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Farmwife

Farmwife

Joined
Apr 28, 2012
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We'll I guess I'll just write in this thread, instead of make new ones each time.

We went hiking today and of course many of you know how it ended.:facepalm: I held onto my 5 yr. old boy's hand and tried to convince him he was going to live and I won't let a bear get him.:runaway: My husband put Grace on his shoulders because thats how Princesses hike.:queen:
We had a good time until..... the ride home.
It started with Grace's right knee pain, then belly pain soon followed. She had a couple of minutes of right eye pain.
For the first time ever I thought to ask her, if her knee does any thing else. She pointed and drew down her leg into her big toe. Any thoughts about that? I know about EIM's. I was wonder if any one else has that traveling pain that shoots down the leg and why? I hate to say it but she seems to be going backward a bit. Oh well, par for the course.
:heart:I'm just glad to have her the way she is; then not have her at all.:heart:
I hope you all have a good week-end.:Flower:
:soledance:Farmwife
 
Well at least you made it home before the bears got you :). Sorry to hear she isn't feeling good (funny how for alot of these kids the healthy things aren't as good for them - salads, uncooked veg, loads of exercise) but at least you all had a nice time till afterwards. As for the leg pain, I'm not sure but I would think that all nerves running down the leg must go through the knees so if her knee is inflamed it might be pressing or irritating one of the nerves that runs to her big toe. Hope she feels better.
 
Oh no - so sorry she seems poorly again, poor her and poor you - I hope things improve again soon - as Sascot says - at least the bears didn't get you (this used to be a frequent fear of my daughters - despite me repeatedly telling her there are no bears in England!!). xx
 
My kids should be glad they are not in South Africa where I grew up - the spiders alone would send many running for it, although funnily enough it was the itty bitty one with the red back you had to watch out for!
Just wanted to clarify - I didn't mean they shouldn't exercise just that they get tired and sore so much easier -probably because their little bodies are fighting their disease. My poor son managed to just go and stand and watch a football match yesterday and he was shattered when he got back. Wish I had my energetic boy back!
 
I don't know? Sometimes I think I would rather deal with a bear than a spider. :shifty:
I hate spiders!:runaway:

Well our Sunday did not go well. Grace by 10 had a fever around between 102-103. She has a cold. She's been trying to pee but can't. That's new. I thought UTI. However, no pain is showing up their. She had her first BM in 2 days. Hopefully things will straiten out. Tomorrow I have to take another stool sample for the doc to test for c. diff. I hope she doesn't have it again (3rd time). I'll sign off for now. Good night all.
:soledance:Farmwife
OH, that reminds me. Some one here said they can check stool for inflammation markers. What was the name of the test? Thanks again!
 
Farmwife,
Has she been able to pee? I would be concerned about that. Have her drink and if she still can't go in an hour you may want to take her to the ER. My youngest had a problem with UTI's for a while and thank goodness it seems to have cleared up.
 
Do have her checked out for UTI. My middle daughter was hospitalized at the same age with a kidney infection. Symptoms off and on fevers and vomiting.
 
Thanks every one. She (Grace) has no pain when she goes. She just says she has to go and can't. She acts as if it no big deal. She did go pee before bed and this morning. So she can go. On Friday we went to the doc and he took a sample and no UTI.
We wanted a blood sample but he said no because the urine sample was clear. Very frustrating!:ymad:
I think if her fever shoots back up we'll take her to the walk-in and at least we should get a blood sample and hopefully see what her numbers are at.

Farmwife
 
Hi Farmwife :)

So sorry Grace is feeling so rotten :(

I just want to add that if her urinating issues persist, you may want to take her back and insist on another urinalysis and bloods drawn. Sometimes a UTI doesn't always show up in the urine test right away, but will a few days later. Trust me, I have way too much experience with UTI's ! :voodoo: lol

Best of luck and I hope she starts feeling better quickly! :heart:
 
Look into interstitial cystitis, it is caused by inflammation of the bladder. I have had interstitial cystitis and the symptoms are exactly like a UTI but there is no infection present. Interesting thing is that I have read the interstitial cystitis can go along with Crohn's...

Hope Grace is feeling better soon.
 
Thanks Twiggy. Would a average urine test done IN a doc's office be able to show that! She had one on Friday and it was clear. I know a few (8-10 mo.) ago her urine had a trace amount of blood in it. They still haven't been able to say why.

Farmwife
 
Sorry no advice cuz no experience with EIM's (spit spit, salt over shoulder, knock wood). Just sending hugs to little Grace and hoping she feels better :hug:

Twiggy: Is there anything NOT associated with Crohns? :lol:
 
Hi all!

