Keep your head up

Crohn's Disease Forum

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Joined
Feb 23, 2011
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:ylol2:I am so happy with myself for joining this forum, now i can talk 2 people from all over the world who understand everything im going through. Having crohns can be scary cause u dont know when your next flair up is gonna be but also annoying because you have to base your life round a toilet! I must spend more on loo roll a month then what i do on my rent:lol2: The 1 thing i have come 2 understand is that our bodys do not go by a book, i have had some arguments with my consultant over the years over this & he has come to understand that i am not the same as his previous patient, we all suffer in different ways, yes they have studied about ibd but its us that have 2 live with it day in day out!! You know your body best.. To everybody out there that has ibd keep your head up, i know its hard but hopefully 1 day soon they will come with a cure:hug:
 
Hi Rebecca, and welcome!

I like the positive attitude! I struggle to have one of those a lot of the time ;) Sounds like you're standing up for youself which is good to hear, I'm very lucky as my GI has the exact same feelings towards the disease as you do! What's your current status in terms of health and treatment ect? Hope you're doing okay :)
 
Not 2 good

Hi ian.. at the moment im not doing well. I have been put back on prednisolone 50mgs severe weight loss & thining of the bones. my treatment is azapriothine, b12 injections, codeine phosphate, loperamide, buscopan, asacol, mebeverine & morphine if i need it, i have also had 3 bowel resections. i have a fantastic consultant where i live in cardiff who is trying everything he can to stop me from going under the knife again for operation number 4! Hopefully things will get better.. I always try to stay positive:cool2:
 
Hi, Rebecca and welcome! Don't think I can say anything differently than you or Ian, just wanted to say hi. Hi! ;)
Michele
 
:ylol2:The 1 thing i have come 2 understand is that our bodys do not go by a book, i have had some arguments with my consultant over the years over this & he has come to understand that i am not the same as his previous patient, we all suffer in different ways
Welcome, Rebecca! Well said, missy! We are all different with our disease, and we can learn a lot from one another. And what a great place to do it! Lots of great information around here. And I hope you hang around awhile - I love your positive attitude!
 
Welcome Rebecca! Sorry you are not feeling to well right now. But I agree that a positive attitude goes a long way toward recovery.

Have you tried any of the biologics like Humira or Remicade?

Hope you enjoy our forum - there's lots of great folks on here with good advice and tons of experience!

-Amy
 
Welcome Rebecca!.....as you will find, so many people have had different experiences with their doctors - hope everything works out for you - and hope you find a lot of support and information here!
 
Sorry to hear you're suffering right now, glad to hear you've got a good consultant looking out for you though. Unfortunately this isn't the case for everyone! Keep us posted on how you're doing, hope you're feeling better soon!
 

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