Just really sad and don't know whats normal?

[social me]

Thank God for this site or I would feel horribly alone. I have been diagnosed for 3 months but sick for 2 years. I am so tired all the time I sleep for 8 hours then I get up get daughter off to school then sleep for another 2 to 5 hours. Wioth the rest of the time spent awake in bed. My week seems to be like this 2-3 good days which means I have some energy to leave the home or even just sit in the yard and watch my kids and help with dinner. The other 4-5 days I lay in bed most of the time sleeping, having bad cramps, vomiting or having a headache, also my brain feels in a fog much of the time which makes concentration hard.
It has been this way since the symptoms started after having emergency c section after our only biological child was born. They think that trauma triggered Crohns. Is this normal? To feel so tired that its hard to even clean your kitchen or bedroom, hell even walk around the house outside. I am scared because summer is coming my husband is a teacher and does real estate. My kids and husband will be home this summer and when I cant feel helpfull to my husband or there for my kids at the pool or park I beat up on myself and feel left out. I can tell myself to be kind and gentle and not beat up on myself but that doesn't take away the sadness I feel from all the things I miss out on. I have been so sick for 2 of the 3 years my son has been alive and I have already missed out on so much please God don't let me miss out on more special times with my children. God please hear all the prayers of those that struggle with any illness physical or mental. God be with us. :ghug:

 

[Cat-a-Tonic]

Sorry to hear that you're so down. Have you had any bloodwork done lately? I see from your sig that you're on B12 shots, have you had your iron levels checked? Anemia might account for your fatigue. As for the trauma of a c-section triggering your Crohn's, it's entirely possible. I personally think that I got a virus that triggered my illness - when I first got sick, it seemed like gastroenteritis, but I never fully recovered. I've heard other stories on the forum too stuff like that so I think it's definitely plausible that something like giving birth or getting a bad virus could trigger this.

I hope you're able to get some relief and feel better soon. I don't have kids but it must be so hard to not have the energy to play with them. I know that I feel bad enough when I'm too ill to walk my dog! I wish I could offer more advice, but I can offer support and empathy. I feel for you, and you're not alone. Somehow you'll get through this.

 

[akanderson]

Hey Girl! I know how you feel. I've been there for a while. I'm still new here too and it is a relief to have this site. I feel horrible one days I can't peel myself outta bed as early as my 4yr old. She plays in my room and hers till I can manage to get outta bed. It sucks. I just graduated college and thank my lucky stars I did that. I missed a lot of school because after all days struggling to tend to my daughters I couldn't make it through school.

I totally get where you're coming from though. I beat myself up almost everyday and keep it held together till my girls are asleep. But keep your head up.

This is a struggle but your strong enough to do it. Mommas are strong people and if we can raise children we can fight this disease. Especially for our children.

HUGS!!

 

[Teresa T]

Sorry to hear you are going through this. I've never had any chicldren but I do have 2 chihuahuas male and female. They are my kids. There are days where I dont feel like getting outss bed,sleeping all day, walking to the bathroom or cleaning anything. Iwent to the doc and my potassium was really low. So her started me on prescription strenght potassium pills and if i take them every day like I am suppose to i feel more entergetic. Iagree with cat, you should have your blood levels check as soon as you can. It could be many things causeing your fatigue. I have a vitamain deficiency where i don't absorb my vitamins like i should. Hope you get to feeling better real soon..keep us updated if you want...God bless you!

 

[Astra]

I know how you feel!
My kids are all grown up now (19 and nearly 17) but when they were younger I was very ill.
But kids are so resilient, and they won't throw this bad time back in your face when they're older, they will always be there for you.
I feel that I wasted a lot when they were younger but I'm making up for it now by being there for them in times of stress, college, Uni and loads of exams. This is the important time in their lives I believe.
You sound like your immune system is running amok! Give the gastro a call, make an appt and discuss these symptoms with him. There are supplements that would boost your immune system and perk you up a bit.
And get your bloods checked too, like the others have said, deficiency would give you the fatigue
Things will get better I promise!
good luck
Joan xxx

 

[social me]

Thanks everyone. I have apt with my GI on Thurs. I will ask about another blood draw to test vitamin def. I know I am anemic but the iron was causing me to have an upset tummy which lead to vomiting since I have been off the iron pills the vomiting is better. I need somthing though. My doc just seems to have a lazze fair attitude about my treatment. So far I don't feel any better since the day I was diagnosed. I have given it thought to take liquid vitamins thinking that might help. Thanks too for the words of encouragment and sympathy. My thanks to all!:ghug:

 

[lola99]

I know how you feel about being tired. I have two small kids 3 years old and 5 months old. I got diagnosed with crohns two months after the birth of my 5 month old. I had symptoms for years though (5-6years). I spent three days in the hospital and thank god it was on the weekend because who would have taken care of my kids while my husband was at work. I had an emergency c-section with my first son but I didn't flare up at all after that my symptoms just stayed the same. But when I had my 5 month old I had a third degree tear that my stiches pulled apart and i was in really severe pain. I was taking tons of pain meds and was just crying none stop. Who knows maybe the stress of that made me flare up. I know being potassium defiecient can make you tired. I am taking potassium right now because predisone causes you to be low. Kids are exhuasting and i count the hours till my husband gets home. In my experience if you aren't comfortable with your doctor its always worth your time to find one you are comfortable with. I switched obgyns half way through my pregnancy and drove an hour to my visits. My gastroentrologist I have now is okay but he doesn't have much of a bedside manner and he wants me to be on entocort for 2 years which concerns me. So i've thought about seeking a 2nd opinion coudln't hurt.

 

[social me]

Lola, Thanks for your response it helps to hear other mothers who stuggle, I am sorry that you to have problem with being tired. This summer has me nervous, long days at the pool or playing at a park. The heat wears me out and I havent been eating much lately so I am more tired then normal, doc is starting me on an iron infusion he said that should help since the pills didnt seem to work as I am extremely anemic. I will look into the potassium. Thanks and I hope you feel better soon.