Well I think I'm on the verge of EN. Grace's symptoms are persisting. She now has a lack of appetite. 2-3 days of little food. Depressing:(
I don't know what's worse. Have a girl following me around like a puppy begging you for food or putting a piece of triple chocolate cake in front of her and her taking one bite and saying she's full. I wish I had the second problem.:lol:

So here's the question.
My doctor here is no help and we don't see the specialist until June. I'm thinking of starting it tomorrow. I'm going to just substitute it when she won't eat. Honestly I don't know what to get or what to look for in a drink or even what to do.
Any thoughts?

We also found out her bumps on her leg are called folliculitis. I'm going to ask if that's an EIM but I think I know the answer!:angry-banghead:


Sorry for the pitty party!
My hubby is just glad I get it out before he comes home. :lol:


Farmwife
 
So sorry she isn't feeling any better! It might be worth phoning the GI's secretary and asking if Grace can be put on a waiting list for any cancellations! I find if you keep nagging (nicely), things sometimes go a little bit quicker. Definately out of sight out of mind with alot of doctors.
I have no idea what EN drinks are around apart from the one we used here in the UK - it was Modulen, but you would need a doctors prescription and advice from the dieticians for that. Sorry I couldn't be much help with that. Maybe a pharmacist may be able to advise?
Having a pity party over here myself (Andrew still not great either)!
 
She's not on the cancellation list because my husband is a farmer and can only get certain days off. BUMMER!
Great idea about asking the pharmacist!

Sorry to here your at a pitty party too. :hug:
Your welcome to some of my triple chocolate cake and anyone else that what's to eat at the party can have some.:mario2:

Farmwife
 
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Oh my goodness! Move over girlfriends I am about to bust open the Nestle toll house cookie mix. Long story...maybe I will post elsewhere.

As for the EN...our doc went straight to Boost and Ensure...I know some might say too much sugar but that is what he uses...it is readily available (supermarkets and drugstores carry it...even Walmart)...and the kids don't seem to mind it (probably because of the sugar!). Ensure has yummy dark chocolate flavor for mommies who forget to eat to:lol:


I will pray that Grace gets better soon. Keep us posted!
 
Thanks every one.
The EN has been put on hold for the moment.
Her fevers are persist, her appetite is gone and she's none the better.
I'm not going to watch her fade away again!!!!!
Why does it take a child to be on death's door step for them to do something!!!!
Taking her to doc now! If he's doesn't listen I will be going to the ER! At least they'll do blood test!


Farmwife
 
I hope you get some answers! You're absolutely right, medicine should be 'preventive' when at all possible! But, all too often it seems to be 'reactive' once the issues become serious!

Good luck! :ghug:
 
Go Farmwife Go! You fight for your girl. I hope you get answers and that she is feeling better soon. Keep us posted.
 
I'm so sorry to hear about all this hun...:hug:

How did you get on at the doctors?

Dusty. xxx
 
Thanks every one. I chose not to write about it for a while. To upset.
I went to the doc with my sick farmgirl in tow. All I wanted to do was get some meds for my boy who has a bad sinus infec. and of course talk to a nurse about Grace. Let's face it I knew the doc would be to busy. I asked for the meds and to talk to the nurse. I got the meds
and waited:shifty-t:..... watied:shifty-t:..... waited:shifty-t:......and waited.:shifty-t:
I stood up with my head held high and said to the children we were leaving.
Drove 20 min. home and called the docs office and asked for the nurse....
who picked up the phone right away!
I'm not going to tell you every thing she or me said but I will say that night my dear husband looked at me and said we're on our own until the June appt..

Grace is still having fevers on and off. Her stool as I posted in another thread is orangish with dk. red. Other than that she's still happy. :thumleft:


I hope you all are doing well with you kiddo's. Have a great day!:rosette2:

:soledance:Farmwife
 
Can you phone the GI's office and see if you can get an appointment sooner? just explain wht has happened and how poorly she is? It makes me so cross when these Drs leave our little ones suffering. Big Hugs to you and your family xxxxxxxxxxxxxxxxxxxxxxxx
 
:bigwave:I would love to phone the GI. and move up the appointment. My husband is a farmer and really wants to go. He jump through hoops to try to get some one to cover for him for two days. That's one of the draw backs when you own a family farm.
I also would like to see what her stool does. WOW I never thought I'd say that.:eek:
I just want to make sure it wasn't a one time thing.
Why is it we always second guess ourselves?:ymad:

Farmwife
 
:lol2: Yes it is amazing how interested in poo we become!! - Freddy's poo is often black, red, orange, yellow - GI guy told me it was because of the iron supplement, or what he ate - I am not 100% convinced!!

