Im having another surgery need help figureing out what to do??

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Im having my second of three surgeries for my crohns on 10/27/2014. Im stressing out about it because the doctor said that there is a 65% chance of it coming back but coming back worse then before. :frown: I just need some advice on how yall dealt with it if it has come back in yall. Another thing I need some help trying to figure out what to do for a month that ill be bed bound. Any advice on what to do or things that pass the time??
 
What type of surgery are you having? You say 2 of 3, what is the 3rd surgery?

Have they told you that you will be bed bound for a month?

My son had a small bowel resection over a month ago. The removed 10 in. He was in the hospital for 4 days and the his only restriction was no lifting of 10lbs for 6 weeks. He wasn't bed bound and was moving around great by the 5th day and back to light duty work 14 days after surgery.

Healing is so individual times can vary greatly. I hope your surgery goes well and I'm sure other will be by to give their experiences.
 
Reconstructive surgery. In December of last year they removed all of my large intestine and a small part of my small intestine. This one they are going to reconstruct my small intestine to make a new colon and on top of that I have a heart condition that they are going to go in and burn apart of my heart mussel to keep my heart rate down below 125bpm which is what It is at now. But im more worried about my reconstruction surgery because I don't want my crohns to come back at all. That would be my worse nightmare come true.
 
I'm sorry to hear what you have gone through and will be going through.

Are there any films / tv shows you've always wanted to see but never got around to? There are some brilliant shows that I never would have seen if wasn't for all my surgeries. Same goes with books. Also if you have bedside online access gives you loads to do. Remember though you will be tired out too, so it will probably go quicker than it seems like now.

I hope it goes well. Keep us posted.
 
Thanks Muppetgirl for the support. I don't really watch TV that much anymore because it just sucks you in, but I do, do a lot of wood working and small stuff like that. Im thinking about making a Tailgating trailer or drawing up the specks for one. I love sports, even though I could never play them due to me being so sick, and going to games is just so much fun. I do like to read while im in the hospital. Any good book you would recommend to me??
 
I'm hopeless at dealing with boredom. I find there are some times in hospital when I'm just too sick or in too much pain to do anything. If you find this, at these times just concentrate on making yourself comfortable - take the time to make sure you're prescribed the right pain meds, sleeping pills, anti-nausea etc. so even if you're not up to concentrating on anything, the time passes as smoothly as possible.

Once you're well enough to concentrate, you can do pretty much anything online. If your hospital doesn't have patient Internet access, get a dongle. Maybe take a cheap old laptop or tablet, so you don't have to worry about it getting taken if you leave it on the ward.

If you like reading, I started a thread here: http://www.crohnsforum.com/showthread.php?t=56047 when I was going into hospital and wanted ideas for things to read.

Another way to make use of your time is to exercise, if you can do so safely. Often the nurses will encourage you to walk once you're well enough to do so. I saw a physiotherapist during my last admission, which was for a specific purpose as my right arm and leg were paralysed, but I bet the exercises would help many people who are quite immobile for a long period. Simple things like raising your leg off the bed, hold it for ten seconds, stretching your arms up and holding them up for ten seconds, drawing your knees up to your chest, crouching on the floor then standing up straight, repeatedly sitting in a chair, standing up and sitting down again, etc. Obviously check none of these will do you any injuries before you try them, and people may think you look a bit weird :p but it can help you strengthen yourself physically and keep you supple.

If you have a willing friend or relative, a massage can really help with some types of pain and especially if you're feeling stiff from lying still a lot. A nurse once massaged my legs when I was being driven mad by Restless Leg Syndrome, which I sometimes get after general anaesthetics, and I felt much better for it.

One of the least miserable times I spent in hospital was when a nurse, by some miracle, managed to find the time to help me shower, wash my hair, blow-dry it, rub cream onto all my bed-sore areas - maybe you'd feel uncomfortable with this, but when I'm very sick I need help with washing, and having someone take the time to get you all clean and dry and comfortable when you're feeling icky is a good way of passing time. Sometimes I've not been well enough to even get out of bed, and then the nurses have to give you a wash in bed, but I've found there's also a stage where I'm kind of well enough to get up, but so nervous that I'll fall or faint in the bathroom by myself that I blitz myself under the shower for two seconds and rush back to bed, not taking the time to do it properly. It really helps your skin to get properly washed and dried every day, and be thoroughly covered in cream to prevent bed sores if you're lying down a lot. If nurses don't have time, again if you've got a visitor you're comfortable with, you can make visiting hours the time when you get clean and freshen up.
 
