I dont want this anymore

[GirlFriday]

I'm apologising in advance - I know this thread is rather redundant and useless but I have been battling crohns for 2 years now and I just have to say:
I don't want this anymore! I don't want crohns, I don't want to be sick, I don't want to keep being scared that my Husband will be tired of being married to a 'sick girl' and leave me, I don't want to miss stuff because I feel too sick and weak to leave the house and I DONT want to be laying in bed right now feeling terrible with a worsening pain in my lower left side.
Sorry - I know this is bad for my second post, but I just had to say (type?) that stuff and get it out.

 

[mRae85]

I feel your pain *hugz*

I have only been diagnosed for a year and suffered for 8 before that. I have a bad feeling I will be posting a very long thread here after my Dr appt today, for now I am just waiting for the appt. We all need to get it out somehow. If we keep it in that will only make us feel worse

Alot of people here have been fighting this fight for so long it almost gives you a since of hopelessness at times, but I asure you that with each day more and more options come out for us. I take it you are one , like me, that suffer from really bad pain. It always seems to get alot worse for me when I lay down. Start looking around here for some other treatment options, look them all up online and take notes, then print them out and talk them over with your Dr next time you see him / her. That is what I have been doing. Sometimes that helps the frustration. When it is on my mind, I might as well use it to my advantage right ?

I gotta say, for the most part though, your thoughts just took all the words out of my mouth, my most used phrase anymore is "I'm just SICK of being SICK" ! :ymad: For the most part, I am online almost every waking moment working, researching, and doing numerious other things. Since finding this place, I have this page up 90% of the time, if for nothing else then just to remind myself I have somewhere to go with all my questions and frustrations. I really hope you get to feeling a bit better emotional soon I know how hard it is to come to grips with everything and I feel your fears as well. If you ever need someone to talk to, feel free to message me on here (if you didnt know , just click the user name and there is a drop down menu with options ) I will usually reply fast since the page is always up and I tend to refresh it or skim through different stuff on here.

 

[D Bergy]

I did not like the prospect of being sick either. I absolutely hate sickness in myself. I have far too many things going on to be sick. My wife needs me to help her with treatments for her disease.

So I decided to not quit fighting this until I was 100% back to normal. Now I am actually in better shape than I was when I got sick. Not everyone is going to have that result, but you can get much better. You need to find the treatment that works for you in particular. Do not stick with an ineffective treatment for a long time. Go to the next one until something works.

You can get better, but it can take a while. Don't give up, but do make a plan of action and execute the plan.

Dan

 

[Jeff D.]

GirlFriday welcome to the forum although I'm sorry you had to join. I'm 19 and have been battling this disease for 6 years. You can vent on here whenever you want. That's what is great about this forum. I'll keep you in my prayers. I hope things get better for you soon.

Jeff

 

[Guest]

welcome to the forum Girlfriday, and yep - feel free to vent as much as you need. we all do it, and if it helps even a bit, it's worth letting out, especially to those who understand.

and i certainly am one who understands where you're coming from. i've always hated being the ill one in the family, the one who spoilt family parties, social events etc because i was in pain & had to opt out, or go lie down, or ask someone to drive me home.... i hate the look on my kids' faces when they can't do something they've been looking forward to because "mum's not well"...

sigh... Crohn's does not just affect our intestines, nor just ourselves.. it affects everyone around us who cares about us.

i hope things get better for you soon.. keep your chin up, and enjoy the good days when they come.

 

[GirlFriday]

Thank you so much for all of your replies, it is so nice to hear from people who understand what this damn disease is like. You know I have been reading all these posts, and compared to some of you who seem to be suffering so badly at times, I know I don't have anything to complain about. I haven't had any surgeries (unless a colonoscopy/endoscopy counts) and my disease is classed as mild/moderate. Still though, running to the bathroom, joint pain, fever and being unable to go out and live my life at times just gets depressing. So kudos to all of you who's courage and good humour in the face of all your going through - I really admire you.

 

[mRae85]

We are always here for you. I have been wondering if we were going to see you again. Glad to know that you are feeling better, a positive attitude keeps us all going. We all go through alot, even when it is mild / moderate, it still takes a toll on you and it can still take a serious toll on your life and the way you would "normally" enjoy living it. Keep us posted on what is going on, one thing I learned right away is that you never have to be shy around here haha

 

[ChefShazzy]

Group hug everyone.

**squeeze**... (just watch the tummy please)