Hi everyone :)

[ChickensRule!!]

Hi, I was recently diagnosed with crohns disease have had extreme tummy pains and cramping, and also weight loss. Was recently put in the hospital for 2 weeks because I was feeling faint and couldn't keep any food down. Once in the hospital they found out that I was dangerously low in potassium and sodium. Then they started me on prednisone and some other long term med
Also I need to be on ensure for five weeks! I don't know if I can do it because I hate the taste and love to eat hard foods. Do you have any advice on how to cope with the next five weeks of liquid diet? Thank you for reading my story!

 

[Catherine]

Have you tried using a straw. We found two favours vanilla and chocolate.

 

[David]

Hi there and welcome! I'm so glad you joined

Many people struggle with enteral nutrition. It's too bad because it is one of the best treatment options there are if you can stick to it. Remission induction rates as high as prednisone without all the side effects. How amazing is that? Yet many end up on other treatments because they have trouble avoiding all the foods they love

We do have an enteral nutrition forum you may want to check out. Ask questions and read others threads and I bet you'll get most of the information you seek.

I wish you luck and hope to see you around!

 

[Angrybird]

Hello and :welcome: to the forum, definetly agree that sticking to the shakes can be tough but they can really help with calmng the tummy down. Perhaps there are different flavours you could try? Also do you have them cold or at room temperature, when I was on Modulen last year I found it helped to have it cold so it was more like a milkshake. Also ask if you can perhaps have a few jelly babies, this may help with the need to want to chew something?

Wishing you all the best and lots of luck.

AB
xx

 

[ChickensRule!!]

Thank you for all the great advice!! Me and my dad found out about flavors like creamsicle and wildberry, which are better than some of the others. It's not really drinking them that bothers me, just not getting to eat real tasty food. I can also have one cup of broth per day, so I guess it's better than nothing! Starting this Friday only four more weeks!

 

[Snack13]

ChickensRule,
I don’t have any great suggestions but I wanted to share with you my story is pretty similar which is surprising for this disease. In November is spent two weeks in the hospital and on a liquid diet for about three weeks and I eventual had to have a nutrition IV, TPN I think it was called. Then what felt like forever I began a low residue diet for a couple of months. I never thought I‘d enjoy cream soup and mashed potatoes so much. I believe it was late March I started a somewhat normal diet. I kept telling myself to take one day at a time.
Now I’m on daily meds, remicade every 8 weeks and iron infusion when my iron is low. All in all it’s better than what it was.
Good luck and hang in there!

 

[ChickensRule!!]

Thank you!! The gi nurses phoned earlier and now I can't have broth, so I can only have gum to get the taste out after, but if I have to do it then I should probably stick with it!