:( Of course I forgot that it would be really hard for you guys to get away from the farm - I run my own business and even that is hard to get away from for appointments etc - and I dont have a whole farm to run!!

One odd thing and maybe it is awful to say but these Dr's only seem to pull out all the stops if the child is really poorly - in some ways maybe having the appointment in June means that they will find more when they investigate? not that I wish your little one poorly for one minute but I mean if she is sick when they see her and has been for a few weeks maybe they will try harder to find out what is wrong?

I just hope you survive until then If she gets really bad I guess you will have to go to the ER?

Thinking of you :hug:
 
WOW, page two. I feel accomplished.
Suzysu
My fear is Grace will have the best day of her life when we see the GI.:eek2: Not that I want her to be sick.:smile:

Farmwife
 
I know what you mean - Freddy was so sick february - May - stopped vomiting the week before the scopes and apart from the diarrhoea had no mouth ulcers, bleeding round his bottom - anything - no wonder it all looked normal!
 
Oh Farmwife...:hug::hug::hug:...how awful for you and your little one. :(

I so feel for you and kudos to you for your control! Thinking of you hun.

Dusty. xxx
 
Farmwife said:
WOW, page two. I feel accomplished.
Suzysu
My fear is Grace will have the best day of her life when we see the GI.:eek2: Not that I want her to be sick.:smile:

Farmwife
Click to expand...

I know right?! I live for the day O's thread falls off the first page! And yeah kids are like hair...behaves when it is haircut day. Oh and even if they are sick when doc asks how do you feel they sit there and say, "fine". So frustrating!

I really do feel for you having to wait for that appointment. I find it hard to wait for O's next appointment and we have a dx and treatment plan!

Hugs until then and healing thoughts to little Grace! :ghug:
 
Well we had a memorial day. We didn't get to do every thing like hiking. Grace is still not up to par. That's OK. My husband and son came in 3 hrs. later looking like drowned rats. It was 90 degrees with 100% humidity. I was glad we came home. We had a BBQ.
:sign0085::sign0085::sign0085::sign0085::sign0085::sign0085:
Now onto the Q's.

Grace's knee is worse than ever. How do you treat it?
Do you let them walk on it or not?
Ice or heat?
Tylenol or nothing?


Tonight she had bad belly pain.:thumbdown:
I laid her on the couch and said show me where. She pointed to 1 to 2 inches under her belly button. I put my hand there and I could feel the bowel passing the food or doing something. Sorry that's the only way I could explain it.
Is that normal?
Where could that be? Small of large bowel?
So of course her symptoms are getting worse and her BM was some what normal.
I can't figure it out!:yrolleyes:

I hope you all had a great day.

My new avatar is Grace at the Memorial day service. She was so cute singing our national anthem. You couldn't understand her but she sang with all her heart!!!!!:lol2:
 
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Make a joyful noise unto the Lord!!!! She looks adorable!

Sorry I can't be of assistance with the questions. Perhaps Dr. Dusty has some advise.

ERGH! So many people round here waiting for June appointments! I am praying that everyone receive some clarity soon!
 
Poor little thing! That is a very cute picture :D. The inner working of the bowels are not my thing (ask me about muscles and I could probably help you) and Andrew had pain but no one could feel anything when his tummy was pressed.
As for the knee, I believe ice (over here anyway) is not recommended but you could wrap it in a facecloth that is wet in cold water. Keep giving her a paracetamol liquid (sorry don't know what Tylenol is) which so far we are told is safe for Crohns. As you don't know what it is it's probably best to keep her walking around the house and short distances as it will stiffen up if she doesn't move it. Hope she feels better!
 
Translation Please:ylol:

Facecloth=Washcloth:yrolleyes:
Paracetamol=Tylenol:ybatty:

I hope that's right. If it's not let me know what I'm missing.
I love the Internet.:ylol:



Farmwife
 
Poor Grace, so much for a little one to deal with! And love the pic!

As for her knee, you can give Tylenol but not any nsaids (non-steroidal anti-inflammatory drugs - such as ibuprofen, advil, etc.) - nsaids can cause intestinal problems.