I don't know if you like to read, but I am just finishing a great book, "The Goldfinch" Wow, a reconstruction surgery and heart procedure all in one! I am wondering what method they are going to use for the heart procedure. Is it an ablation? I see that little exercises were a possible suggestion, but with the heart involved, I sure would not risk doing anything in bed, as stress free as it may seem, without your doctor's approval! Good luck- the tailgating design/project sounds like a fun thing to get your mind into.... what is your favorite football team?
 
The heart surgery is just to burn apart of the mussel to make it stop beating 125-135bpm. My favorite football teams are college is USC Gamecocks I went there and NFL are The Detroit Lions
 
The heart surgery is just to burn apart of the mussel to make it stop beating 125-135bpm.

Sorry for my curiosity, but is it dangerous for your heart to be beating this fast? Mine usually beats around 120, and it's been that high since I started taking Amitriptyline. Naturally, it was slower than average. Every time I'm in hospital, the doctors see it's too fast, and even though I explain to them why, they order an EKG (or is it an ECG?). I also had an echocardiogram done, and the results were normal. Once the doctors see that this is just how mine beats now, they stop worrying about it.
 
Yeah its good to have something that you enjoy to focus on, but if it involves tools take care!

The book thing is hard to recommend. I think starting from lists like the one unxmas suggested is good. Or if you google 100 all time greats, then your bound to find something that appeals. I used this to get though the 'always meant to read' greats (well some of them!). Also it may be worth getting an e-reader if you don't already have one. They allow you to download a sample for free first, so you don't have to worry about buying something that just sits on a shelf.
 
OP, game of thrones series of books on an ereader are epic - if you get just the free kindle app for your ios (apple phone) or android phone you can even download the free books on the kindle store eg classics like dracula, frankenstein, etc but also alot of free books can be found on kindle (app) not just oldies.

Hope your surgery(s) go well for you and if you do keep crohn's away don't shout too loud - the rest of us may get jealous ;o)
 
Yeah its good to have something that you enjoy to focus on, but if it involves tools take care!

The book thing is hard to recommend. I think starting from lists like the one unxmas suggested is good. Or if you google 100 all time greats, then your bound to find something that appeals. I used this to get though the 'always meant to read' greats (well some of them!). Also it may be worth getting an e-reader if you don't already have one. They allow you to download a sample for free first, so you don't have to worry about buying something that just sits on a shelf.

OP, game of thrones series of books on an ereader are epic - if you get just the free kindle app for your ios (apple phone) or android phone you can even download the free books on the kindle store eg classics like dracula, frankenstein, etc but also alot of free books can be found on kindle (app) not just oldies.

I get tons of free books on Kindle. Anything that pre-dates copyright is free - so there are endless classics if you're into them. I love Frankenstein and Dracula!

You can also get endless books for free by self-published amateur authors. There's a lot of rubbish to sift through, but since you'll have time to kill ;) you can spend some time hunting through the trails of available books - find one you like and see which books have been recommended others who liked it. Find authors who are prolific, as if you like one by a particular author, you'll likely enjoy their other works too.

Game of Thrones, also mentioned above, is a very good series (and you can watch the tv show too, and it's very long so it will keep you going!
 
Yes it is very bad for your heart to be beating that high. It should be in the 60-80 range

That explains why I always get given an ECG, but my echocardiogram was normal so I suppose it's not doing any harm. Do you have a particular medical condition causing your fast heartbeat?
 
Hi,

It sounds like you are having a cardiac ablation, where they insert a catheter into the area of the heart that is misfiring the electrical impulses and then heat it up to burn/destroy those 'guilty' cells - my husband had this done three years ago. He had it done twice, as the racing heart rate returned after a couple of months, but after the second time it has been OK (touch wood!). He was always exhausted before he had it done as his heart was so overworked, but feels so much better now.

