Hi from me

[Tompoole]

Hi
New member here , I was diagnoses with UC/Crohns in 2008
I have been pretending for a few years nothing was really wrong
But now have come to terms with it,
I have many questions and have already had a few answered
Just buy reading the forum.
I'm 42 and had AS since I was 21 always been very active until
I had my first attack of UC/Crohns, since then I have been made redundant
And now refuse to work for anyone else and have set up
A window cleaning round so that I have complete control of my
Working hours, Im no longer made to feel guilty every time I have
A hospital appointment. best thing I've ever done, I do worry about my future
Though.
I look forward to meeting and speaking with you all
Tom

 

[Dallies]

Welcome Tom, it's great to have you here xxxxx

 

[rottengut91]

Welcome aboard Tom. You'll find an abundance of support and info here to help you with your daily journey with UC/Crohn's. I know what you mean by trying to go about life as if you don't have these wonderful conditions. It all ends up catching up with doesn't it. I have also come to terms with the fact that I must alter my life to suit my current physical and mental needs. It's not always easy, but it can be done.
I'm glad you joined the forum. Hope to see you around.

 

[Dexky]

Welcome aboard Tom!!

 

[DustyKat]

Hi Tom and :welcome:

Good to see you here and great to know we have already been able to help you!

So are the docs still undecided as to whether you have UC or Crohns?

What meds are you on?

It's wonderful to hear that you have been able to get your life together and work around the inconvenience this disease brings to so many. Good for you. Good luck and welcome aboard!

Take care,
Dusty

 

[Tompoole]

Thank you for the warm welcome.
The Consultant has said UC but could be Crohns does this make
Sense, my meds are currentley. Mesalazine/pentasa,
Predfoam, for UC and diclofenac , codydramol and lanzoperazole
For the AS
Tom

 

[Pontius]

Hi Tom! It's nice to have a job that's pretty flexible with hours, huh? I know I would be in a much worse situation if my job didn't let me work from home every now and then.

 

[DustyKat]

The Consultant has said UC but could be Crohns does this make
Sense

It makes perfect sense and it is not uncommon when you only have large bowel involvement.

Dusty.

 

[Kelley]

Welcome, Tom

Thank you for sharing your story, Tom. I am new here also.

 

[Astra]

Hi Tom
and welcome fellow Brit

Glad you've found some answers already on here!
I'm not sure whether you should be taking diclofenic tho? I know it'll be helping the AS, but NSAIDS are a big no no for a Crohnie! Long term use of these can make you bleed inside, and irritate the guts. Have a word with your doc.
Glad you found us, lots of friends here for you, any questions, just fire away!
lotsa luv
Joan xxx

 

[Tompoole]

Hi Joan
The diclofenac dulls the pain so I can sleep, the consultant
Didn't seem to be too fussed, I will do some more research
And maybe try a different painkiller, have been told the arthritis
And colitis go hand in hand

 

[Astra]

Hi Tom

I take 25mg Amitriptyline for pains in head, neck and shoulder, it's brill! It knocks me out at bedtime, sleep like a baby!
At high doses this med is an anti depressant, at lower doses it works by blocking pain receptors, and it does work
Speak to your doc about it, but the diclofenic isn't going to help with your colitis in the long run
xxx

 

[Tompoole]

Thanks for that will ask at my next appointments in dec,
When you say sleep like a baby do you mean you wake up
Every four hours for food;-)

 

[Astra]

ha ha ha LMFAO @ you Tom!!

actually no, I'm sleeping right thro! First time in years! It's good stuff!