Isolating what is causing pain (fissure, fistula or abscess)

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Joined
Aug 8, 2013
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Hi everybody,

I'm opening this thread because I'm really confused with the pain I'm bearing and I'm seeking people who had the same experience and might help to isolate the cause of my pain.

That's my experience. I was diagnosed with Crohn's 15 years ago. In the beginnng I had no other perianal issues than a couple of fissures with the unique symptom of bleeding during constipation periods but without any sort of pain.

Almost a year and a half ago I started to have some discomfort in the anus with a bit of purulent discharge (no bad smell). After some months of evolution it started to hurt badly, starting an hour after deposition. When I talked to my GI he ordered a MRI and observed the existence of a complex fistula, fissures and an abscess.

To summarise a bit, until now I had surgery four times, with 5 chronic-setons implanted and two natural fistulas opened. I still have some abscess-like pain in a region, natural fistulas sore-like pain (I have another pending surgery for that)… and the pain after going to the toilette which follows an 'increase-decrease' pattern beginning one hour after deposition, peaking at about 3-4 hours and ending in 6 hours or so.

And it is this unidentified pain what is driving me mad. I talked to two surgeons and a couple of GI and they sometimes tell me it is an unresolved abscess and others that it's a fissure. The case is that neither Rectogesic, another cream nor the surgeries seemed to succeed in easing that pain (whereas all the others evolved in some sort or another).

So in the face of another surgery I'm a bit depressed because I'm fearing they are not going to resolve it… and definetely there is something to solve there (in a moment of desperation I managed to touch it and I know where the problem is).

So if anybody had similar experience I would be extremely grateful for any advice about it.
 
I had one bout of fistulas that were caused by mycoplasma Pnuemonia. Normally this affects the lungs but it can move into the intestinal tract.

In spite of IV and oral antibiotics it came back recently. Not wanting any more surgery I used an alternative treatment to kill the mycoplasma. Unfortunately, the treatment is rather involved and requires special equipment.

You can have them test for this. There also could be more than one cause but mycoplasma is one cause.

Dan
 

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