- Joined
- Jul 25, 2010
- Messages
- 31
Hi fellow sufferers. I'm Cory. 21 from North Carolina, recently disabled from crohn's. I figured I'd write my little story on how my life is affected by this stupid disease. Ok, I was Diagnosed december of 2008, so about 1.75 years so far. I'm 21. When I really think about it, I beleive I've had crohn's probably my entire life, just didn't know it. Cause my stomach would always hurt when I eat certain things and perform certain activities. Here lately it's just been hell. Almost too much for me to handle. Because not only do I have crohn's disease, I am also bi-polar, manic depressant, and have anxiety. So having this disease only makes things worse when I'm constantly thinking im gonna die. Even thoughts of suicide run rampant through my head because I hate being in pain. I honestly can't tell you all the meds I've been on to try and treat my disease cause there's been so many and all have failed. asacol, pentasa, prednisone, protonix, Remicade IV, Cimzia injections, and atleast a dozen more, my memory isn't to good anymore. (and im only 21, bullcrap right?) What depresses me most is that I honestly think my doctors dont care that I'm in pain and obviously nothing is working. They think I'm a drug addict when I ask for pain meds, and if they do give me some it's some crap like Ultram that does absolutely nothing. HEY DOC, MORPHINE? OXYCODONE? SOMETHING THAT WORKS? No i'm not an addict, i've just taken many different drugs in the hospital over time that I kno what helps the pain and what doesn't. Crohn's is really taking a toll on my life and mostly my social life. I never want to go out because I never have the energy, it's embarrasing when I'm walking in public hunched over in pain all the time. I'm 6'5'' and only weigh 130lbs. When I used to weigh 180 before this disease got worse. I'm honestly feeling like giving up, yea there are people out there in worse conditions but I can't tolerate it. When it feels like someone ripped out my intestines and put them through a meat grinder 24/7 and no one cares, it's too much. I mean, I know alot of people who have crohn's and still work and live a normal life, I can't, I was declared Disabled by my doc cause it was so severe and I don't even get that much help with bills. Seriously, how can you live off 450 dollars a month? Rent, Utilities, Car Insurance, Gas, Food, Cell phone. It's not gonna cut it. So I've come to this, is there really no hope for people with crohn's disease? Is there's any way possible to find pain relief? I'm just sick of the pain, the closure, the hospital bills (over $750k but I have medicaid now), the careless doctors. I just want to be able to do the things I used to do when I had a life, when I had energy. I want my life back. I want to be able to run a mile or two, or even run at all. I want to go out with my friends and have fun without people staring at me cause I'm whencing from pain. There's so much i've lost to this disease, will I ever get it back?