Since I last came on a lot has been happening some good and some not so good.I have been still picking up some good advice from you guys.Thank you.Well where am I now with this hatefull thing they call crohns.I asked advice from you about the anti depressants and I started taking them in October.I have to say they are helping me cope better,the constant diorrhea is my main problem but now I feel much calmer and can deal with it without being constantly in tears.I still hate it but I am coping and I am closely monitored by my GP who have been great.I had the colonoscopy in November which showed that I have 7 ulcers where I had the resection in March2009 and also this diverticolitis,hope spelling is correct,the ulcers are also infected which apart from being very painful caused loads of bleeding etc etc.I was put on pred straight away 8 for 4 days then 7 down to 1.After about a week I got the energy bursts and I was like a mad woman,anything that did'nt move was cleaned including hubby lol.I felt so much better and the I came down to earth with a big bang.Everything hurt,sweats all the things that go with this drug.It all calmed down then until I got to one and everything came back with a passion and my GP put me straight back to 8 I am now down to 3 for 7 days and things are pretty good at the moment.The main thing is I feel well.I have been to the hospital and my consultant has also put me on Azathioprine 25mg and if all the tests are clear he will up the dose to what I don't know a yet.He explained all the pit falls with these drugs but I feel I have to get some sort of quality of life again and I can't worry about what may or may not happen in the future.I don't know if that is me or the anti deppresants talking but I'm feeling pretty good at the moment.I have reached some very very low points which you have got this will know.I am able to eat a little bit of a more varied diet.Still dairy free and mainly fat free but I have discovered a very lean bacon bagel bliss.I read what a lot of you can eat an I was so envious.I am grateful for the small things in life.I hope this feeling continues for a while yet cause I like it.I am due at the hospital on Friday for more blood tests and then I see consultant for more blood tests the following week.The diorrhea is the best its been for three years plus and I have even been shopping.Could'nt spend any money cause could'nt find anything I liked but will remedy that next time.It feels good not to moan for a change because at one time I really did feel like my life was over.I think the best advice is take everything thats offered if it be pills counseling or whatever because somewhere something will help so don't give up like I started to.Thanks guys I wish you all well.
How things are now
- Thread starter clearwell
- Start date
Help Support Crohn's Disease Forum:
- Joined
- Dec 31, 2010
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I had to laugh cos we seem to have a lot in common! I'm still experimenting with food to see what I can tolerate and bacon bagels are my new favourite snack - sometimes with an egg.
Sounds like you've been in the wars but I'm glad you're feeling a bit better. The big D is bad enough without uti on top. This forum is a godsend, really. X
Sounds like you've been in the wars but I'm glad you're feeling a bit better. The big D is bad enough without uti on top. This forum is a godsend, really. X
I love the name Grumbletum that made me titter.I cant eat eggs so will give that a miss two things I loved in the world was whispa bars and sausages.I hid a whispa bar over Christmas and sneaked off to eat it the other night,my mouth was watering and I took a little nibble and it tasted flipping horrible.I did'nt give up I had another nibble,it was still disgusting so I gave it to hubby,I was gutted.No more Whispa bars for me.My diet has been pretty much boiled rice for a couple of years with the odd chip thrown in so my bacon bagel is bliss and I eat it very slow...Geri x
Hi Astra,thanks glad you like bacon bagels too.ha ha.I do feel really well at the moment a few blips here and there but on the whole great.I was pretty despondent when I joined this lovely group and picked up some very good tips on how to deal with docs and what questions to ask and now we are really getting somewhere with meds etc and they are listening to me.I did'nt have the courage to question anything and I really did'nt feel I wanted to live the rest of my life like this cause it was controlling me and not me controlling it now I am in control I think.Everybody who has got this hateful thing hang in there,moan when you have to,cause we all listen,cry for you and support you any which way.Thank you stay well,Geri x
