Sticky Medical Marijuana for Crohn's Disease and Ulcerative Colitis

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please keep in touch with your GI whether or not you take the entocort. let them know of your choices so that you have proper fallow up and that things do not escalate into more complicated situations. If you take cannabis, its no guaranteed it will make the inflammation go away, but your symptoms will prolly find some relieve and it will be hard to know if its the nervous system relaxing or the inflammatory response, so monitor with GI. Stopping processed food will probably wont be enough as an adjunct therapy treatment. Read about the SCD diet or the IBD-AID in the forum if you want to give yourself a better chance with ''natural approaches''.
 
Thank you! I will definitely look into both right now I am completely Paleo except for when I give in and have iced coffee with creamer. I am a bit nervous to tell my GI after the lab results from the biopsy sample came back (which is when I was diagnosed) he said he found drug exposure. He didn't seem very happy it was awkward how can I make it so that he thinks I am not just doing this for the cannabis
 
Unfortunately some drs. won't believe that cannabis works. I don't understand it either but some drs. seem to get their degree and think that no new information is out there unless it comes from pharma companies.
Some papers may help.
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2679124/
This one is on epithelial wound healing with cannabis.
http://www.truthonpot.com/2013/05/20/medical-marijuana-and-inflammatory-bowel-disease/
This one is more specific to Crohn's and UC.
Let me know and I can look up the papers on the antiinflammatory action of CBD and there are a few others.
Best to find a dr. who believes in you caring for yourself. I hardly see my dr at all anymore. He's quite happy I'm doing well without him having to do the work.
 
paleo diet is very similar to SCD and IBD-AID, any of these will be great to try I think. Key is to be very strict and not cheat and then monitor with GI.

how did your dr found drug exposure? I though is was only on demand on blood reports. I dont see the utility of a doctor to check that box in the blood reports, this seems like very intrusive of personal life to me. I'd be pretty upset my doctor wants to check that without asking me first. hospital is not a prison!

anyhow, thanks to poster above, literature does exist supporting cannabis use for crohns and you can bring this to your doctor.
 
you could inform yourself of your rights on this issue at the hospital Ombudsman if this matters to you. and if you are not comfortable with this doctor you could change him. I find its so important to get along with doctors. The ''therapeutic alliance'' can play a part in disease course. and a doctor who has a positive attitude can even set possibilities for some sort of placebo effect for the patient. we are going to see these doctors for many years ahead so its good to have a good one.
i once had a terrible rhuematologist and I changed dr, my only regret is not having changed her earlier. she was stressing me so much I even had nightmares!!! :ack:
 
Hello! I'm posting here because I live in a legal state, am newly diagnosed with a mild case, and am interested in seeing what seems to be working/not working for other folks.

I have just begun trying non-psychoactive CBD capsules (Mt. Si Medicinals, 25:<1 CBD/THC ratio), but it's too early to draw any conclusions.
 
It seems that activated THC is necessary for really effective Crohn's treatment with cannabis. If the CBD works for you, that's great, but I'd get some oil with a significant amount of activated THC in it in case of flares, at least. If you're a novice user, I'd start with just 5-10 mg at a time to get the feel for it. Keep in mind that CBD taken with the THC can help to mitigate any undesirable effects (anxiety, paranoia) that you might experience with THC alone or with too high a dose. You may find that you need to keep up the THC daily for at least a couple of weeks to combat a flare -- at least that seemed to have worked for us when I got the same advice.
 
thank you J's Mom for being this valuable source of information. I have my appointment next thursday at the medical cannabis clinic! what is great is that I would be able to start very gradually since I am in remission right now. And my barometer will be my mild arthritis which has never went into remission since it started 3 years ago, but it improuved greatly at least.
 
Has anybody had any experience with Cheeba Chews non-psychoactive CBD chews? I bought some a while back and there was absolutely no high, which is exactly what I want. I also tried some of the Cheeba Chews CBD / THC mixture, but it seems any trace amounts of THC make my anxiety shoot through the roof.

I only bought 2 of the CBD versions and couldn't finish the CBD/THC mix, so I wasn't able to test for long term use....but I was curious if anyone has had experience with these. I know THC has some beneficial properties for crohn's, but I just can't handle the anxiety so these CBD ones are really probably the only form of cannabis I can go with.
 
I'd make my own as you can't be sure of mgs. or whether it has been decarbed. The antianxiety effects only come with CBD that has had the carboxyl group evaporated off so that it can cross the blood brain barrier. I had some dispensary bought CBD caps that didn't work for anxiety at all.
 
hi guys, so I am back from the clinic. The doctor I met suggested I make a test first with pharmacy prescription drug Nabilone. (all paid by my insurance).
https://en.wikipedia.org/wiki/Nabilone

Nabilone mimics THC. She wants to see if I am having side effects from THC and if I see benefits taking it. Im starting at minimal dose (0.25 mg) before going to bed and escalate the dose to 0.50mg the fallowing week if no undesired side effect is noted. I meet her back in 1 month and we'll go from there. if i like it and see benefits, i can continue on this treatment or If I react badly to it, we'll most likely try leafy CBD option. although she mentionned there is always some ''traces'' of THC remaining even in extracted CBD.

what do you think of this plan?
 
