I can't think of a title - lol

[laurenjonesnow]

Hi there,

I was diagnosed with Crohns nearly 3 years ago and until a few months ago didn't really take it seriously or consider myself sick!! I recently tried to register as a bone marrow donor and I was deferred as it would apparently be harmful to me. I was shocked! "I thought, but I just have crohns!!"

I have had 2 major flare ups, 1 landed me in hospital, the other just flat on my back for a few days. I am learning to cope with crohns and its issues (espcially learning to shop in malls with plenty of toilets!!!) and I am trying to change my diet to live with crohns somewhat easier but i am very set in my ways.

I got bronchitis and after a few other remedies started a course of anti biotics which I am not happy to say leaves me feeling worse than I did before as the crohns has kicked off and i spend a good part of everyday in the toilet. oo:

I am overweight which I hear is "lucky" and I jokingly told my doctor just my luck I don't get the thin part of the disease!! I know it is no laughing matter and I know I need to change my diet and approach to things and I have found a huge support in reading stories on this forum as suddenly I don't feel like a complete drama queen cos somedays I can't get out of bed!!

I will continue to read posts and learn as much as I can to face this crohns monster!!

Thank you all for sharing your stories!!!:rosette2:

 

[Goldfish]

HI LaurenJonesnow. It's weird remembering that you have an illness when you are feeling good and I feel as though I should be able to do anything and at the moment am lucky enough (in a way) to be that naive as I am in a good place at present. Seems that we need to keep this crohns forever in the back of our minds though. Sorry you are having a rough time at the moment and i hope that you can change your diet as you would like and make changes that are not too annoying for you. It is difficult and now that I should be eating well all I want is ice cream knowing that it could start things off again! I hope you feel well again soon and glad you found this forum. It certainly helps me and opens my eyes a bit which is a good thing. :welcome:

 

[MDCA]

Welcome! I'm also new here and have found comfort in reading others posts. I'm newly diagnosed and meet my specialist on the 31st so I'm still very new and trying to find my footing. Good luck!

 

[laurenjonesnow]

Thanks guys.
MDCA good luck at the specialist.

I hear you on the ice cream... sometimes I think its worth the risk just to regret it almost instantly!

My medication is

Salazopyrin - En 2tabs 3 x a day
Prednisone (During flare ups)
Modulin (During flare ups)

 

[Goldfish]

I hear you on the ice cream... sometimes I think its worth the risk just to regret it almost instantly!

Ha ha totally!

 

[scottmyster]

HI lauren, welcome to the forum you will feel a great wealth of knowledge here and a great family of people here as well.so if you have any fears or just want to ask qestions you are quite welcomed. i have had crohn's for 21 years now and still working things out like dieting and mecations. i hope you will feel right at home here. You will get alot of feed back. all the people here are great and a great world of knowledge. so. again welcome.:rosette2:
best wishes.

scott

 

[chrisnsteph1022]

Welcome! I don't get the weight loss aspect of the disease, either. If I'm going to suffer in other ways, it would be nice to lose some weight. I have about 20 pounds I want to lose.