Infliximab problems anyone?

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Joined
Nov 20, 2011
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Hi, just wanted to find out if you guys that are on/have been on infliximab have had regular blood tests and that your doctor/consultant have followed protocols with this drug?

My sister who had UC was on infliximab, but never recieved any support, advice or follow up, she consequently developed neutopenia sepsis and died at the young age of 31. I just wanted to know if other people have had similar experiences.

All the best to all you who suffer from this nightmare of a disease, you are all extremelly strong like my sister.
 
Sorry this isn't ment to scare anyone! It's just me and my family need answers to move on with our lives. I know infliximab works wonders for some people, but want to know how the doctors go about the drug more than anything

If you do have any problems with it, go and see someone ASAP, even if you think you are being stupid, you are not. If you don't ask and push these days you don't get.
 
Hi Rhiz - first, sorry for the loss of your sister.....how long was she on Remicade?

Can you please also visit the 'my story' forum and introduce yourself there? You may get more answers after posting there.....

Regards - paso....
 

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