Hey, I just joined yesterday, and I have no diagnosis.
I'll try and make it brief:
Age 20 admitted to psyciatric ward for very heavy anxiety, although something has never added up. Anxiety only manifests in bodily symptoms, no phobic state at all, took a visit to the "national anxiety specialty center" for them to conclude it was just that, a rare anxiety that didnt behave as others have it". Symptoms back then got mixed up with what I thought was / really was medication side-effects from psyciatric drugs.
Anxiety did not get helped from meds they tried at first, it got worse. A lot worse, wich ended in me being admitted. (voluntarily) for 8 months. They finally put me on a tri-cyclic drug for both the anxiety and to make me add weight, as we (to both their and my suprise) discovered I was down at 49kgs. (I'm 1.83cm) It was a suprise because I had/have no eating disorder whatsoever. I concluded it must have been from forgetting to eat while plagued by the anxiety for months. Was admitted for a whole 8 months, and anxiety burned out to only visit once in a while a and only very lightly for 8 years, then resurface of symptoms/anxiety again for a brief year, then all ok until 2 years ago.
Back then symptoms:
Dizzyness (later learned it's from a TMJ condition that affects my ears)
"Oversensitivity" in nerves.
Nerve rash up my entire arm suddenly appear and dissappear again in a matter of hours.
Insane stomach issues. Felt like I could feel my bowel movements a lot better than normal if that makes any sence....
Constipation.
Nightblindness (I thought it was a sideeffect from the tri-cyclic, now I'm uncertain)
Feeling of weakness.
Fatigue.
The list is literally endless, but these were heavy.
Heart beat felt all over the body, almost to the point where I would jolt, feeling them.
Fast forward: I'm 36 now.
Symptoms now; All the same ones, save the nightblindess, but add in very very heavy joint pains in lower back, hip area, neck, jaw. Have been investigated for Ankylosing Spondylitis, to no avail. Then I saw a rheumy that put me on Voltaren (NSAID). Helped the joint pains and fatigue, but after a month or so on it, it absolutely killed my stomach. Heartburn, acid reflux, stomach cramps, constipation.
I had to quit it, but thats now 5 weeks ago, and it still feels like the Voltaren fully triggered the stomach problems I had back then at full force.
I have to admit I have had a lot of hard and slow bowel movement the last few years, and as this got worse, it got worse in the stomach too. Felt like it needed a lot of water just to pass things through. Alll my joint pains have had rheumatological signs to the point, but no bloodwork or pictures could prove it.
Btw, the problems two years ago, happened after an insane period at work, and exploded after a stomach bug (very nasty one, 10 days diarrhea, lost 6kgs in a week) The last months I have had very hard and diarrhea every second time or so. I have also been plagued by hemoroids, and red blood in my stool. (not to worry according to my GP, as I am the wrong age for colon cancer, and have no family history of cancer, and to be honest cancer isnt worrying me, this comes through as rheumatic not cancerous in behaviour)
The last 5 weeks, it feels like I am so constipated something in my left side feels stretched under pressure. Every now and then something willl loosen there on the inside, at wich point the pain gets better and my stomach makes the wildest noises. I can feel it loosen. I do get a little nauseous and feel quite weak at times.
Then I started reading about Crohns, and actually noticed last week I got a canker sore in my mouth (I have not had them since I was young) then another one, and then what looked excactly like it under my eye lid (4 of them, but smaller). It lead to an eye infection. I have had more of those than anyone I know by the way. I actually quite fequently have sores on my lips, but I just always figured it was herpes or cold sores before.
It is most definetly the same thing as back then, but the part where I actually feel anxiety of any sort is completely gone. worried, yes, but the normal kind, not the one that freaks me out.
I'm starting to wonder if it may actually be Crohns?
I know I should see a GI, but I would really appreciate all advice and thoughts, it's not that easy to go see your doc before something literally explodes in my face, after 2 years of visits to try and work out whats wrong. I feel stupid every time I see him. But that said, this feels like it is literally getting close to explode in my stomach, haha
Thanks in advance for your thoughs and or questions!
