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Hi y'all! My name is Rachel (Rae) and I just want to start off by saying I DON'T have crohn's but my eight year old sister does and my dad has UC. Anyways, this is my story (techincally my sister's, but whatever).
Last summer my little sister Caroline began to get really sick. She would run low grade fevers and would complain of aches and pains and eventually began to have diarrhea. This worried my mother, but she figured it was the flu. After about a month of these symptoms, my parents really began to worry and finally took my sister to the doctor. She was tested for the flu, mono, and a parasite and all came out negative. Caroline's pediatrician insisted it was her diet and recommended changing it up a little, but other than that she was healthy. My parents weren't convinced but figured if something serious was going on, the doctor surely would have known. But about a week after the first doctor's visit, my sister ran a fever of 107. My mother almost had a stroke. After giving Caroline an ice bath and monitoring her temp the rest of the night, they took my sister to the ER. Caroline spent 5 days in the hospital and had tests run everyday. The doctors in the children's ward tested her for everything from Lupus to meningitis. On the last day of her hospital stay, a gastroenterologist ran a colonoscopy and endoscopy and found ulcers in her large intestine. I remember looking at my father and seeing him cry for the first time. It broke my heart, and I began to sob. They placed my sister on Pentasa and steroids and sent us on our way. It's been a year exactly since she was diagnosed and has done fairly well on her medication. She's experiencing a flare up at the moment, but she tries not to let it bother her. I honestly think it's harder on my parents and I than it is on her.
I hope this wasn't too wordy, but I've been meaning to get this off my chest for a long time.
-rae
 
Hey Rae, you sound like you're a pretty great sister to be so involved in your sister's illness! It's tough for everyone, isn't it?: for your sister to deal with flares and being sick, for you to be strong for your sister and your parents, and its very hard for a mom or dad to see their children hurt in any way but it's sounds like you are all lucky to have one another!:ghug:

I hope your sister starts to feel better really quickly. Hopefully, her current flare will be shortlived and her medication will have her feeling better very soon!

There's lots of people on this forum who are very knowledgeable about Crohn's and I'm sure can help answer any questions you have... I don't know how to include the link but there's also a Teen Group on this site where you might also get ideas as to how you can help your sister and how to deal with your own feelings about your sister's illness!

Take care!
 
Oh Rae, what a wonderful sister you are! I can tell it is hitting you hard. But it sounds like your sister is a fighter. And it is wonderful news she is responding well to treatment. Just continue to be there for Caroline when she isn't well; the most important thing is to provide her with a strong support system.

Thanks for sharing!
 

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