i actually just posted it. haha. umm yeah... i did. i know that's "bad" but i can't tell you how bad i felt. like, ok. so the day of my colonsocpy he ordered me entecort and asacol. well, those worked well enough when i was on both together and from what i've read on the ccfa cite from people (tho i like this one better b/c it seems almost like if it's not clever or a "major" thing, people don't want to answer you) a lot of people were on entecort with their maintanence med for a few months, not just 6 weeks weeks then were ok or realized they need something else. my doc, however, went straight from asacol to humeria. didn't bother to try my on a few more months of steroids w/meds or try lialda or imuran. b/c from what i've read, people that take imuran are the people that can't be on the ther meds w/o steroids (which is why i'm guessing he put me on the humira) but why in the hell would i want to feel that sick! i mean really! i feel sick enough! i have enough people that think i'm anorexic and crap. ugh. frustration. i think when i wrote about that earlier i may have said all of that, if not, well now it'sthere. haha.
it's not even that it's that severe really. my symptoms are pretty awful, which are exacerbated by the fact that i'm as small as i am. the colonoscopy showed "mild crohn's of the small intestine" i've never noticed blood except for today aver i wipped it looked like there was a little bit of watered down blood and like there may have been a little strange looking clot in the toilet... just what i need to start happening! it's mainly the pain, fatigue, and CONSTANTLY feeling like i have to go, even if i haven't gone in a few days. so really, i don't understand why he went from 0-60 that fast! the insurance company ok's just about everything fro me (bc/bs) but you would think they would want us to exhaust all options. that's really awful that you had to wait soo long. i would hit the bottle! haha. no. i'm kidding. it makes me feel too sick when i have even 1 margarita.
i kno right, my mom is pretty awesome. i feel bad for her tho becuase it's like my grandma thinks that she knows soooo much more just b/c she was a nurse and that my mom doesn't do enough and all of this. mind you, she is my maternal grandmother! and it's like she thinks that i need to just say "no, you're admitting me" and the drs with so "a hahuh goarsh. well ooook" haha. like really. i mean come on. they aren't going to admit someone to the hopital just because they're skinny with crohn's. they need to be on deaths door. she tells me i am, but i've seen people skinnier. you kno? i could get more germs and end up sicker if i don't have to be there. either way. i'm 21. my grandmother is not my mother. and i am not a child. it is no business of hers to call her dr and tell them all of my blood test results! ugh!
i don't live too far outside of washington. you would think there would be a lot of fantastic doctors around me... there are not. even in bethesda. i did find one tho that is an IBD specialist. i'mgoing to see if he can take me on. i desperately need it. i haven't considered unc. it's pretty far and we have hopkins an 90-120 mins away. i haven't gone there either tho b/c i would have to leave my house at 5 or 6 to get there by 9 then if i leave at 4, i may not get home til 9 930 b/c traffic is soo so bad. she probably would go the the conference tho but i kind of need her with me. lame, i kno. but i'm not the best cook and won't cook if i feel terrible and my step dad can only make hamburgers and steaks but he can't really grill to save his life, so i think i would starve. haha is it always in september? i would totaly check into that for next year.
it's cool. you may dominate my posts all you want.
and i'm trying to feel better. i got a multi vitamin! bring on the health!
