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Crohn's Disease Forum

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Joined
Oct 13, 2012
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Hi, I'm 19 and i've had crohn's for almost 2 years now. I've been looking for a place to openly discuss my experience so far along with others experiences. :)
To be honest, having this disease has taught me alot. I grew up thinking I was incincible and nothing could ever hurt me, and look at me now! Constantly having to watch what I eat and drink, losing a bunch of weight, then gaining it back. It has ruined a lot of experiences for me already. right before prom, I gained almost 30 pounds, and my dress didnt fit anymore :( I can't drink, it's ruined the most part of my teenage years. I feel like i'm forced to grow up when i'm not yet ready... For the first 6 months since i was diagnosed, it was weird, watching what i ate, to see what i reacted differently to, but, pain wise, it was pretty good, I didn't get much pain. Then out of nowhere, I started getting horribly sharp pains, my back started hurting. This happened everyday multiple times, for about 8 months! It was a terrible experience.. Now, it's not that bad. I know what I can and cannot eat. I know what to do if it gets worse.
I was just curious about other's story's. Similar or differernt. I've never had a chance to talk to anyone who actually understands what i'm going through :)
 
Hi there and welcome! If you've been looking for a place to openly discuss your experiences, you've definitely found the right place. We're here for that 24/7 :)

What medications are you on?

All my best to you.
 
I'm taking a pill called Novo 5 ASA everyday, and I have pretnisone for when it gets worse. They also gave me Demerol for when I'm in alot of Pain but I try not to use those ones :)
 
Hello and welcome to the forum :)

Just to confirm do you still get these episodes of pain whilst on your current med and if so how often does this occur and you have to go on the pred? How often do you see you doc and when was the last time any type of test - even blood test - done to check on disease activity?

AB
xx
 

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