I feel like my story is so new, and yet so old. I've always had a "bad" stomach. I remember my dad getting mad at me when I was in elementary school because I would spend so much time in the bathroom. I wasn't fixing my hair.
I got my first kidney stone when I was 20. Since then I've had 13 stones with three lithotrypsies. They could never figure out why I was making them. For the past few years I've had more and more stomach trouble. I thought I was just allergic to certain vegetables. This past summer it started getting worse. I wouldn't be able to eat anything but crackers for a few days in a row and would spend a lot of time in the bathroom with very painful cramping. I mentioned this to my family practice doc. and he referred me to a GI specialist. When I mentioned some joint pain in my initial visit she automatically brought up Crohn's Disease and ordered a colonoscopy (Oct. 2010). They found some "erosions" in my terminal ileum and my bloodwork was "consistent with Crohn's Disease/IBD." Still, my GI wasn't satisfied. She kept mentioning that it could be from my occasional use of ibroprofen-which I don't take anymore. Really? Since then I have been getting sicker and sicker. I haven't been able to eat a normal meal since Thanksgiving and have dropped quite a bit of weight (for me). I'm down to 105 lb. and the pain is getting so bad I've had to take Percocet to get through it.
Last week the doc. prescribed "Entocort" and I've taken it every morning, but have only seen my symptoms get worse. I have been basically bed-ridden and my mom has taken my 2 year old daughter to her house while I sleep the days away.
I don't know anyone who has Crohn's, so I'm feeling a little lost and overwhelmed. Should I stick it out with the doctor? Am I just being impatient? I feel like I'm wasting away. My Christmas wish is to be able to eat!
Thank you for reading my long story and for understanding!
Jeri
I got my first kidney stone when I was 20. Since then I've had 13 stones with three lithotrypsies. They could never figure out why I was making them. For the past few years I've had more and more stomach trouble. I thought I was just allergic to certain vegetables. This past summer it started getting worse. I wouldn't be able to eat anything but crackers for a few days in a row and would spend a lot of time in the bathroom with very painful cramping. I mentioned this to my family practice doc. and he referred me to a GI specialist. When I mentioned some joint pain in my initial visit she automatically brought up Crohn's Disease and ordered a colonoscopy (Oct. 2010). They found some "erosions" in my terminal ileum and my bloodwork was "consistent with Crohn's Disease/IBD." Still, my GI wasn't satisfied. She kept mentioning that it could be from my occasional use of ibroprofen-which I don't take anymore. Really? Since then I have been getting sicker and sicker. I haven't been able to eat a normal meal since Thanksgiving and have dropped quite a bit of weight (for me). I'm down to 105 lb. and the pain is getting so bad I've had to take Percocet to get through it.
Last week the doc. prescribed "Entocort" and I've taken it every morning, but have only seen my symptoms get worse. I have been basically bed-ridden and my mom has taken my 2 year old daughter to her house while I sleep the days away.
I don't know anyone who has Crohn's, so I'm feeling a little lost and overwhelmed. Should I stick it out with the doctor? Am I just being impatient? I feel like I'm wasting away. My Christmas wish is to be able to eat!
Thank you for reading my long story and for understanding!
Jeri