Just so upset

Crohn's Disease Forum

Help Support Crohn's Disease Forum:

Joined
Apr 27, 2012
Messages
180
I'm currently in the hospital for a bad flare and c diff. The abdominal pain is unbelievable. Worse than what I've experienced with kidney stones...so I've been taking Dilaudid & Vicodine because I simply can't tolerate the pain otherwise. I'm 20 weeks pregnant so obviously this is a concern.

Anyways tonight the pain has gotten the worse it's been and I was screaming in pain. The nurse takes her sweet time despite me calling several times that the pain has gotten worse. So she finally brings me the meds and lectures me on watching what I take because of the baby. Really? Make me feel like a shitty Mom when I'm in the worst imaginable pain of my life? I'm just so upset right now. Obviously I'm worried about my baby she didn't have to rub it in but I do t know what else to do! And what angers me most is the pain didn't start getting bad until a nurse yesterday made a med error and gave me another patients medicine in place of my pain meds causing my pain to get to a point where it was uncontrolled either due to the wrong medicine or the extended period I went without anything. I feel so overwhelmed by this whole situation and just didn't need her lecture. Not right now. Not when I feel this horrible. And the icing on the cake was she told me c diff isn't painful. I don't know much about c diff and even if it's not painful I don't appreciate her making me feel like I'm not in pain
 
Oh, sweetie. I feel you. I've been struggling with a flare and c diff for two months. It's just awful. I've been home for weeks in a Vicodin-ey haze... I can't imagine what it would be like if I was expecting on top of it. Do they have you on anything for the c diff? I'm taking Flagyl - things have been getting better, albeit very slowly.

Just wanted to let you know that I'll be thinking about you and that I hope things start to get easier soon.
-em
 
*hugs* That really sucks!!!! I definitely feel for you. I'm in the middle of a flare of something and I'm stuck in a hotel room, far from home. Blah! Still, I can't imagine being pregnant in top of everything you have going on! Try to keep your head up and don't take what that nasty nurse said to heart!
 
Oh, sweetie. I feel you. I've been struggling with a flare and c diff for two months. It's just awful. I've been home for weeks in a Vicodin-ey haze... I can't imagine what it would be like if I was expecting on top of it. Do they have you on anything for the c diff? I'm taking Flagyl - things have been getting better, albeit very slowly.

Just wanted to let you know that I'll be thinking about you and that I hope things start to get easier soon.
-em

Em6263...they started me on Flagyl today. I'm sorry you're going through this too! Can I ask how long we're you on the antibiotic before you started feeling better? I'm desperate for relief :( I'll more than likely have a scope in a few days to check on the flare and hopefully get Prednisone to help too.
Thank you both for the support. This is hard.
 
I am so sorry you are having touble with the medical staff involved in your life. I to am in central texas and I hope its not MY hospital that made the medical error!! But, I know how much this happens.

I hope you feel better soon, I wish there was some way to help you!

Lauren
 
Oh no!!!! I've been checking up to see how you're making out, and sorry to hear its still rotten!!!! Big hugs, and some extra prayers and karma too.
 
Hiya.

Unfortunately, I've been on flagyl for about three weeks, and am just now starting to feel sort of like a human being again. My situation is a bit different, though, because I was ust diagnosed with CD immediately before testing positive for the c diff (had tested neg previously), so the CD hasn't really been treated yet - doc doesn't want to start steroids, etc. till the c diff is gone. Plus, everyone responds to these things differently.

I know it's a huge drag, but it's probably for the best that you're in the hospital so the can keep a close eye on it - I'd imagine they'll start you on something else (vancomycin?) if you don't respond to the flagyl pronto.

Thiking about you, and really, really hope that you come out of this sooner rather than later, sweetie.

-Em
 
I probably would have thrown a fist or two if I were you! Some nurses really have no bedside etiquette, and that's coming from a nursing student hehe. Her added stress along with the medication mix up could make a flare even worse. Hopefully you will start to feel better soon, and just try to keep relaxed.
 
