I don't have a story yet.

Crohn's Disease Forum

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Joined
Sep 5, 2014
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Although I have had many of the symptoms for years and I believe a recent flare up I have no diagnosis as of yet, so I guess until then I don’t' really have story. I have been reading and researching hoping to be prepared for the worst case scenario but kind of wish I hadn't now. Hoping better days are coming for all touched by these horrible diseases.
 
Hi and welcome.

Unfortunately we have a lot of people here who are undiagnosed.
 
Greetings and welcome to the community.

What symptoms have you been experiencing and what tests have you had done thus far?

I wish you all the best.
 
Symptoms mostly bloating, cramps, pain, gas, constipation. Also insomnia, tired, faint, etc.

About 12 years ago I did see a gastroenterologist and did a colonoscopy and a gastroscopy found only ulcers in stomach. I was scheduled for upper GI but it never happened. I was much younger and I guess I felt better enough...didn't have time...whatever.

I have more tests scheduled this week including ultrasound, colonoscopy and a gastroscopy. I had blood and chest x-ray done last week. Blood was ok other then high sugar so we are going to test again including celiac.

I had been on a mostly liquid diet for a couple weeks, after seeing the doctor and him suggesting we test for celiac I decided to switch to gluten free. I have been feeling much better with the exception of a attack/flare that lasted about 24hrs as wasn't nearly as bad a past episodes.

I'll keep this post updated though just in case anyone with similar symptoms/issues finds it, maybe switching to gluten free might help them too.
 
You do need to be eating gluten at the time of tests for cealiac i'm afraid, otherwise the test results may produce a false negative.

We do have lots of undiagnosed people, I am one of them, our support group is here if you feel like stopping by.
 
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