Isolated Perianal Crohn’s - new here

[lyonr37]

Hi all, new here and I am curious if anyone has been diagnosed with a similar presentation of Crohn’s disease. I have officially received the diagnosis from both my gastroenterologist and colorectal surgeon. Interestingly, I do not have severe gastro problems. I have had clear labs, blood and stool, and I had a normal finding colonoscopy. Unfortunately, I am battling a complex horseshoe fistula along with recurring abscesses that had me undergoing 4 different procedures in less than a month. I currently am living with 4 setons (and counting) to drain these buggers. According to my doctors, my inflammation is specific to my rectal area so I do not have the stomach issues most crohns patients would - just these perianal complications. I’m a 34F otherwise healthy and active person prior to all of this. I start inflectra infusions stat and I am also curious what to expect with these infusions. I appreciate any advice, support or input anyone may have as I feel very alone and very frustrated by all of this….

 

[MrWheat]

My UC turned into perianal crohns went through a hell 18 months failed a year of Stelara had like 7 setons switched to immediate high dose of remicaide without another drug way way better down to 2 setons and one should be removed next year.

Get a doctor who follows the latest science higher start doses seem to be better than stepping up.