I'll try and make it brief:
Age 20 admitted to psyciatric ward for very heavy anxiety, although something has never added up. Anxiety only manifests in bodily symptoms, no phobic state at all, took a visit to the "national anxiety specialty center" for them to conclude it was just that, a rare anxiety that didnt behave as others have it". Symptoms back then got mixed up with what I thought was / really was medication side-effects from psyciatric drugs.
Anxiety did not get helped from meds they tried at first, it got worse. A lot worse, wich ended in me being admitted. (voluntarily) for 8 months. They finally put me on a tri-cyclic drug for both the anxiety and to make me add weight, as we (to both their and my suprise) discovered I was down at 49kgs. (I'm 1.83cm) It was a suprise because I had/have no eating disorder whatsoever. I concluded it must have been from forgetting to eat while plagued by the anxiety for months. Was admitted for a whole 8 months, and anxiety burned out to only visit once in a while a and only very lightly for 8 years, then resurface of symptoms/anxiety again for a brief year, then all ok until 2 years ago.
Back then symptoms:
Dizzyness (later learned it's from a TMJ condition that affects my ears)
"Oversensitivity" in nerves.
Nerve rash up my entire arm suddenly appear and dissappear again in a matter of hours.
Insane stomach issues. Felt like I could feel my bowel movements a lot better than normal if that makes any sence....
Constipation.
Nightblindness (I thought it was a sideeffect from the tri-cyclic, now I'm uncertain)
Feeling of weakness.
Fatigue.
The list is literally endless, but these were heavy.
Heart beat felt all over the body, almost to the point where I would jolt, feeling them.
Fast forward: I'm 36 now.
Symptoms now; All the same ones, save the nightblindess, but add in very very heavy joint pains in lower back, hip area, neck, jaw. Have been investigated for Ankylosing Spondylitis, to no avail. Then I saw a rheumy that put me on Voltaren (NSAID). Helped the joint pains and fatigue, but after a month or so on it, it absolutely killed my stomach. Heartburn, acid reflux, stomach cramps, constipation.
I had to quit it, but thats now 5 weeks ago, and it still feels like the Voltaren fully triggered the stomach problems I had back then at full force.
I have to admit I have had a lot of hard and slow bowel movement the last few years, and as this got worse, it got worse in the stomach too. Felt like it needed a lot of water just to pass things through. Alll my joint pains have had rheumatological signs to the point, but no bloodwork or pictures could prove it.
Btw, the problems two years ago, happened after an insane period at work, and exploded after a stomach bug (very nasty one, 10 days diarrhea, lost 6kgs in a week) The last months I have had very hard and diarrhea every second time or so. I have also been plagued by hemoroids, and red blood in my stool. (not to worry according to my GP, as I am the wrong age for colon cancer, and have no family history of cancer, and to be honest cancer isnt worrying me, this comes through as rheumatic not cancerous in behaviour)
The last 5 weeks, it feels like I am so constipated something in my left side feels stretched under pressure. Every now and then something willl loosen there on the inside, at wich point the pain gets better and my stomach makes the wildest noises. I can feel it loosen. I do get a little nauseous and feel quite weak at times.
Then I started reading about Crohns, and actually noticed last week I got a canker sore in my mouth (I have not had them since I was young) then another one, and then what looked excactly like it under my eye lid (4 of them, but smaller). It lead to an eye infection. I have had more of those than anyone I know by the way. I actually quite fequently have sores on my lips, but I just always figured it was herpes or cold sores before.
It is most definetly the same thing as back then, but the part where I actually feel anxiety of any sort is completely gone. worried, yes, but the normal kind, not the one that freaks me out.
I'm starting to wonder if it may actually be Crohns?
I know I should see a GI, but I would really appreciate all advice and thoughts, it's not that easy to go see your doc before something literally explodes in my face, after 2 years of visits to try and work out whats wrong. I feel stupid every time I see him. But that said, this feels like it is literally getting close to explode in my stomach, haha
Thanks in advance for your thoughs and or questions!