When Stephen's back hurt, he swore by Tiger Balm ointment (available at supermarkets, drug stores) - not sure if it would help her knee but it soothes inflammation. As well, when Stephen separated his shoulder, we used Voltaren gel as he couldn't have any nsaids. However, just a warning - Voltaren is an anti-inflammatory gel. When I purchased it, the pharmacist (and Dusty here :) ) was a bit concerned the some of the 'nsaid' would be still be absorbed. I called the GI on call at our hospital and was told it was safe to use, however, I still used only a small amount and discontinued as soon as the pain was bearable.

Have no idea if this would help but I would also try to use a tensor band for her knee, although she doesn't have an 'injury', it will give her knee some support and perhaps help a bit???

:ghug:
 
:lol: Yes, your translations are spot on! Language is a funny thing - friends here used to laugh at me because in South Africa we called a traffic light a robot. :ycool:
 
Generally speaking the area beneath the umbilicus is small intestine...however the nerve endings aren't always completely accurate in the abdomen. Many times pain is related to peristalsis (the motion of the bowel to move food through the digestive tract) and periactin (hyoscyamine) is prescribed to slow bowel movement/ease pain.
 
Tylenol makes a patch thingy ma bob (that is the technical term for it) and various members of my family have used them with great results.
 
Thanks Angie,:hug:
Not to sound like a total dunce.:ybatty: All though that's not hard to do.
Your statement above. What does that mean?:yrolleyes:
Does that mean the pain can travel?
Could their be some kind of blockage or stricture?
Could my DD be having an alien baby?:eek:


From your simple Farmwife:lol2:
 
:rof: alien baby!! ha ha ha ha!!

Pain can be referred - in that the real source of the pain can be at a certain point but the person actually feels the like the pain is coming from somewhere else - so little farm girl could feel like her pain is coming from under her belly button or even (for example) radiating down her leg but the actual scource of the pain could be (for example) the right lower abdominal area - as if things were'nt difficult enough!!

Does that make sense? Im not sure I explained it well? I expect if you google referred pain there will be a much better explaination!

I hope she gets a break soon :hug:
 
oh goodness Farmwife :lol: That's what my Gab used to call her "mass" before her first surgery last year...Alien Baby! She said for nearly a year straight that she had an Alien Baby in there and when it would hurt she would say "Mom, my alien baby hurts !" :lol: Funny, but not...you know :lol2:
 
I think suzysu explained it perfectly! ...and no dunce cap here...I am sure if you tried to explain your profession to me I would have plenty of questions. ;) ...your new avatar is completely adorable...what a little doll she is!!!
 
2 good days and counting. YA!
Her belly, knee and sl. eye pain continue.

But she's happy and for the BIG annoucment....:ghug:

She put on a pound of weight.
YES WORLD a whopping whole pound!!!!:tongue:
That's the first gain in 3 months.



Farmwife
 
:cheers:
WHOOP! WHOOP! for 2 good days in a row and 1 whole pound of weight!!
Well done you and well done farm girl!!
I hope this continues!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!:hug:
 
SO AWESOME! Now spit..spit...throw salt over the shoulder..knock wood..fingers and toes crossed lest we upset the IBD Gods!
 
:dance::allright::pika::us_flag::ladysman::grr1d::luigi::highfive::applause::panda::hippy::dog::emot-waycool::congratualtions::yoshijumpjoy:

All these faces is how I feel.

Happy, Happy, Happy.
I'm so happy I could cry.
I was able to talk to the nurse from the GI. I learned more in 20 minutes on the phone with the nurse, then I have in three years of going through this hell with my daughter.

She actual set down at her desk and said tell me every thing! WOW
I explained the c. diff, the belly pain, knee pain, eye pain. Her going through flares. Everything! I asked her if c. diff could have caused all this.
She said yes!!!!
However, she said let me explain.
She could have inflammation in a fold, bend or a tare, who knows at this point. The c. diff found it and attached to it. It's embedded it's nasty it doesn't want to leave. When the her little body was weak it flared. When it's strong it's suppressed. She said here's the
MILLION dollar QUESTION....
What is it? Crohn's or regular inflammation???
She said it's Totally possible for crohn's to do this. Of coarse the inflammation could have been caused from something else. We don't know.
We'll have to wait till after the test.
She even told me the test what will be ordered.
She also said, none of these symptoms where told to them!
She said I will be telling the doctor the WHOLE story and we will be keeping in touch with her GI. She said call with any questions.

Just to know a little more makes a big different! I know very well it could still be crohn's BUT knowing theirs a hospital that wants to help make me happy!


