Is there anyone with no pain?

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porter89xxx

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Jan 10, 2010
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Hi all this is purely a question, i was thinking through it in my head today and was wondering if there are people with crohns disease that dont suffer from pain but get the other symptoms, its just that my friend with it said he had no pain and the rectal bleeding was the most troublesome.
 
I mean during a flare up i find it really weird cos i am in agony especially when i am getting diareah and the cramps i feel like screaming the house down
 
I get bad pain with flares but I dont really get D. It hurts like hell when I do go but even at my worst I will have 4 BMs a day tops.
 
Lydia said:
I get bad pain with flares but I dont really get D. It hurts like hell when I do go but even at my worst I will have 4 BMs a day tops.
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I'm the same way. I have to go instantly but I don't go all day unless it's a reaaaalllyy bad flare, in which case I'll go about fifteen times and have watery D.
 
My mother was recently diagnosed with Crohns - basically asymptomatic - she has never been to the Dr for treatment for it....it was found during a routine colonoscopy.....so, never any pains.....

Now me, on the other hand....I do get the cramping - when bad enough it will make me throw up.....if I get to that point it is a straight trip to the ER/hospital.......
 
I have a lot of trouble pinpointing when I have pain and when I don't. I have always had the watery D, but the cramps come and go. Who knows??!!!
 
Belly pain is the least of my worries when I am flaring. If I have some, I usually just need to loosen the button on my pants or maybe unzip.
Sometimes I have butt pain depending on what's going on down there fistula wise, or how irritated I am from going so much.
When I'm not flaring, I have no pain.
 
I have never had any amount of pain with the disease, and yet the doctor described it as a moderate case. He was kind of dumbfounded as to why I was not in more pain. He said I must have a high tolerance to pain. I am not sure what that means, but I was not tolerating any great amount of pain, I simply did not feel it that much.

I guess it is better that way, but pain does tell you something is wrong, and I do not get that type of warning. I have to rely on more subtle symptoms.

Dan
 
I always have pain. Some days it's just a minor annoyance, sometimes it's just a dull ache, sometimes it's bad enough that I lay in bed all day, and sometimes I just curl into a ball and cry.
 
I never had pain at all (besides the odd gas bubble). I always had a big problem with rectal bleeding.
 
I don't have pains neither, just watery D, only had excrutiating pain back in Jan cos I was blocked, I don't have gas or bloat neither. Where my inflammation is, LRQ. it sometimes throbs to let me know it's still there!
during a flare, I have fatigue and joint pain, mouth ulcers and styes, and of course D.
 
I usually always in pain to some degree, it's been very very bad before but then when I get back on steroids things seem to calm down and I decrease pain relief. At the moment I'm not bad at all pain wise, it's only mildly irritating/uncomfortable. I seem to have been unlucky in getting every Crohn's symptom under the sun ha ha.

It depends I guess on what you personally find to be the worse symptom, I get rectal bleeding but I've never found that particularly hard to cope with, yeah I'd rather I wasn't bleeding but it comes and goes and usually isn't too heavy. But that might equally drive someone else insane!
 
I never used to have pain unless I was in a REALLY bad flare up but since about September last year I get cramps pretty frequently.. everyday really.. But I'm the same, I don't always get diarrhoea during flares.. just more pain and more regular BM's.

The pain is usually before a BM or before wind.. but it's something I just need to cope with I think.
 
I have a lot of abominal cramping. It is more irritating than painful. I ha pain for many years in the side of my gut. I did not know what it was and was terrified to find out. The greatest pain I get is from gas . That usually comes when i am too tense and rnning and busiest or beign around people that scare me and I feel uncomfrotable around. That I can't be or say how I am or how I am feeling. it is like holding in pain for fear of someone jumping on me. Or if those people are in my presence.
I had my family at my apartment for Thanksgiving last year and I had clasutrophobia at times. I fear their judgement on my housekeeping or lack of skills. It turned out ok thoguh. Next time I need to talk about my feelings before they come over.
I am going to volunteer for M&M Meat Shops this Saturday for their chairtBBQ. It is my first real public coming out since I got dianosed with the disease. I am very grateful that i am healthy enough to do it and maybe I'll meet lots of people and other Crohnies who are volunteering. I could really use some friends in my area. Also I
I'd like to get job.. or be ok not working. It would be awesome if the store hired me after seeing my incredible talents :)) God does not give Crohsn and colitis or any other illness to the weak. and their family and friends need to be strong too.
I have a niece who's husband left ehr after she had major liver surgery. Lost 68% of her liver. I do empathize with him. It msut have scared the crap out of him.
 
All of my pains are manageable. I've never had that "doubled-over-scream-out-loud" kind of pain. I get cramping with bowel movements. The kind where you sweat and shake and see little silver stars. I have also had problems with fistulas, so there has definitely been pain involved there, but it's a soreness kind of pain. I get a lot of gas pains too. And for the last year or so, I have had some pretty bad lower back pains, which I somehow know are Crohn's related. So yeah, I guess I get pain, but I really don't think it's pain the way some people get it. It's never anything that would send me to the ER.
 
About 4 months ago I was having slight pain constantly everyday. I was getting sick of it. That's when I began trying to figure out what I was eating and what I could do differently.

