High b12 anyone?

[Snomir]

I got my b12, folic acid, cbc and calprotectin results a couple of weeks ago,but was so busy so I could not go to my gastro doc. So, my sed rate is 3 (range 4-20), my b12 is 629 (range 100-638), my folic acid is 700 (range 150-703) and my calprotectin is <30. My question is, is it possible to have a CD in your terminal ileum and have high b12 results? I was diagnosed with CD 6 months ago. I have had nausea with clear gastroscopy and was advised to get a colonoscopy. Note that my cbc and calprotectin test was normal at the time I was diagnosed.

 

[SarahD]

Yep, entirely possible to have terminal ileum involvement and a normal-high B12. I have TI involvement and even mid-flare my B12 tested at the high end of normal.

 

[Snomir]

Thank you for responding! What about calprotectin? Did it ever occur normal during a flare? I just hope that I do not have a disease after all...

 

[nogutsnoglory]

You can have disease and still absorb. High b12 is not anything to worry about usually, it's a water soluble vitamin so most of it gets peed out.

 

[SarahD]

It is possible to have active IBD and have a normal Calprotectin result, but not likely. No test is perfect and there is always the possibility of false positives and false negatives. If you have IBD that's in remission you can also get a normal Calprotectin result.

 

[anmonk]

Yes it's definetly possible to have normal b12 counts with CD in the terminal ileum. As a matter of fact, i got my terminal ileum removed but manage to have good b12 counts. i guess it's because i take vitamin b12 shots and folic acid supplements.

 

[nogutsnoglory]

Yes it's definetly possible to have normal b12 counts with CD in the terminal ileum. As a matter of fact, i got my terminal ileum removed but manage to have good b12 counts. i guess it's because i take vitamin b12 shots and folic acid supplements.

Yes because you are getting b12 into your blood stream like me. Pills don't work for me because of resections but shots do.

 

[Snomir]

Yes, I suppose that is because you have your b12 injected. I think that b12 gets absorbed in TI only.
I was tested for calprotectin two days after they have found a couple of small ulcers in my TI. The test came out clear (<30). So I suppose I was in a flare. They have put me on Pentasa 500 mg 2 x daily until the biopsy was done. The biopsy came out inconclusive (they have told me that it was normal for an early IBD). I felt better after 2 days taking Pentasa but my doc has decided to put me on Entcort for next 3 months. I felt no diffrence with it because I was already better with Pentasa.
The reason I got my colonoscopy because I would occasionaly get nausea after eating and a weird pain under my right rib. This nausea would last for a couple of months or so, and then it would dissapear on its own. Sometimes I would lose weight for couple of months without nausea or any other symptoms, sometimes I would get low grade fevers that would last for couple of months fro no reason. This was my 3rd bout of nausea in last 9 years. This time I also developed night sweats, especially before my periods. My gastroscopy and gallbladder ultrasound were always clear. For the last 9 years I have also had constant mushy stools (once daily), so I was so surprised when it turned into solid one after taking Pentasa for only 2 days. And night sweats have disappeared too. It is al so weird...
My gastro doc thinks that I have a low activity Crohns because endoscopic findings. He has told me to consider myself lucky, because I have probably had Crohns for the last 9 years without even knowing. But I went to No1 gastro in my country to get a 2nd opinion. He told me that it could be Crohns, but basically he has no idea what is wrong with me. He has advised me to get a bunch of blood work and to swallow an endoscopic capsule to determine if I have an IBD or not. I guess I would just need to do what has to be done to see what is wrong with me...