Hi Everyone. I've been reading on this forum for quite some time as I wait on doctors and test results for my daughter, Cady. I figured it was time to introduce myself and share our story so far.
In October of last year Cady, who is now 16, started complaining of abdominal pain that would wake her during the night. Sometimes, she would ask to stay home from school due to lack of sleep the night before. She would say she just didn't feel well and hadn't slept. I admit I thought she was going through typical teenager stuff and was looking for excuses to stay home, bad me!
By the end of November the complaints were still coming so I took her to her pediatrician. Her only symptom being right lower abdominal pain, the doctor ordered blood work and stool samples. Two days before Christmas her pediatrician called me to tell me Cady had a raised sed rate (47) and was referring her to a pediatric GI.
Early January we saw the GI and he was very thorough. Cady and I both felt very comfortable with him, he spent over an hour just talking to us before he did any examination. His concerns are the fact that the pain is actually waking her during the night, and that it's right lower quadrant. He ordered more labs, more stool samples, full abdominal and pelvic ultrasound, and finally an MRE to rule out Crohn's.
So far labs and ultrasound are good, her sed rate is in normal limits again. But now Cady has started to experience nausea in addition to the pain, but no other symptoms. At times she won't eat for an entire day or more. The insurance company refused to authorize the MRE.
Today the doctor's office called me to let me know her last stool test did come back positive for blood. The nurse made me an appointment with the doctor for Wed. and said that he will probably want to schedule a colonoscopy at that time.
From reading the forums I see that mouth ulcers can be a symptom of Crohn's as well as eye pain. Cady has recently (about 10 days ago) developed a large ulcer in her mouth that is still not healing. She has also consistently complained that her eyes burn randomly, not sure if either of these could be related but we will mention them to the doctor on Wed.
Anyway, just looking for some advice on what other things I may want to ask her doctor on Wed.? I really think or should I say hope that we will get more answers after a colonoscopy has been done. Should I push my insurance company to approve the MRE? Especially now that we know she has blood in her stool?
Long post, but thanks ahead to those who take the time to read and share any input.
In October of last year Cady, who is now 16, started complaining of abdominal pain that would wake her during the night. Sometimes, she would ask to stay home from school due to lack of sleep the night before. She would say she just didn't feel well and hadn't slept. I admit I thought she was going through typical teenager stuff and was looking for excuses to stay home, bad me!
By the end of November the complaints were still coming so I took her to her pediatrician. Her only symptom being right lower abdominal pain, the doctor ordered blood work and stool samples. Two days before Christmas her pediatrician called me to tell me Cady had a raised sed rate (47) and was referring her to a pediatric GI.
Early January we saw the GI and he was very thorough. Cady and I both felt very comfortable with him, he spent over an hour just talking to us before he did any examination. His concerns are the fact that the pain is actually waking her during the night, and that it's right lower quadrant. He ordered more labs, more stool samples, full abdominal and pelvic ultrasound, and finally an MRE to rule out Crohn's.
So far labs and ultrasound are good, her sed rate is in normal limits again. But now Cady has started to experience nausea in addition to the pain, but no other symptoms. At times she won't eat for an entire day or more. The insurance company refused to authorize the MRE.
Today the doctor's office called me to let me know her last stool test did come back positive for blood. The nurse made me an appointment with the doctor for Wed. and said that he will probably want to schedule a colonoscopy at that time.
From reading the forums I see that mouth ulcers can be a symptom of Crohn's as well as eye pain. Cady has recently (about 10 days ago) developed a large ulcer in her mouth that is still not healing. She has also consistently complained that her eyes burn randomly, not sure if either of these could be related but we will mention them to the doctor on Wed.
Anyway, just looking for some advice on what other things I may want to ask her doctor on Wed.? I really think or should I say hope that we will get more answers after a colonoscopy has been done. Should I push my insurance company to approve the MRE? Especially now that we know she has blood in her stool?
Long post, but thanks ahead to those who take the time to read and share any input.
