I didn't think I had a future until I went ahead with surgery!

[kerri87]

hi there...i was diagnosed nearly 2 years ago and had nothing but problems,i was first put on budesonide which i couldnt tolerate,then prendisolone which helped me a little but not enough,still had incredible pains to which i would fall down to my knees and be on the toilet 8+ times a day! which you all will understand... this started to affect my social life,confidence and general day to day life. i then became very depressed completely shut myself away from family and friends,didnt want to wake up every morning to this sad lonely suicidal feeling! my doctor suggested surgery,at first i was very scared but was advised it was best option so i went ahead with it and had 58cm of it removed,i was in hospital for 7 days and it was extremely hard to cope with everything that was happening but was relieved to know that it had gone! it has now been just over 10 weeks since my op and i feel great well considering how i was. i just have a few concerns as i still have diarrhea 4-5 times a day with that awful smell :stinks: and am trying my best to stay off the cigarettes as i think this will bring it back again??? I have also heard that marijuana helps with crohn's but i dont no whether its without nicotine in it??? sorry for the essay I could talk for hours about this horrible disease!!!!!! I HATE IT I HATE IT I HATE IT..........................

 

[Rebecca85]

Glad to hear you're feeling better! Diarrhoea is common after a resection, because your remaining gut has to adapt to make up for the missing part. Have they put you on a maintenence med? This might be a good idea to lower the risk of the Crohn's returning. Stopping smoking can also help to cut your risk- I know how hard it is as I am also battling that particular demon! As for marijuana, we have a separate password protected sub forum for discussions about that- send a message to dingbat if you need the password for it!

 

[mario]

Hi Kerri
Pleased to hear you are so much better. There are plenty of meds to help with diarrhoea. Ask your doctor to prescribe whichever he thinks would suit you best.

 

[Astra]

Hi Kerri
and welcome

So glad you're feeling better after surgery. I've not had any Crohn's surgery, so can't help with that, but someone will come along who has, to answer your questions.
lotsa luv
Joan xxx

 

[mario]

OOOH my email just alerted me to this and i noticed that i assumed your doctor was a male person! Forgive me all you wonderful female doctors! So Sorry!!!!!

 

[kskitt]

Sounds strange (and a bit gross), but what colour is the diarea? I ask this because when i had surgery, i still have the D, but in fact it was bile acid. Have you had your Ilium removed?

Really glad tht you are feeling better, and i hope that this improves every day