How do you deal with the uncertainty of Crohns?

[Sassycat]

Hi all,

It has been awhile since I've been on here, but I figured I would pop back in.

Anyway, here's what has been going on-

I have been in a beautiful remission maintained by remicade for almost 2 years now. A few months ago some of my symptoms started to return a little (urgency, soft stool ect.) I still feel great, but it is a level down from the remission I was in before. Of course, I have always been very in tune with my body, and crohn's has only exasperated that ability, so I am never really sure whether I am the same as or worse than before.

Anyway, I went to the GI a few weeks ago for my annual check up and told him about my experience of being at a "lower level of remission". Immediately he ordered some labs and a CT. Just got the results back today and they indicated no active disease. Yay, right?

Well for some reason I am not as happy about this as I should be. I mean, I am thrilled that I am healthy, but why I am not relieved?

So I've been doing some thinking and I realized that, outside of the horrible flare symptoms, one of the worst aspects of crohn's is the uncertainty. It is hard to know that, even though I feel well now, things could get much worse. I don't know what this disease will be like in 2, 10, or 30 years, and since it varies so much from person to person, nobody can tell me that. Being only 22 I don't have enough experience with myself or crohns to reassure myself that my life won't change dramatically just as I am trying to plan my future career, future family, future travels...

So... my question for all you more experienced, wise Crohnies is- How do you deal with the uncertainty of your disease?

 

[nogutsnoglory]

It's not just crohnies hat face an uncertain future. Everyone on this planet has no clue what's in store for them. The healthiest person may be struck by a bus or a devastating disease tomorrow. We gotta live one day at a time.

 

[Lisa]

I take it one day at a time, knowing htat while I may be in remission now, the future doesn't tell me what is coming...it may be having a flare, getting in a car accident (almost got wrecked this morning by a moron on my way to work).....falling off my horse, getting the flu etc.....

When life decides to throw me a curve ball, I just hope to be as ready as I can be for it - and I don't plan my life around the 'what if'...rather do what I want and make adjustments along the way if needed....

 

[Danico85]

i take it 1 stool at a time

 

[DavidXU]

Life is like a box of chocolates, you never know what you're gonna get...

 

[Axelfl3333]

Healthy people have spells where they feel under the weather for a while ignore it and enjoy life.