Farmwife
 
:hug::hug::hug::hug:

I feel so happy for you!! The nurse sounds great!! I think sometimes we just need someone to explain everything to us, and then we feel more able to deal with whatever life throws our way!! It sounds like little farm girl has a great team looking after her and hopefully you will get some answers soon - I can't believe they didn't know all her symptoms! - What test is she going to have?
really I am so glad you have at least some answers :ghug:
 
Suzysu,
All the hospital knew was tummy pains. TUMMY PAINS. :ymad:
He said NOTHING else. I was so mad.
It just confirms that my doc didn't get it.
I forgot to mention the nurse I spoke with was from Infectious Disease Department.
The test will be and I thought this was a cute way to say it,
the tube down and the tube up.:smile:
Their a children's hospital. Can you tell. Lots Blood work.
Did your kids have to fast for the blood draw or anything? I should call and ask.:yrolleyes:

Farmwife
 
:eek: tummy pains indeed hmmmmmmmmmmmmmmmm

Freddy didn't have to fast for any blood tests but I would call them and ask just in case - you dont want to turn up and find they can't do them if she has eaten. There is a whole load of prep to do for the scopes - have they gone through that with you?

So glad they are nice and 'on the ball' so to speak! :smile:
 
Something interesting. The Infectious disease specialist up here said NO to c. diff causing the problems for years.

The Infectious disease specialist down state said YES it could. I believe the one down state. Also I was told once you have c. diff you will always test positive for it.
Does any one know if thats true?



Farmwife
 
Not sure about the c.diff but that is so great - the nurse sounds wonderful. As far as I know you don't fast for the blood tests, just the camera up and down! What a relief when someone takes you seriously!! :smile:
 
Im not really sure - They have never mentioned it at all with Freddy, I think once you have it you can get relapses? but isn't it more to do with them being on antibiotics for something else?
 
Yes. Antibiotics lower "good" bacteria and the "bad" like c. diff has time to flourish and take over.
The one and only hole in what the nurse said today is it could be c. diff this whole time is that Grace....
wasn't on her first antibiotic until she was 1.5.
So IF she got it after that.
What was causing all her pains for a 1 year before that???
But I'm trying not to think of that know.
Ignorance is bliss right now


Farmwife
 
When you are on antibiotic therapy, it wipes out the good bacteria along with the bad. The good bacteria helps keep the bad bacteria (like c diff) in check. C diff only responds to two antibiotics (Flagyl/vancomycin). SO if she was on another antibiotic it may have allowed c diff to overrun her system and cause illness.
This all being said, they need to test for c diff TOXINS.
THe way I understand it Izz is a carrier of c diff, but it has never made her ill. SO she tests positive for it but it is not active; the c diff isn't making spores/she isn't contagious.
WHen she first became ill, the third c diff test was positive (after being in the hospital for a few days///go figure on where it came from). She was treated with two rounds of antibiotics before being scoped/finding out it was actually Crohns.
 
Grace was on Flagly.
She never had symptoms like diarrhea.
The doctor was testing her for other reasons and we stumbled across that. The nurse said if it's higher up in the track you might not get that.
Sounds just like crohn's doesn't.
They did the stool test and she must have had
enough toxin that she had it, right?
Is there two different test for c. diff.
My hubby and I were JUST wondering if it was a false positive.
I tell you Thursday of next week can't come soon enough.
Oh, by the way her fever is back even though her cold is gone.:(


Do people with crohn's or UC have kidney problems?


Farmwife
 
Farmwife

My daughter Sarah has never had diarrhea as a symptom. If everything she a little the other way.
 
Thanks Catherine,
I'm learning that crohn's is SOOOOOOO, misunderstood by people.
The two people I know have mild crohn's. So natural I thought that's how crohn's is.
Boy was I wrong and so are a lot of people.

Farmwife
 
You know what Farmwife,
I knew of 3 people who had Crohn's long before Gab was ever suspected of having it. Those 3 people are all siblings. From what I knew of them, they portray their own disease as kind of a "no big deal" thing to most people. I never understood what it was, and I for a while thought it was a "oh they have bad diarrhea" on occasion thing. Then one day I started noticing the brother limping. (we worked together and we were friends). When no one could explain to me why he limped sometimes (and looked miserable but kept smiling), I decided I wanted to know more. I went to the library (no internet then! LOL) and researched medical journals for hours and hours! I realized this was not just "diarrhea" and never treated my friends as such again after that day. I don't think to this day that any of them know of my research then, but it changed my perceptions.
I know this is not what typical people do, but that's just the way I personally am. I see someone/anyone I care about suffering and I want to understand it.
Ironic that my dear daughter ends up having it years later, and her case is honestly worse than all 3 of theirs put together.

