Hi Folks. My daughter Leah is 14 and is constantly eating. She could have a good dinner and then be looking for more food half hour later. The doctors say its nothing to worry about, but my gut reaction is different. I know that lack of absorption of food is one of the cornerstones of Crohns, but surely the amount of food that she's ingesting has to have some effect on her insides ?!? I'm a Personal Wellness Coach and a Herbalife Nutritionist, so I KNOW that she is getting good food into her. We are in Ireland, where the facilities and services for Crohns/IBD/UC sufferers is not as good as it should be, but we're working on that. I don't recognize a lot of the medication that is mentioned in the above threads. Leah is on Salofalk Sachets, (which are easier for her to take as she cant swallow a tablet whole), 6MP (Puri-N-Ethol) to stop the production of white blood cells, Vitamin D drops and an Iron Supplement. Compared to many others girls her age (and younger) that we have met through the whole diagnosis, Leah knows how lucky she is. She hasnt had MAJOR surgery, and most of the time we seem to be on top of this. However, there are times where I want to scream with frustration. She got diagnosed when she was 10, and by the age of 12, she had 7 teeth fillings, due to the severe amount of acid that was coming up from her insides. As I write, we are only home from a Dental Hospital, who after cancelling on us 3 times, decided NOT to take out the 3 teeth that she desperately needs extracting as she is in too much pain. A 5 hour round trip completely wasted,as they did not know enough about the disease to gauge her reaction to the general anaesthetic. Is anyone else having trouble with their teeth...? As regards food, I took Leah completely off white bread/pasta/rice and also "normal" milk, and she improved a lot. Research shows that an awful lot of people cannot handle the ingredients in milk, especially the Lactose. I could keep going on and on about how this condition has turned her life upside down....
Wishing all you sufferers the very best !