Just found out...

[Vivvian's Mommy]

Has anyone got news like this?I sadly just found out that my body is wearing out so fast that they say I am not going to be able to really take care of myself,that I will need lots of help by the time I am 30.My bones have started to deteoriate again at a fast pace for whatever reason.I have severe back pain and found out that 2 of my lower disc are protruding.Also that my kidneys are both now located on my right side,one above the other and I am now more keen on getting kidney infections and stones.They said that my daughter Vivvian will be the only child I am allowed to adopt.I wanted more,so this saddens me.I love my baby girl though she is a blessing and a joy to have.Just not the greatest day in my life right now other then finding out I had Crohn's and UC.

 

[Crohn's 35]

Sylvia, I am so so sorry sweetie. That must be scary for you, and in pain. That is a first I have heard of the kidneys being on the one side. I know about stones , had 4 and they were not passable, that is pain enough. I am lost for words for you, and all I can do is send big hugs (((((Hugs))))). That just makes my life not even comparable to your body problems.

I hope you can deal with all this, one day at a time.

 

[Vivvian's Mommy]

Ahhh...yeah I have had 3 kidney stones before.That hit all at once.One second I was fine and the next I was in such pain I couldn't even drive.Yeah I was driving when it happened.I called my husband who was in the ARMY at the time and his 2 medic buddies who were staying with us to get me.They rushed me to the Military base hospital.They made me wait 6hours without being checked and said I had another 8 to wait.I had a temp.of 98.9 my normal being 93.5...They said on my papers left without being seen which was true.Saying I was in no distress and no temp. an entire lie.We went a hospital off base and I had a temp.of 103.9 and they seen and checked me out within 4hours.Last Dec. I ended up with renal failure and put in isolation where I couldn't even see my 2 month old baby for almost a week.They don't even know what happened then.They said something about having so many surgeries that my kidneys may have got moved around in there.But you are right taking it day by day like I have since I was 12.Have to have a smile on my face for my little Angel.I want her to know if something ever happens her Mommy was a Survivor and never stopped doing just because someone told me I couldn't.:smile:

 

[BLM]

Sylvia, it saddens me to hear of your situation. I cant even imagine those kinds of words coming from my drs mouth. Drs are NOT always right, and you have to think positive!! Positive thoughts and not giving into what they say will keep you going longer than you know, you have to belive in YOU and dont live the way they say you will be.....You can do it, the mind is stronger than we give it credit for~ Lots of positive thoughts for you and your family Sylvia, and your in my deepest of prayers!! Big Hugs~

 

[Vivvian's Mommy]

Yeah I was giving till I was 18 then until I was 22 by different Docs. because of internal bleeding.I am 25 now...they didn't give me a deadline just that I am not going to be able to do for myself.I am pretty determined to do as much as I can for my family and I without help.I give a lot of credit to my husband though for all that he has been through with me and still stuck by my side even when he was deployed and couldn't be home for me.He always called and stood up to the ones that gave him such a hard time on my medical problems.If it wasn't for him I wouldn't even have the beautiful little girl we have as our daughter.So if we can't adopt any more thats fine at least we had the chance too before I got any worse.

 

[dreamintwilight]

Sylvia, I'm sorry to hear about your situation. I cannot imagine how that would feel to get news like that. I'll be thinking about you and praying

 

[donna martinez]

Sylvia, have faith, pray, there might not be a cure for what we have, but believe in the power of pray and spiritual healing.

 

[Guest]

aw Sylvia, big hugs hun

life sucks so much for some people - it just isn't fair. i guess all you can do is take care of your body as much as you possibly can, get all the bone-strengthening treatments there are out there, and enjoy your daughter & hubby every day.

it's a helluva wake up call to receive news like that, but i know attitude can play a big part where illness is concerned, and it sounds like you've had plenty practice at having a determined and hopeful one - keep it up.

 

[Pincushion]

Sylvia (((hugs)))

I am so sorry to hear your news

You are in my thoughts and prayers.

Christina xx

 

[reidyjo81]

So sad to read this and I know no words can make this any better. But please be positive and keep strong, determination is half the battle. Enjoy your hubby and daughter everyday and I know they will look after you xx

 

[Jeff D.]

Sylvia, I'm so sorry for what you are going through. I will be keeping you and your family in my daily prayers. Take care

 

[Vivvian's Mommy]

Thank you for all your prayers and thoughts they are well needed.On a happier note my daughter is now starting to walk better with assistance and even went to the potty on her potty chair.She is only 9months and is already doing so much.She says I love you and Outta here and Like that? She is such a little ham and we got her nine month pics done so those will be in my album come the 15th.Also just found out today my sis in law is getting married on the 24th and I am to stand up for her in her wedding and she is wearing my wedding dress.I feel so honored and happy about it.

 

[MapleLeafGirl]

Sylvia - I will be thinking of you often and hoping things improve. As others have said, doctor's aren't always right. Keep a positive attitude. You have lots of love and support on here.

 

[Becky]

So sorry. You are in my prayers

 

[whysoserious]

I am so, so sorry to hear that Sylvia. I can't imagine receiving news like that.

 

[Sue-2009]

I will keep you in my prayers. Sue

 

[ameslouise]

Sylvia - Your daughter sounds like a delight and smart as a whip (talking at 9 months!!). I know you will be strong for her.

I think Docs like to give "worse case scenarios". Lots of people beat the odds everyday. With your support system and positive attitude you might just be the one to show them how much you can overcome.

Hang in there and keep on taking it one day at a time.

- Amy