Yikes ! I think I've gone off topic LOL. What was my point again ?
OH yeah...that you're right ...Crohn's is very misunderstood by people !! Its a shame really.
 
Thank for the reply.:hug:

I've notice I'm on the 3rd page. WOW!:smile:

Does any one know if kidney problems come along with crohns?

Farmwife
 
Yes. Sometimes Crohns can affect the kidney.
In Gabs case it was affected because of the mass that was pressing against her urethra tube and cause (temporary) hydronephrosis. After the mass was removed, her kidney was able to heal itself. (we had scans done to be sure) I'm pretty sure DustyKat 's Sarah had the same issue as well pre surgery.
 
My daughter has what her GI called mild to moderate chronic crohn's.

This means the crohn itself is mild to moderate but because of the delay in dx as symptoms were not classic until 2 months before dx (but still no diarrhea) she had become very anemia and had severe weightloss.

This meant she end up on heavy duty meds as they were treating the symptoms not the level of disease.
 
Well it's about midnight my time.
I know your all asking what a crazy busy farm wife is doing up this late.
Can't sleep.:ysmile:
Trying to wrap my head around Grace.
I've decided to call the Gi tomorrow.
Now that the nurse reassured me it was OK to call with questions before my first appointment. That's what I'll do.
Grace's fever ( low grade) is back.
For the first time she came up to me and said pain,
put both hands on her back, one on each side and said pain again.
She had an ultra sound done 7 mo. ago and it came back clear.
Some things going on.
I love that girl so darn much how can I sleep.
I don't know how all you do it


Good night

Farmwife
 
We had two visit to our GI before our first scheduled appointment with our GI, due to my repeated telephone call due to weight loss. Sarah colonscopy was also proformed prior to when our first schedule appointment was planned by our GI boss and dx prior to date of the first schedule appointment.
 
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I know how you feel. I sometimes lie in bed then give up and get back up as I am lying worrying about Andrew. Many's the time I've been on here around midnight :(. Sorry poor Grace is suffering. Hope the nurse has some answers for you. I sometimes phone my community IBD nurse 2/3 times a week and apologise for bothering her but so far she's been very nice and never seems too annoyed :smile:
 
Hey farmwife,

T is right. Sarah did have hydronephrosis and Matt had the beginnings of it as well. As T said it is due to the swollen and inflamed bowel pressing against the ureter and causing urine to back up into the kidney and it then in turn swells creating pain.

So fab to hear that nurse was so helpful. :):):) Good luck with the Gi!

Dusty. xxx
 
Im so sorry you have been up at night worrying - I am the same one day I am really worried about him and can't sleep wondering what is going on etc and the next day I convince myself that he is fine and I am overworriying about everything and making a fuss, then he has another bout of pain and I know he is just not right - I don't know if I am more scared about finding out there is something wrong or more scared that the GI will say that nouthing is wrong but he is still in pain.
Let us know what the GI says - I hope they are helpful - I think if you call lots it shows them how worried you are and helps them to take you seriously if you know what I mean!! big hugs xxxx
 
WAIT, WAIT, WAIT:ymad:

I've called her doc here to ask if the got they stool samples back. I asked them to check for inflammation. I still don't know if he agreed to it. I'll found out.

Called the nurse downstate. Did I mentioned their AWESOME!!!:smile:
She said this is what you'll do...
Go get a urine test. Make sure AGAIN it's not a UTI.
If she's clear of that.
CALL right away and tell us the new symptom.
My hubby just said if we need to head sooner will do it.
The cows can milk themselves. I WISH!
Thank God for good a husband.

Farmwife


I never thought I say this. I hopes it UTI!!!!

Maybe if we went to the walk-in the would do labs?
Of course, this Thursday she'll be doing labs down state.
So do we want to put her through the trauma of needles again?
Does the trauma of needles ever get better for your kids.
What did you guys do to help them get over it?
 
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Page 3 AND a senior member! You are accomplished:lol:

So glad you have hooked into a great nurse and office. It is so great when docs and nurses etc care as much as you do about your little ones. I am blessed to have very passionate, kind and understanding peds, GI and nurses. If I don't email them once a week they are calling here for the update.

