- Joined
- Jan 18, 2015
- Messages
- 10
Hello!
I recently was diagnosed with Crohn's. It felt simultaneously relieving and scary to finally get some answers to the pain I am in. Problem is, I don't feel like I have nearly as much trouble with my symptoms as others I have read about. I initially took that as a blessing, yet I wonder if I was misdiagnosed?
The pains started when I was about 16. With no rhyme or reason I'd get waves of burning that would move from my upper abdomen, then fade out as they moved downwards. The waves would last about 15-30 seconds, in which time I would get goosebumps, immediate fatigue, and nausea. I could have these once every couple minutes for weeks on end, or I wouldn't have them at all for months. Once it went away I was fine. After a few months I just wrote it off as lactose intolerance, and once I cut out dairy (which I craved and still do) the pains went away. I'm now 27 and after 9 years, though I am still off dairy, the pains came back with a vengeance. I never really suffered any painful bowel movements aside from random diarrhea and constipation, but who is to say what is not normal when yours is the only body you're used to being in? I really don't go any more frequently than I think is normal.
I went to my GP thinking it was an ulcer, but lo-and-behold, after lots of tests (blood, 3 ultrasounds, a CT, an endoscopy and a colonoscopy) they told me it was Crohn's. I do feel tired all the time and my moods are unstable, but it's hard to tell why, and I never thought it could be my stomach until now. I've had painful sores in my mouth and on my tongue, a small amount of blood in the stool, I have had vomiting during bowel movements, and the pain waves. However, I have had no weight loss or suppressed appetite, and I have never felt debilitated by this illness as suggested by the sad looks I get from people who hear about my diagnosis. Should I be more wary? Should I expect these days to come along eventually? I'm a bit paranoid after reading stories from other patients and otherwise would not have thought much of this diagnosis!
Thoughts?
I recently was diagnosed with Crohn's. It felt simultaneously relieving and scary to finally get some answers to the pain I am in. Problem is, I don't feel like I have nearly as much trouble with my symptoms as others I have read about. I initially took that as a blessing, yet I wonder if I was misdiagnosed?
The pains started when I was about 16. With no rhyme or reason I'd get waves of burning that would move from my upper abdomen, then fade out as they moved downwards. The waves would last about 15-30 seconds, in which time I would get goosebumps, immediate fatigue, and nausea. I could have these once every couple minutes for weeks on end, or I wouldn't have them at all for months. Once it went away I was fine. After a few months I just wrote it off as lactose intolerance, and once I cut out dairy (which I craved and still do) the pains went away. I'm now 27 and after 9 years, though I am still off dairy, the pains came back with a vengeance. I never really suffered any painful bowel movements aside from random diarrhea and constipation, but who is to say what is not normal when yours is the only body you're used to being in? I really don't go any more frequently than I think is normal.
I went to my GP thinking it was an ulcer, but lo-and-behold, after lots of tests (blood, 3 ultrasounds, a CT, an endoscopy and a colonoscopy) they told me it was Crohn's. I do feel tired all the time and my moods are unstable, but it's hard to tell why, and I never thought it could be my stomach until now. I've had painful sores in my mouth and on my tongue, a small amount of blood in the stool, I have had vomiting during bowel movements, and the pain waves. However, I have had no weight loss or suppressed appetite, and I have never felt debilitated by this illness as suggested by the sad looks I get from people who hear about my diagnosis. Should I be more wary? Should I expect these days to come along eventually? I'm a bit paranoid after reading stories from other patients and otherwise would not have thought much of this diagnosis!
Thoughts?