I also had an apt today met with the marijuana doctor and got a referral for medical marihuana. I think your plan is a good one the doctor today said that full extract cannabis oil is the best for healing any ulceration or damage in the intestines as it attaches to our receptors easiest/
 
You may want to read this first.

http://www.alternet.org/drugs/why-need-whole-plant-medical-marijuana-even-cbd

That and the way that the terpenes interplay with the THC present and the CBD enhances the benefits.

I'd also read up on synthetic THC mimics. I remember reading somewhere that strait THC without terpenes may make for worse side effects. I can't remember where I read that though or if it pertained to the specific drug you are recommended.
 
thx, just read the report above. I tend to believe whats in this report and that the real plant is superior. i didnt know there were CBD pills? they seem not available in Canada. MY CD is currently in remission, but my arthritis is still present and this will be easy to monitor and to know if the THC pills work or not for my inflammation.
The dr talked about cost also and the advantage of free pills vs having to pay $$$ for the real deal... she did mention that in my case 1 gram of cannabis would be needed per day if inhaled or vaporised or 5 g if turned into oil, which was my first intended choice. Im not quite sure I got that properly.

How much do you all consume per day?
 
My 11-year old currently gets approx 5-7mg THC & 10 mg CBD per day. In the oil we get, that's only 1/2-2/3 dropperful of the THC daily, but products vary widely in potency.
 
I'm not sure why ppl try so hard to steer away from thc...I find high thc levels combined with cbd actually help me the most. Taking away thc is taking away the best part of the medicine...
 
I'm so thankful to live in a state where it's allowed. My son is completely off pharmaceuticals now and is doing SO MUCH BETTER! If you have the means, especially if your child is struggling, it's worth considering relocation for this.
 
Believe me, I would move if I could!!!!! It's so frustrating! The bill didn't pass in November even though it had the majority vote! It had to have 60% in favor to pass!!! UGH!
 
You live in a tough state, and I wish you the best of luck. I really hope the rest of the country recognizes sooner rather than later what a terrible mistake it is to withhold this medicine from patients -- ESPECIALLY kids! It's just plain ignorance.
 
mugsymagoos said:
Believe me, I would move if I could!!!!! It's so frustrating! The bill didn't pass in November even though it had the majority vote! It had to have 60% in favor to pass!!! UGH!
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If you have any family in Georgia, it might be easier to just move up one state since GA recently passed HB1. If you have one of the qualifying conditions, you can see a doctor who will register you in the new "Low THC oil registry" in which you basically get a medical marijuana card. The card allows the person who carries it to be in possession of no more than 20 fluid ounces of medical marijuana oil without being prosecuted. Sadly, you cannot buy the stuff in GA yet, but REP. Allan Peake is working to change that right now
 
If you order thru the flowering HOPE foundation they can ship it to Georgia. It will be a Low THC but that will not help with IBD completely. You have to have THC. You're not going to have access in Florida for a long while. We're working on it tho!!
Try to get as many mg in your child as you can. We suggest at least 40 mg of CBD and if they can take 40mg of THC that would be optimal but it will make them tired. So having a little less THC will be ok but a 1:1 ratio is best. Also take the Fructose out of your childs diet. ALL OF IT!! Its not easy! and there are a lot of fruits that contain Fructose, like apples and watermelon. Don't let them eat it. Its aggravates IBD significantly! ~~ But this doesnt just work for kids! It works for adults also!
 
I am in the process of moving for MMJ. Colorado Springs is on the short list.

What should I think about when relocating for MMJ?
I have the luxury of really being able to choose anywhere stateside. My core focus is getting better in a healthy wholistic way.

Are there any "Crohns communities" or areas in which we tend to migrate to or that have core support infrastructures in this area?
 
Hi everyone!

I have been on remicade since April of 2014 and in Jan. had to go up to 10mg/kg every 5 weeks! Recently I haven't been feeling like the medication has been working and I just got the infusion 2.5 weeks ago and I'm going to the bathroom a lot and can't leave the house!! I feel like Remi isn't working anymore. My doc mentioned going vegan, and I have but I cheat and have chicken sometimes and cheese. It's helped a but but nothing major. Since I have 16 days until I see my doctor he said to take prednisone again (last time I gained 32lbs on it!!) so I'm trying to stay away from it would MM help me get through the next 2.5 weeks until my next remi infusion and (then talk to the doc about Humira) .
I am at my wits end with this disease my crohns when first diagnosed was severe and I havnt been in remission at all and half my colon is healed and the latter half is still severely inflamed. Any suggestions on how much MM I should smoke or.. Idk any tips would help! I don't know what to do at this point!
Thank you!
 
From what I understand, as long as you get something with good decent amount of CBD in you, it should help you out tremendously.
 
