Losing ALOT of hair

Crohn's Disease Forum

Help Support Crohn's Disease Forum:

Joined
Mar 2, 2013
Messages
59
I had a bowel resection about 3 months ago. About two weeks ago I started losing more than normal amounts of hair. My pony tail has gotten a lot thinner. I just don't want to lose all of my hair. Has this happened to any of you? I'm freaking out every time I brush through my hair. I'm taking a multivitamin and iron. Please help!!
 
Me too. It recently started, after a very high dose of Remicade. Since nothing else in my regimen changed, I'm assuming the Remicade is the issue. I'm a male, and have always had a love/hate relationship with my hair (it was exceedingly thick and unmanageable). At one point in my life I resorted to shaving it all off, but stopped simply because it took 1/2 an hour every night and used up a razor with each shave. So, going bald for me isn't as big a deal as it may be for a woman. I hate to pay this price, but I don't have a choice at the moment. For me, it's more a case of despising losing another round to this disease
 
I had the same trouble last summer, it was put down to pentasa,, omeprazole and being anemic. I had long, very thick hair and lost about half of it but thankfully it began to grow back when I was taken off pentasa and put onto iron, though I see you're on iron already, would it be worth while getting your levels checked again? I hope you find the cause and can get something sorted out, I wish you luck.
 
Last edited:
Now that I'm on Pentasa I'm getting my blood work checked every 6 months. How long did it take to see signs of anemia for those who take Pentasa?
 
I am on Humira and Imuran and I just had to have 4 1/2 inches cut off because my hair is falling out so badly. It looked horrible. I miss my hair terribly...
 
I started losing hair a couple of years ago, but have never found the cause. I'm female, in my twenties. My hair got noticeably thinner the first time I took prednisone - it started several weeks into the course of prednisone, and was fairly rapid. I had also started taking Amitriptyline, though, and when I was off prednisone and my hair was still thinning, I thought it must be from the Ami. But Ive been on Ami ever since, and though my hair hasn't gone back to normal, it's not got any thinner for a long while. So I don't know which med caused it, or if it even was a med. I don't have any nutrient deficiencies that could account for it either. Now I have thin hair, not enough to look abnormal, but enough that it's obviously far poorer quality than in photos of myself from before, and obviously thinner than the average women's hair.

It bothers me a little, but it's not one of my major concerns. The facial hair growth that prednisone caused upset me far more and I went to far greater lengths trying to fix that cosmetic problem! (The facial hair went away soon after stopping pred, but now I've started prednisone again and am not looking forward to the possibility of that side effect returning!) For a while I thought it best to stop dying my hair when it was so thin, but now I dye it regularly and it doesn't seem to harm it. I also wear head bands or head scarves sometimes if I feel a little self-conscious about it, but generally I just accept it. I'm not sure why different things bother different people, why the facial hair bothers me so much more than thinning hair on my head, we all have things that upset us.

Thyroid problems are another possible cause of abnormal hair loss that I remember coming across when reading up on it.

Also have you had your hormone levels checked? Sometimes women can lose hair in what's called "male pattern baldness" - i.e. rather than just losing hair, they lose it in the way that would be considered normal for a middle-aged/aging man, with hair on the top and front of the head falling out first. This can be caused by women having an excess of male hormones.
 
UnXmas, I recently found out I have thyroid issues as well as the other. Not sure if mine is contributed to that, the meds for it, the Imuran, or the Humira. I agree on the facial hair part, too. When on the steriods, I have that problem and it subsides after I am off. Ugghh.
 
I too have lost about 1/2 my hair volume in the last 2 years. I tried the Viviscal supplements/shampoo/conditioner - didn't work. My root ball barely exists - I think it is nutrition based which is nothing I can do about at the present time.

One thing that has helped a little is using shampoo/conditioners without sulfates and don't use any product that has voluminizing properties as that dries that hair out more. I'm very careful to use products that moisturize so I hope my hair stops breaking so much in addition to the ones that fall out from the root.

Hopefully yours might just be a vitamin deficiency that can be solved - good luck!!
 
I got my blood work done today. They checked thyroid, iron, b12, D. All mine are good except the D. It still doesn't give me hope though.. I left a message at my doctor who did my bowl resection and he called me and said that I need to take biotin. Also that I need to get a lot of protein each day and once I have enough my hair should stop falling out. So I'll just have to focus on protein and keep doing what I'm doing I guess. Thanks for the help you all!
 
I had lost a lot of hair on prednisone as well. It grew back in wavy in the back, instead of poker straight. I recently cut off 4" as well, because it got brittle and started breaking off. Maybe from the Remicade I started in May.
 

Latest posts

Back
Top