- Joined
- Oct 2, 2007
- Messages
- 11
hi, I'm Jana
Hi Everyone,
I am new to the forums, but I read them a lot when I need to feel like I'm not the only one with this crazy disease. I have had CD/UC since high school, and I am in my mid-thirties now. Up until this year, I have had little or no difficulties with my CD/UC, but have been having more trouble in the last 6 months or so. I have been on sulfasalazine for the entire time since I was diagnosed. Unlike many, I become constipated with my disease and have developed fissure problems. My husband and I have been trying to conceive for 4-5 years with no luck. Last summer I had a laproscopy to see what was going on in there, and since then, my life is one big flare. My doctor put me on a 5-day stint of Pred. to calm the inflammation (first time ever) and I've been following the SCD ever since. (my brother has severe CD and recommended the diet). I have never gotten used to coping with this condition, and it seems that when I get into a good groove, things go awry somehow. I guess if I knew what I did to cause the pain, fissure bleed, bloat, etc. I'd feel like I could control things better. I would like to know, how long do most people's flares last? I do not want to go on Pred. because my brother was on it for too long, and has been completely debilitated by his disease...I can't let that happen to me...besides, we all know that the use of corticosteroids are fraught with horrible side effects.
By the way, the SCD seems to be working for me (except for the occasional flare), I haven't been constipated once since I started it, and have lost a bit of water weight. I do miss bread though.....sigh......
Jana McG
Hi Everyone,
I am new to the forums, but I read them a lot when I need to feel like I'm not the only one with this crazy disease. I have had CD/UC since high school, and I am in my mid-thirties now. Up until this year, I have had little or no difficulties with my CD/UC, but have been having more trouble in the last 6 months or so. I have been on sulfasalazine for the entire time since I was diagnosed. Unlike many, I become constipated with my disease and have developed fissure problems. My husband and I have been trying to conceive for 4-5 years with no luck. Last summer I had a laproscopy to see what was going on in there, and since then, my life is one big flare. My doctor put me on a 5-day stint of Pred. to calm the inflammation (first time ever) and I've been following the SCD ever since. (my brother has severe CD and recommended the diet). I have never gotten used to coping with this condition, and it seems that when I get into a good groove, things go awry somehow. I guess if I knew what I did to cause the pain, fissure bleed, bloat, etc. I'd feel like I could control things better. I would like to know, how long do most people's flares last? I do not want to go on Pred. because my brother was on it for too long, and has been completely debilitated by his disease...I can't let that happen to me...besides, we all know that the use of corticosteroids are fraught with horrible side effects.
By the way, the SCD seems to be working for me (except for the occasional flare), I haven't been constipated once since I started it, and have lost a bit of water weight. I do miss bread though.....sigh......
Jana McG
