sighn over last few years leading up to this a lot of stomach pains which i was told were gastorenteritus , i think thats how its spelt , also been in hospital with quincy which is severe toncilitus , on sept 5th i took really ill one night and was passing blood and also vomiting blood he pain was so bad in my lower ab i passed out with the pain and couldnt stop sweating was taken to AE in ambulance and they ran several tests as they thought i might of had weals disease as i do a lot of pest control , after been in hospital 4 days they put camera up and the specialist then showed me all the inflimation , ulcers and quite bloody on my intestines which he then told me he was 100% chrones and took biopsy, i was discharged after 7 days in hospital but i have been sent home with tramadol, codene , buscopan and paracetamol , nothing to really help with the chrones just all pain killers and anti spasam, the pain does go sometimes for a few days but then back most evenings and do sometimes still pass blood and bring blood up from stomach my follow up is on the 13th oct to see specialist again to see what they are going to do but i think he was saying maybe start a course of steroids ,
is it common for the pains to come and go without starting any steroids etc
any help or info would be greatly appreciated as at the moment i am just reading as much as i can etc
many thanks
kev

 

[DougUte]

Welcom Kev! Sorry to hear about your Crohns. Yes, it is common for the pain to come and go without starting any Crohn's meds. That happened to me for years before I was diagnosed. I have had several trips to the Emergency Room, double over in pain, because of this horrible disease. When flaring, my pain is always worse in the evenings than it is in the mornings. I never did figure out why that happens.

I am so glad you have found this site. It is a great place to talk to people who really know what you are going through, because either they or their kids have been there.

 

[Crohn's 35]

:welcome: Kev! Wow you had the scary route! I have never been a bleeder, and I can't imagine that feeling. Alot of things go through your mind. Hopefully your flare will calm down and get you on something to help, there are many meds out there, you just have to find the one the works for you. Everyone is friendly here, great bunch to help you along the way. Glad you joined.

 

[Jennjenn]

Hi welcome

I am sorry to read you are going through all of this. Yes, the pain can come and go as it was mentioned above. Hopefully with the right meds you can gain remission. I wish you luck with healing and I am glad you found the forum!!

 

[kev1986]

hi and thankyou for the replysi have a wife to be and a beautiful little girl aged 4 and feel i have so much more life to live and from what people tell you they always says all the bad things and what you cant do etc so i have been very worried, also i have been left in the dark a lot by the hospital and am reading a lot of ther peoples diagnosis has helped a lot because when you mention it to people they only really seem to tell you all the bad things etc but from reading through this site there is a lot of people who live with it just fine and carry on life as normal as possible and dont have to be fitted with a bag etc or multiple ops every year ,
atb
kev

 

[David]

Hi Kev and welcome! Goodness, I'm so sorry you're having to go through all of this

Keep reading and educating yourself. Pay special attention to the Treatment and Diet Forum as I feel that there is a lot of experience and wisdom within those pages that can make your life much easier going forward.

We're here for you anytime buddy

 

[Liverpool FC]

Hope you're a bit better. I can't believe you were just sent home on pain killers!

Its important you focus on the positives - what you can eat, can do etc - because it could be very easy to listen to the bad experiences. I'll be honest - i thought having a bag would be the worst, most degrading thing that could possibly happen to me. I ended up with one with no time before hand to adjust to the thought - and it made me realise that i was 100% wrong!

It took a bit of getting used to i'll admit but you know what i coped with it and it was just a part of me! I did get it reversed later but i think it taught me a lesson that no matter what you come up against with this disease you can and will cope. Its certainly changed my views and made me stronger mentally i think.

Hope the pain settles and you get sorted out soon mate!

 

[kev1986]

cheers for the replys i am back on thursday at 3. 20 so will see what they have to say my gp said he is suprised they have not sent me away on steroids but he also said that they dont want to jump the gun etc and they wanted to wait for biopsy results etc , on my biopsy report it says that my intestines are very deluded and there is ischemic type damage which is related to some sort of heart disease but the gp said it is just a lack of blood supply to a certain area so could be just from the inflimation so have quite a few questions to ask specialist on thursday will let you know what happens

 

[Astra]

Good luck Kev, hope you get something sorted.
and a big welcome:welcome:

 

[kev1986]

well i took really ill on sunday night and after taking the pain killers i had it did not take away the pain so went back down to AE and was admitted and the took an x ray to see if there was any obvious signs of beeding as i am still passing blood daily now for over 5 weeks , the pains were in my lower abs again and constant spasams they put my on iv tramadol, buscopan and some fluids , then started me on prednisone 40mg only prob is its the foam and have to say its really horrible stuff , i still have apoitment to see specialist on thursday to see what direction we go in and what meds i am going to try etc,
i am getting quite worried about work etc as i have now been off work for over 6 weeks and am now on ssp , i am a graphite engineer and my work role is quite energetic and mentally exhaustive so am worried about returning to work as i am so low in energy and sometimes have to sleep during day as well as going to toilet several times a day and bleeding , i think i am going to have to talk with my employer and see if they can offer me some other role within my work , if not and its come to worse case can people with chrones were they are situation were the cant work etc claim disability allowance etc
many thanks
kev

 

[Astra]

Hiya Kev

I was off for nearly 6 months last year after complications etc
I felt like you, so lethargic, so sleepy, so ill, I never thought that I would ever get back to work.
I would ask your docs for oral Pred, it really is the dog's!
Once the Pred kicks in you will find your energy levels begin to rise, your inflammation reduce and you will feel immediately better.
But..... maybe not ready for work.
If you go onto the Crohns and Colitis UK site and type in Guide to Employers, you can download the info there for your bosses.
You are covered under the Disability Discrimination Act, now known as the Equality Act 2010, so do not attempt to go back to work too early, until you're ready. You can't get sacked cos you're ill, they'll be in serious trouble if they try!
Talk to your bosses, give them the info, stay off and......... REST!
Don't give up, and hang on in there Kev, I did it and now I'm back full time, this after the docs telling me I nearly died!
xxx

 

[kev1986]

thanks very much have printed it off and will take it with me when i take in new sick note