Em...yikes 3 weeks?? They did start me on vanco in addition to Flagyl. They're trying to be very aggressive with treatment. They are holding off on treating my flare also until the c diff is gone and aren't going to do a scope until its cleared. They're hoping they can try to at least do an endoscopy tho since I was vomiting blood. They switched my pain meds to fentanyl which seems to be helping but the pain is so severe! I have horrible wretching gas type pains esp after I eat.

I had the mean nurse again last night who once again didn't want to give me my pain meds!! Apparently she thinks she knows better than all the doctors and is self proclaimed herself as my baby's advocate wtf. I was cryin in pain and she felt the need to call the dr because she wasn't confortable giving me my pain meds despite them being 3 hrs past due because in addition to being mean she is also slow. The dr said to give me my meds. Well every time I asked for my meds she lectured me on the safety of my baby. I had previously talked to the OB about it and she assured me that the meds were ok and Fentanyl is given during labor and being in pain is worse for baby than taking the meds. I told this to the nurse and she was like "hmm."

Whatever. The dr today even made the meds available even more often so I really hope I don't have her again!!
 
How terrible. I don't understand why anyone would compound someone's misery like that. As though you're there for fun and games. Not only does she not have any bedside manner, she is obviously uneducated about the disease. You're doing the right things. The best thing for your baby is for you to take care of you, otherwise your body cannot give the baby what it needs and then you're no good to either of you. Find comfort in knowing that. Keep us posted!
 
I think I would have to mention it to the head of the nursing dept. or the doctor. Especially if she is your night time nurse. I think that is just awful. I would stress to the doctor that "the nurse has me feeling guilty for the pain meds you have prescribed and along with that comes stress and it is exacerbating my pain, I felt comfortable taking the pain meds after talking to my ob but every time the nurse is assigned to me she reiterates her discomfort and lectures me on the safety of my pregnancy, could you please have someone speak to her about this as it is upsetting me and having ill effects on my already precarious health!"
Sorry just venting for ya there:lol2: I really do hope that the flagyl and vancomyacin quickly take care of the c diff and you are able to go about the scope and treatment to get you to optimal health during pregnancy!! Sending prayers and good thoughts your way!!
 
OK. That nurse has never had c. diff. I was being treated for something else and obtained a secondary infection (c. diff). I had a really resistant strain and had to be on potent antibiotics for months (don't mean to scare you though). I actually had to convince my doctors that I had it while in the hospital so that is partly why I think mine got out of control a little. Plus, the strain I had was antibiotic resistant; actually growing in the presence of another antibiotic. That might not make any sense but some bacteria (a few) will start to thrive in the presence of certain antibiotics. However, most c. diff is effectively eradicated with flagyl, sometimes in conjunction with another antibiotic.

I was in pain for a little over a week and then the pain went away. You should request a different nurse. In addition to antibiotics, have your doctors mentioned probiotics? Not sure you can take them if you are pregnant though. From what I've learned sometimes saccharomyces boulardii can help lessen the infection or even help eliminate it. I'm so sorry that you are having to deal with all of this.
 
Thank you everyone. I ended up having her again tonight :( tonight she didn't withhold my pain meds as she had previously done. She did fuss at me though because I was drinking a coke becAuse I had a headache!! Seriously?!

I still don't feel any better :( been on Flagyl since Sunday and vanco since Monday. Desperately waiting for relief because this is miserable!!
 
Hey there girlie! i just saw this thread. I would seriously complain about that nurse and ask that she not be assigned to you. That is ridiculous that she is being that mean.

I'm sorry you are not any better, that is just miserable :( Here's to hoping you get better soon and get some much needed relief from pain.
 
Request another nurse honey. She shouldn't be making you feel crappy in already a hard situation. The doctor prescribed the meds so she really can't say much
 
Back
Top