- Joined
- Apr 1, 2011
- Messages
- 107
it was supposed to all be in my head, turns out it was in my ileum : (
hi, im 27 have been affected by crohns most of my life but only diagnosed for the last 2 years or so.
Since I was a child I had been referred to as lazy and a hypochondriac, this occurred as a consequence of me always disappearing to the toilets after a meal and because of regular childhood trips to the Dr's regarding phantom "rumbling appendix", though I was often told i was making it up or imaging it, this continued throughout my childhood and I suppose the making of my belief the pain was psychosomatic.
I never regarded myself as a sickly child, I did Jujitsu until I was 16, I only stopped because I found the pain in my side was aggravated when it was struck and when I stretched, at this stage the day to day pain and the symptoms were less severe than they became, nothing icky at this stage, just a mild feeling I was being eaten away from the inside. when I told my Dr about the feeling I was told to do some exercise and put some weight on, I found this response underwhelming.
Leaving school seemed to help a great deal, i was bullied so maybe that's a factor, I have always been underweight despite having a good appetite back then but my reluctance to play certain sports I think alienated me in a school that had a strong focus on sports.
for a few years my symptoms were mild, i had a very busy social life and i remember feeling alive, i worked initially after leaving school, I wasn't ready for college after my issues with people at school and I wanted to travel and visit friends I had lost contact with after moving to east kent.
The so far un named pain became much more prolific when i was 19/20 while attempting to study, I had to travel in an hour early so I could use the disabled toilet that was a single cubicle so I would not be interrupted nor feel self conscious of the special smells that crohns empowers some of us to "create", I have to admit though as the pain progressed I found it harder and harder to pay attention in classes, sometimes i simply couldnt face it and went to the park and slept, the college was 15 miles from my house so the trains and the pain and the need for a toilet ended up causing me to fall behind, my Dr at this stage was still telling me there was nothing wrong with me and that the symptoms were probably nervous, i began at this stage cutting ties with friends whim i seemed to be in more pain around so as to prevent my mind from causing the pain !!! FAIL
I had lost a lot of faith in my Dr at this stage and had hoped that my problem was IBS, and proceeded with many diets between first feeling
It was another failed college course and i think 2 years of working at a tiny shop after having given up on education, before blood decided to make an appearance along with daily, excessive and volatile diarrhoea, things were, if you will, getting worse.
diagnosis followed a Colonoscopy, barium meal Endoscopy then the Barium meal again, now, finally i had been diagnosed, yay : (
but its better to know what's wrong than to believe its all in your head.
so i have tried Pentasa , multiple steroids, Cholestyramine, calcium supplements and a bunch of other meds that I cant spell, everything has been to negligible effect and it seems as though if the liquid diet is my last hope before a resection : (
so anyway, to now, finances is the biggest problem, college was a fail because of crohns, if I had known what was wrong it would have been a damn site easier to get relevant help and possibly have left with a better education, atm i find myself working towards anything I can do from home, im self learning web design and data entry and attempting 3d modelling, my first website has been published though is nigh on impossible to find, search engine optimisation is a skill ill be learning : D internetbusker is casically the name,
ill be updating this page as I make more progress and i would be happy to answer anything if I can help anyone else. thank for reading, be well.
ps today has been a bad day, i knew writing this i would feel bad as i did so, ive tried to keep details down and keep it as light as possible for myself and those reading. i wll be editing assuming the ability exists on this forum.
http://internetbusker.webplus.net/index.html this was my first attempt at making a website, am currently working on another explaining how some of the online scams work (namely ones i fell for) to try and help people avoid the mistakes i made.
hi, im 27 have been affected by crohns most of my life but only diagnosed for the last 2 years or so.
Since I was a child I had been referred to as lazy and a hypochondriac, this occurred as a consequence of me always disappearing to the toilets after a meal and because of regular childhood trips to the Dr's regarding phantom "rumbling appendix", though I was often told i was making it up or imaging it, this continued throughout my childhood and I suppose the making of my belief the pain was psychosomatic.
I never regarded myself as a sickly child, I did Jujitsu until I was 16, I only stopped because I found the pain in my side was aggravated when it was struck and when I stretched, at this stage the day to day pain and the symptoms were less severe than they became, nothing icky at this stage, just a mild feeling I was being eaten away from the inside. when I told my Dr about the feeling I was told to do some exercise and put some weight on, I found this response underwhelming.
Leaving school seemed to help a great deal, i was bullied so maybe that's a factor, I have always been underweight despite having a good appetite back then but my reluctance to play certain sports I think alienated me in a school that had a strong focus on sports.
for a few years my symptoms were mild, i had a very busy social life and i remember feeling alive, i worked initially after leaving school, I wasn't ready for college after my issues with people at school and I wanted to travel and visit friends I had lost contact with after moving to east kent.
The so far un named pain became much more prolific when i was 19/20 while attempting to study, I had to travel in an hour early so I could use the disabled toilet that was a single cubicle so I would not be interrupted nor feel self conscious of the special smells that crohns empowers some of us to "create", I have to admit though as the pain progressed I found it harder and harder to pay attention in classes, sometimes i simply couldnt face it and went to the park and slept, the college was 15 miles from my house so the trains and the pain and the need for a toilet ended up causing me to fall behind, my Dr at this stage was still telling me there was nothing wrong with me and that the symptoms were probably nervous, i began at this stage cutting ties with friends whim i seemed to be in more pain around so as to prevent my mind from causing the pain !!! FAIL
I had lost a lot of faith in my Dr at this stage and had hoped that my problem was IBS, and proceeded with many diets between first feeling
It was another failed college course and i think 2 years of working at a tiny shop after having given up on education, before blood decided to make an appearance along with daily, excessive and volatile diarrhoea, things were, if you will, getting worse.
diagnosis followed a Colonoscopy, barium meal Endoscopy then the Barium meal again, now, finally i had been diagnosed, yay : (
but its better to know what's wrong than to believe its all in your head.
so i have tried Pentasa , multiple steroids, Cholestyramine, calcium supplements and a bunch of other meds that I cant spell, everything has been to negligible effect and it seems as though if the liquid diet is my last hope before a resection : (
so anyway, to now, finances is the biggest problem, college was a fail because of crohns, if I had known what was wrong it would have been a damn site easier to get relevant help and possibly have left with a better education, atm i find myself working towards anything I can do from home, im self learning web design and data entry and attempting 3d modelling, my first website has been published though is nigh on impossible to find, search engine optimisation is a skill ill be learning : D internetbusker is casically the name,
ill be updating this page as I make more progress and i would be happy to answer anything if I can help anyone else. thank for reading, be well.
ps today has been a bad day, i knew writing this i would feel bad as i did so, ive tried to keep details down and keep it as light as possible for myself and those reading. i wll be editing assuming the ability exists on this forum.
http://internetbusker.webplus.net/index.html this was my first attempt at making a website, am currently working on another explaining how some of the online scams work (namely ones i fell for) to try and help people avoid the mistakes i made.
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