Now if only my hair cutter were as kind:ymad: Missed my appointment for a third time in 6 months (First time was in hospital, second stuck in traffic coming home from infusion) today because I was up with O till 2 a.m.. tummy pains and severe diarrhea. I think it is just the reintroduction of food and she was mostly scared. So sat down to rest before my appointment and fell asleep. Missed it and now they are firing me as a client!!!! Really?! And they called with a nasty attitude...can I borrow your rolling pin? :eek:rder:

As for understanding Crohns...guilty as charged. Whenever someone said Crohns I thought, "oh diarrhea and tummy aches". So now when people say, "oh thank goodness it is just Crohns...she just has to watch what she eats" while I feel like getting super mad I try to remember I was that ignorant once...jyst didn't say stupid comments. Certainly has taught me to NEVER judge anyone's illness or trials. A swim mom just found out her daughter has scoleosis and has to wear a brace at night. Her daughter was whining and the mom yelled at her and said, "what do you have to complain about look at poor O". And that is another thing I have come to appreciate...stop comparing yourself to others...just because it isn't as bad as it could be it is still happening to you or your little one and hurts. At least the silver lining here is I have become more understanding and compassionate for others....just not hair cutters who fire clients!!!!!!!!!

Good luck with urine test!
 
Your welcome to my rolling pin. :rof:
But what will I use to roll out my pasty shells!:lol:

I hope they weren't that good at cutting hair. Sorry to hear that.:hug:
The ignorance of people is astounding. :yrolleyes:
Now you know why I have a rolling pin.:ymad:


Farmwife
 
Glad they are understanding and taking you seriously - and good luck with the urine test - I hope it is a UTI as well - what were her last bloods like? -keep us updated.

I don't know if the blood tests get any easier - I found it easier when Freddy was a smaller as I felt he wouldn't really remember it - I guess once they are a bit older then can understand more and you can explain it to them, and don't have to pin them down so it must get easier (I hope so anyway) - we have tried both spray and cream with Freddy, we are usually both in tears by the end!:(
 
Yes UTI. YA/YA:smile:
They want her on antibiotics for three days.
I'm fearing that because of her past with c. diff.
She needs it. I know that.
Here's something strange.
I was told today (AM) the c. diff will show up in her stool for 6 mo.
BUT she had c. diff 3 mo. ago. The nurse from our doctors office said (PM)the test was negative.:yrolleyes:
Can anyone explain that?
They did do the test to check the stool for inflammation and it was negative.
So is that test always a reliable marker for crohn's.
Can you get a negative and still have crohn's?
Of course when Grace gave that sample when
she was healthy before her down turn.

Farmwife
 
:ybiggrin:YAY for the UTI!!
I have no idea about the other stuff!! - just glad her Kidneays are ok - I guess because of her c.diff history they will have to keep a close eye on her xx
 
I don't know how long C diff would be delectable for but I don't think it would matter as such because a positive test should only be relevant in the context of clinical findings, some people are carriers. So if she is symptomatic of C diff and the test is positive then you treat it. If she is asymptomatic and positive then you do nothing.

I don't think any test is 100% reliable. It would be possible to have a negative test finding but still have Crohn's.

Dusty. xxx
 
UTI infection, ask for renal reflux ruleout. My middle girl has this. This is where the urine urine can backflow, in my daughter this allowed infection to travel back into the kidneys. Symptoms vomiting, on and off fevers, pain going the toilet, poor growth. We were told that uti are not common children and more than a couple should be checked. The treament pretty easy compared to crohn's. Rachel dx at 2 years and 3 months.
 
Thanks Cathrine.
We told the doctor at the walk-in clinic about Grace's health.
She right a way asked if she could send her urine sample for a culture.
She said given her past, where it comes from might be helpful
at her upcoming visit.
I will add your test to my ever growing list
to talk to the new GI about.:ybiggrin:

Thanks a bunch,
:heart:Farmwife:heart:
 
Culture is good because you then find out what will kill infection best:voodoo::voodoo:

You also should get a repeat test in a week maybe 10 days after treatment to make sure the infection is gone.

Can't believe I am saying this but giving daughter antibotics everyday for 12 months to make sure the infection didn't come back was ease. See what 5 months of crohn and led up has done to me.

At the time this was a very difficult decision involving a surgery consult and the weighting up of risks. I hated giving my child antibotis.
 
Last edited:
Wow Catherine! Who knew?! Great advice.

Farmwife: so glad it looks like there may be an easy fix. Hopefully she will be feeling her adorable self soon!
 
Farmwife,

My son is 14, but we have always counted while they do the bloodwork...and I mean count. The nurses get tickled because when they get the needle inserted they are surprised Ryan keeps counting. He closes his eyes, holds my hand and counts...to 200 if that's what it takes to be completely done with a bandaid on! If he gets nervous and starts counting too fast, I slow him down. We started this years ago and now, he pretty much uses this method on his own. He's my hero!:medal1:

I also misunderstood Crohn's. It is so much more than a tummy issue!
 
