Joint Pain

[Snookums]

Hi all, its been a while since my last post. I am experiencing some new symptoms in the last fortnight or so and would like to hear some advice on treatment or from others who are experiencing the same. My joints have been quite achy and sore for the most part but in the last fortnight they have become extremely swollen and inflammed and red. They are so painful, my hands are so sore and its making the day to day things i need to do very uncomfortable. I cant open things or turn taps on and off as they are really hurting. I have left a message at the hospital with my doc to discuss my options in regards to treating this but she has not yet returned my call. im desperate for some sort of relief from this pain. thanksx

 

[xX_LittleMissValentine_Xx]

Hello,
Sorry to hear this it sounds like you are going through a hard time. I don't have any experience with joint pain but I know some on here do. Hopefully they will be able to help you out with some ideas.

 

[araceli]

Hi Snookums. It can be due to many things. Medicine (some have that side effect), Flare Up. Or some people develop arthritis. Any natural remedy like tumeric will take 7 days or more to work. Try a cream, gel or ointment for arthritis, anything with Capsaicin or menthol. Just my opinion. Better to ask your doctor. Hope you feel better soon.

 

[xSophiexx]

Swollen red joints could be rheumatoid arthritis see your doc who may look to refer you to a rheumatologist. i hope you feel better!

 

[Essieluv]

Are you on any medications for your IBD? Sometimes meds can cause joint pain as a side effect, or even if you are tapering off of a medication. Also, this is pretty rare, but you could get drug-induced lupus from certain medications. I have this from Humira. You should probably be tested for RA, lots of people with IBD have it as well. However, sometimes IBDer's just get joint pain with their flares, even if it isn't arthritis or lupus. I hope you can get this figured out, joint pain is not fun! God bless.

 

[PVail]

After i started with Asacol a couple of years ago I got really achy joints . Ankles and wrists were the worst accompanied with head aches. My doctor sent me to a pain clinic and I was put on Amytriptyline. I know this is a anti depressant but it apparently it has some value a pain relief in IBD and IBS. Well eventually the joint pain reduced weather it was the Amitryptyline or my body getting used to the Asacol Im not sure. It is hard for me to say if the pain is symptom of IBD or the Meds but I had to weigh up the options. The meds greatly reduced my IBD symptoms and along with the pain relief made it possible for me to start getting some sort of normality back . Not sure if this helps but I would definetly visit your doc or IBD nurse or even Google your meds and see if the pain is attributed to what ever your taking, it s is possible. after all your feeding your body with a drug which is not natural to you then there can be side effects .
Anyway I hope you can get some relief soon.

Peter.

 

[Snookums]

Thank you for your responses. After a urine test, a couple of blood tests and a trip to emergency they r diagnosing me with medical induced lupus. As if one autoimmune disease wasnt enough to try to manage....here you go take another one. oh well, take each day as it comes.

I am taking mercaptapurine and was having eight weekly infliximab infusions. The concern i have now is that the infliximab, which has been the only thing thats actually been able to manage my crohns to date is now not going to be an option. They have to cease giving me the infusions. That thought is quite scary as inflix has actually made life a lot more normal. I have an appointment with the immunologist next week to discuss all of these concerns and to find an appropriate management plan.

For any of those out there who have experienced this, the pain is unbearable. I have been unable to walk due to the stiffness and soreness in my joints. I am feeling better in the sense that my shuffling is a lil quicker today. I have a major belly ache tho. Also the other crohnnie with the lupus Im interested to know how they treated you for the lupus. take care all and have a good day. Hubby is just dropping my daughter off at school and im chillaxing for the whole day. x

 

[Essieluv]

My doc suspected drug-induced lupus, so I was taken off of Humira. I have been monitored by my rheumatologist, but besides this, I have not had any treatment. I think they are just waiting for Humira to get fully out of my system and see if the symptoms disappear.