I feel like Crohn's is holding me back

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Joined
Jun 17, 2015
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As we know having crohn's can be a bit.....expensive. I've had it since I was 15 and have been taking remicade for about 6 years now and it's been working so well. I remember my hospital accidentally sending me bill in the mail for 12,000 dollars. I didn't have to pay it, but 12,000 dollars?? for one treatment? insane. and ever since that I've had a constant worry about me being in debt because of something I cant control. I was on medicaid when I was younger so there was no worry there. and as of right now I work at a school cleaning. not the best job, but because it's a school i get probably one of the best insurances. The problem is , I don't wanna work there for the rest of my life. it's not something I enjoy. but because i'm so stuck on the fact if I leave, I won't have great coverage anymore, I stay. My boyfriend wants to eventually move out of state and I want to go with him, but i'm so scared. I'm letting this hold me back. I don't know what to do. Sorry, this sounds like a whole bunch of complaining. I realize that people have it way worse. but if anyone has some advice that would be nice.
Thank you.
 
I am in medical debt myself (even with insurance) so I completely understand. It's insane how expensive medical care and medications are! I cannot afford to be sick and I end up in this weird cycle. I have to work so that I can have insurance, so that I can get my illness treated properly, so that I can be well enough to work, so that I can have insurance...

A few ideas for you. If you're under 26, you should still be able to get covered under your parents' insurance - that would cover you for a little while until you can find a better job. Otherwise, are you able to take some online or night classes and work your way towards a better career? Or, if you are serious about your boyfriend, you could marry him and get covered under his insurance (obviously not a decision to rush into though!). And if worse comes to worse, there are things like payment plans and financial aid for hospital bills, and many drug manufacturers offer savings cards or coupons for making prescriptions cheaper. It's still not a great system. You could always move to Canada, or the UK, and get on their universal healthcare. (I've considered doing that myself.) Yeah, not a lot of great options when you are ill and living in a country that essentially punishes people for being ill.
 
Hi cat is right you could move to canada or here in the uk. But in all honesty.. yes our health is free ish, scripts are to be paid for. Only thing is appointments can take forever to get, you cant always get this med or that med bcoz its too expensive or you live in the wrong post(zip)code . Try to get disabilty well here if you can walk 200yards unadided can make a cup of tea n wipe your bum your not disabled. May be a slight exageration but very slight. Its ridiculous. I looked into it during my worst days. Thought sod it il die before they give me anything at this rate. Seems to me most countries punish us for being ill. Sorry for the rant.. just thought id let you know in a way your not alone in the struggle for health care in one way or another. Best wishes n hope you can find away to manage your care. Hugs đź’•
 

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