- Joined
- Jan 17, 2012
- Messages
- 5
Well, this morning I had a flexible sigmoidoscopy done up at Mayo in Rochester. I then saw my doctor this afternoon. I have been on remicade since February of this year, and it works great for the first 4 weeks after the infusion. After that, I go downhill, QUICK. I go from feeling great to absolutely awful. So, when I went into my doctor today, I figured he would up the remicade to every 4-5 weeks. WELL.. that's not the case. He said my colon is pretty chewed up, and he wants me to switch to entyvio. However, because I have been on humira and remicade, he doesn't know if it will work as well.
I don't want to switch. I want to stay on the remicade, it gave me at least a few weeks of feeling normal. I'm scared..now that will be taken away from me. I haven't heard many success stories with this new entyvio. And if the entyvio does fail, then I will need a surgery that will require a permanent illieostomy. I'm nineteen years old. I don't want to be dealing with this.
So many what ifs are going through my head. One of my biggest fears has always been needing a colostomy bag. :/ Why can't i just be normal??
I know it could be worse, but still. I'm just so down right now. No one around me understands what I'm dealing with. What should I do? Has anyone heard of the SCD diet? And Has anyone had any success with entyvio? Any advice/words of wisdom is greatly appreciated. Thanks!
I don't want to switch. I want to stay on the remicade, it gave me at least a few weeks of feeling normal. I'm scared..now that will be taken away from me. I haven't heard many success stories with this new entyvio. And if the entyvio does fail, then I will need a surgery that will require a permanent illieostomy. I'm nineteen years old. I don't want to be dealing with this.
So many what ifs are going through my head. One of my biggest fears has always been needing a colostomy bag. :/ Why can't i just be normal??
I know it could be worse, but still. I'm just so down right now. No one around me understands what I'm dealing with. What should I do? Has anyone heard of the SCD diet? And Has anyone had any success with entyvio? Any advice/words of wisdom is greatly appreciated. Thanks!