I got rid of soda's and limited my intake of sugar, no milk, I am drinking soymilk now. I have also reduced red meat intake because I have found out that it bothers me too. When we have burgers and such we use turkey meat.

I am also on several vitamins; A, C, D, E and probiotics. I am on Imuran and lalda.

Since I reduced sugar and watch intake of certain foods my daily pain has almost disappeared. I have pain on occasion but not much.

I do have 3-5 BM's a day on a good day. A bad can reach closer to 10 and they are always D.

Now my problem is traveling. As soon as I get into a car and head out of town my bowels go crazy. Any suggestions on something to take to allow me to drive but not have to go to the bathroom? Thanks.
 
I was recently diagnosed during a colonoscopy (mild ileitis). I've never had any pain - just a 30 lb. weight loss, gradually over the past year, somewhat low on B12 and loose stool 3-4x per week. Going for a pill cam later this month.
 
I have never had pain. I have had some cramping, similar to menstrual cramping, but never pain. I have had all of the other symptoms though: weight loss, fatigue, bloody stool, loose stool,urgency, no bowel control, etc.
 
I have chronic liquid D up to 10x a day. lots of gas and cramping. I also have a burning pain(like a shotgun blast) above my navel every morning that wakes me up and doesnt subside until I go to the bathroom. Been on all different types of narcotic pain meds throughout the years but I'm currently off all. Doc felt may be developing 'narcotic gut syndrome'. When i need a break i go up to the ER for fluids and some pain management. Crohn's is literally a pain in the ass!
 
I have chronic liquid D up to 10x a day. lots of gas and cramping. I also have a burning pain(like a shotgun blast) above my navel every morning that wakes me up and doesnt subside until I go to the bathroom. Been on all different types of narcotic pain meds throughout the years but I'm currently off all. Doc felt may be developing 'narcotic gut syndrome'. When i need a break i go up to the ER for fluids and some pain management. Crohn's is literally a pain in the ass!
 
I have always had pain, for the first time in 23 years I don't for a couple weeks now, it's weird...never thought I'd live life without it...I have become very tolerate to pain at times with this disease, I do take pain pills now, probably not a great idea but after my small intestine perforated an I thought it was only menstrual cramps I thought it better to pay attention, instead of "playing tough girl all the time!" I hope that I get to live the next 23 years with out any pain! I have strictures and blockages with my C, and tons of D forever ...I read all the other posts and besides bleeding, I experience a lot of BS, but I feel I have more to offer in advice now in my life, I can give back...maybe a shoulder to lean on occasionally but I am actually groovy!
 
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I don't have any pain, nor do I have problems with D. However, the cipro+flagal mix I always seem to be on makes me poo moore then usual, but still only once a day. My doc also said that I had a high pain tolerance too. I have other problems though like a bladder fistula, but still no pain. I have noticed that my left knee tends to be stiff sometimes in the morning due to the meds but that is also an old injury from before I was diagnosed with Crohn's.
 
im amazed by how much pain we all endure thru the years, not to mention the chronic D! my doc wants me off pain meds for awhile and it sucks! unfortunately im allergic to flagyl. i used to tolerate pain well but not anymore. my quality of life is bad, cant work and i live in the bathroom these days. thank god for music or id be insane! wish there was a drug that could relieve symptoms without physical addiction
 
According to my GI I have had this for years undiagnosed I mean Like 15 yrs if I have to put a number on it, could be longer. I have never ever had pain except maybe a a couple of times in all those years had lot of diarrhea though. My pain started 2 yrs ago. And it only lasted a couple of months in my upper left side under my ribs and lower left side and my lower back. Sometimes cause me to walk a little doubled over. Pain went away then 2 months ago came back and I ended up in the hospital but really I don't have pain like most people on here I don't understand why? not that I want it but according to my GI when they did the colonoscopy I was a mess full of inflammation and a stricture but at this moment I will tell you I absolutely have no pain. I am so sorry for the people that do.
 
I've seen diagnosed for 18 months now. Never had any pain at all. Just urgency, and diarrhoea with blood. Doc said it was quite strange.
 
Now my problem is traveling. As soon as I get into a car and head out of town my bowels go crazy. Any suggestions on something to take to allow me to drive but not have to go to the bathroom? Thanks.[/QUOTE]

I get up 2 hours before I have to leave the house. I drink some coffee or hot tea. This usually gets me flying to the bathroom. I take a couple of Lomotil (I may have spelled that wrong). Then I am ready to hit the road.
 
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Wow so there are other people out there like me!!
I was diagnosed 7 years ago.......never have pain unless it's a bad bad bad flair and that's only happened once. It's usually the meds that reck more havoc than the disease. I've asked several different gi docs why I have no pain and no one ever gives me an answer. They always skirt around the question. Just had a colonoscopy last month, routine.....came out with the doctor standing there telling how bad of a flair I was having and that the Liada was not working and i need to start humira. Huh? He said he will have to blood work every three months. Not complaining about no pain but on the same note I never know how bad things are in there or if they are getting better.
Is it really that I have a high tolerance for pain? Seems like there should be a better answer especially after I saw the craters that formed in my colon.
Michelle
 

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