SORRY here's another question.:yfaint:

Is a UTI and constipation related?

She's on antibiotic for the UTI. She just had her second dose today.
She's has NOT gone in 4 days.:thumbdown:
Two BM's before that were very little.
I'm pumping this kid full of water and fruit. Still nothing.
She keeps trying to go but can't. Nothing to painful, YET. Thank God Almighty:thumleft:
Prune juice has done nothing for her.

I've looked on good old MR. Google:shifty-t:
but I'm not getting any good reasons.

Farmwife
 
Glad it was "just" a UTI :yrolleyes:. Hope the antibiotics help. I'm afraid I have no idea if constipation and UTI go together. As for the blood tests, my son is 13 so he's quite calm about it (outwardly anyway). We always take my ipod with and I sit next to him playing a game so that he can watch that and take his mind off it. Maybe you could take something with that she has to think about doing - blowing bubbles, spot the difference, hidden objects?
 
MLP,
I looked that up. How cute. Do you put in on after or while they get the needle or shot put in. I love how it looks. When money and time present it's self, I'm so getting one of those. Thanks

Well Grace threw up. All over. She even threw up on the rug I just moved in my kitchen. Go figure! Of course she feels better. YA Well at least for now.
Still no BM. 4 days and counting.
I hope you all have a great day.

Farmwife
 
Has she been on the antibiotics that she is on now before? - maybe she is reacting to them? does she have a rash or anything? My middle one reacts to both penicillin and erythromycin - has vomiting and horrible rash. I do hope things improve for you all xxxx
 
you use the "bee" about 30 sec to 1 min before and during.
We don't' use the wings- they are just annoying.
It has a slot for the "hospital issue" tourniquet . This way ti can stay on during the needle stick/IV.

We had one shocked because DS didn't even flinch with the IV. He was watching me and couldn't feel it because of buzzy.
the "Bee" vibrates
 
http://www.seattlechildrens.org/medical-conditions/symptom-index/constipation/

When to Call Your Doctor for Constipation
Call Your Doctor Now (night or day) If
Your child looks or acts very sick
Persistent abdominal pain over 1 hour (includes persistent crying)
Persistent rectal pain over 1 hour (includes persistent straining)
Vomiting over 3 times in last 2 hours
Click to expand...

http://www.princetonol.com/family/columns/pedgroup56.html

explains why swimming/heat pads help constipation.
maybe a warm bath.
 
Keep an eye on the vomiting aspect of things if it persists and she still hasn't had her bowels open. If that happens you need to go to the ER.

As to the needles, you can also purchase numbing cream/patches called Emla, they are sold over the counter here and work a treat! Love the bee lmp! :)

Thinking about you guys, :heart:
Dusty. xxx
 
:dance:Thanks she just went.:dance:
These figures are my official pooh dancers!
The first part of the pooh was coated with blood.
Not mixed in but coated.
Is that because she was constipated?

Farmwife
 
Phew! Thank goodness! :)

The blood does sound like it is because of constipation. Perhaps a little trauma around the anus from passing hard stool.

Dusty. xxx
 
:dance::dance::dance::dance::dance::dance:
YAY!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
gad she pooped! hope tomorrow is better xx
 
Poop Poop Adoo! So happy:thumleft:

I was seriously holding my breath reading and getting to the end. If I was this scared I can only imagine how you must have felt.:ghug:

I would agree with Dusty on the blood but keep an eye on it.
 
Just an update-
Grace had blood in her stool tonight!
I mean blood. Dark red to almost black. I didn't even have to stain to look.
I didn't even have to second guess myself. I wish I could.
She collapsed on our walk today. She was able to walk back but could not keep up with my very slow pace. She never complained about her knee but it was swollen. She told me it didn't hurt. STRANGE.
Since passing her stool 2 days ago she has gone pee so much. It's like some one open the damn and it let loose.:ywow: I'm thinking her intestines were swollen with constipation was pressing some where around the bladder and holding things up. Which is why she got the UTI. I can't take credit for that idea some of you gave it to me.:ysmile:Now I'm back to her having problems holding it. I know she doesn't mean to go on the chair or couch. She can't help it. Poor kid.:kiss:
Other then that she's VERY HAPPY.:dance:She's drinking like a fish and eating like a....kid.:ysmile:
:heart:Farmwife:heart:
 

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