You say you enjoy woodwork. If you are restricted in your mobility post-surgery how about small scale hand carving or whittling? Of course it's much easier using green wood, and there are so many little things you can make. I have just made some whittled ash keyrings for my kids' school locker keys, and I've made other ones as small gifts for people, carving their initials through the different layers of plywood which was very attractive. With Christmas (Thanksgiving, too) coming up you could create a whole range of gifts which, although small, are more meaningful than most of the rubbish in the shops.

Best of luck,
Nitty
 
Yes ma'am that is what is being done to my heart. I know how he feels because im always tired and cant seem to catch my breath at all. Im only 25 and its just crazy to think that my heart is already beating me up.

Yeah ill most likely draw up some things to do when im recovered from all of it. I will make small things just to keep my mind off of everything and keep the trade going as well.
 
Hey Unxmas,

I just wanted to chime in. I get heart issues at times as well. I get PVC's which I were told were harmless for the most part. I also had a point where my heart was beating at 120 years back. They never did figure out why it was doing this. It did go back to normal though. I mean it is not dangerous if it is temporary, but it is not good for your heart to beat at 120 continuously for a long time. It will put wear and tear on the heart. I took amitriptyline about a year ago and it messed with my heart too. I had to stop it. It was actually making my heart race and then a few minutes later it would go super slow. It also made me feel odd in my chest so that is why I had to quit taking it. When my heart is going 100 and up I don't like how it feels. I get funny feeling in my chest. How long have you been on the amitriptyline now?






That explains why I always get given an ECG, but my echocardiogram was normal so I suppose it's not doing any harm. Do you have a particular medical condition causing your fast heartbeat?
 
Hey Unxmas,

I just wanted to chime in. I get heart issues at times as well. I get PVC's which I were told were harmless for the most part. I also had a point where my heart was beating at 120 years back. They never did figure out why it was doing this. It did go back to normal though. I mean it is not dangerous if it is temporary, but it is not good for your heart to beat at 120 continuously for a long time. It will put wear and tear on the heart. I took amitriptyline about a year ago and it messed with my heart too. I had to stop it. It was actually making my heart race and then a few minutes later it would go super slow. It also made me feel odd in my chest so that is why I had to quit taking it. When my heart is going 100 and up I don't like how it feels. I get funny feeling in my chest. How long have you been on the amitriptyline now?


I've been on Amitriptyline a couple of years now. I can't give it up, I couldn't live without it - it's the best treatment I've found. My heart doesn't feel funny, I have had palpitations in the past, before I was taking Amitriptyline, and ECGs were normal back then too. Now I don't have any heart symptoms.

When I was in hospital a few weeks ago, the nurses did their regular obs just after I'd been told the gastroenterologist didn't want me being discharged, and was very upset, and then my heartbeat was so high I really frightened them! This anecdote is going to end with an anti-climax, because I can't actually remember what my heartbeat was - I want to say 140, or is that impossible?! Anyway, in the end they did let me go home, and my heartbeat went back to normal. But even when it was super-fast when I was upset, I don't remember feeling unwell with it, or even noticing it.
 
I have postural orthostatic tachycardia syndrome. When I stand up, my hr can reach 180. Even resting, at times my hr is in the 120s. And ablation is contraindicated in someone with Postural orthostatic tachycardia because studies have shown to make it worse.

Before I was dx'ed a regularly walked around with really high heart rates, but I wasn't really aware. My first ER visit it was close to 200 and that is when the dx process began.

140 would be similar to exercising and if it wasnt there long then it's no harm done. If the docs deemed that you needed it controlled then there are a host of bb that help to lower hr.

My condition isn't related to my heart but to my autonomic nervous system, that which controls hr, breathing, digestion, temperature regulation, all the things your body does with out you telling it too. All my heart tests are normal, no arrhythmia, no heart damage, no bp issues.

SickNimmons, I hope the ablation goes well for you. When the docs thought I had IST the considered it for me. I hope your surgeries go well and recovery is quick! I would rack up on books that I'd like to read!
 
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