Smoking isn't the most effective way of medicating, although you'll likely get some benefit. THC is also a very important component; a balance of THC & CBD is ideal. If you're able to get edibles, an oil, or a tincture, you would probably get better results. Florida is not a kind state to be in for this. If you were somewhere with dispensaries, you would have a wide array of products to choose from and be able to experiment with what works best for you. Considering the dire state of your illness, I would seriously consider relocating to get real care if that is at all possible. If not, you'll want to find a good, steady source and look at ways you can prepare it at home (infused oil, edibles, tinctures). I recently found this product online, which looks like it could make this pretty easy. I have no affiliation with this company:http://store.magicalbutter.com/magicalbutter.html
 
For those who only use CBD oil, how many drops a day do you take? What price to you approximately pay for your bottle and qt in it? I'd like to try to order that from outside of canada. because in canada it seems that oil is illegal :ybatty:
 
Ok so I have just called the clinic and Oil form of CBD will be legal and available in Canada within the next 60 days!!! I think Im going to wait to try that instead of trying the THC pharma pills the dr proposed to me, which I stil havent tried btw. The synthetic drug doesnt really appeal to me, nor the THC...

so gain my question is... How many drops of CBD do you take and what is the expected price?
 
I take between 15-50mg of CBD a day. the problem with a cbd(and synthetic THC) only concoction is that it's been shown that whole plant extracts are much more effective. CBD only has a very small window of effectiveness whereas the terpenes and flavinoids present in the plant moderate the CBD and THC to make it much more effective over a very wide range of dosages.
If you don't want the THC to affect your mental state you can use freshly dried flowers and no heat extract method to keep the THC in it's acidic form. In this form it won't cross the blood brain barrier and you'll only get the antibiotic and antiinflamatory(and other non mental medicinal effects) properties. It's your choice, you know you better than me. But I'd like to say that, on a oral regimen, people generally get used to the mental effects, esp when taking 50/50 activated(decarbed)THC/CBD. The CBD, when decarbed, acts as an antianxiety medication. If you do try THC add it in after you have been taking activated(decarbed) CBD for a while and you SHOULD have no problems at all with anxiety. I only say this because anxiety was a key to keeping my stomach problems around. I was always on THC but when I added CBD I got full effects from the meds whereas THC only would take care of any pain but not an underlying cause when I used too much(enough) to cure any pain.
 
I have been using an ethanol-based tincture containing 195 mg of THC and 360 mg of CBD. 1 ml dose contains 13 mg THC and 24 mg CBD, it is a 157mm bottle, cost $55 dollars US, lasts roughly 2 weeks.
 
Thank you both for your replies.

@ Norby: ''If you don't want the THC to affect your mental state you can use freshly dried flowers and no heat extract method to keep the THC in it's acidic form.''

this seems a lot of work to do. At this point, I am looking at already prepared products which i can buy. I already take so much time to keep a strict diet and managing my supplement intakes throughout the day, I cant imagine concocting other stuff at this moment!!!

would such a product be available in oil form you think? or its a DIY at home only? im looking for minimal work to do with this project...
 
Quebec, I don't know. In michigan you can have a caregiver make it that way. I think that one lab down here does co2 extract and i don't think that method involves heat.
As long as the process doesn't involve heat over 225f it shouldn't be decarbed. I use isopropyl alcohol to extract my oil and heat to 140 until the alcohol boils off. When the big bubbles stop at 170'sf and the little bubbles start at over 200 is when the decarbing begins. Isopropyl boils at 170f so when you get it about 180 and it isn't bubbling anymore I consider it done for smoking or I heat it to 200+ and watch till the little bubbles taper off.
Some methods use butane and no heat as butane evaporates quick at room temps, oil made from this would be not decarbed at all.
It depends on what method was used and the amount of heat applied as oils can be either decarbed or not. I'd imagine ones intended for consumption would be activated whereas most regular oils would not be decarbed because it would cost more and be an added step. I really couldn't say unless I knew the method.
 
does anyone who take CBD oil or THC/CBD oil have dry mouth as side effect?

I tried smoke cannabis 2 nights with a friend, just 3-4 puffs and the next mornings I woke up with very dry throat. This is something impossible for me to accept since I suffer from chronic pharyngitis and dryness is a factor aggravating my condition :(

I read THC synthetic medical pills Nabilone also have mouth dryness as possible side effects... Is this a side effect of THC only?

what about CBD?
 
Check out .leafly.com it won't let me post a link, but it has medical, and uc. And crohns listed and the best strains:dusty:
 
Hi guys after many horrible meds and painful nights and oping pain pills one after another I decided to give MJ a chance I can't tell you how much better I feel I sometimes get the anxiety that I'm doing something wrong and I need to retrain my brain that I'm not it's crazy how I would think that pain pills are OK but MJ is not. We just got it approved in Oregon so I got to go to my first dispensary yesterday and it was amazing they picked out a string on it that was perfect for me.
 
Hello,

I use an e-cig with an e-liquid dosed at 13.6% CBD, but i don't see any effects on crohn...Maybe better to ingest cbd oil as caps...
 
Yes, better to get it to where it's needed. Bet you didn't have bronchitis though. :) Also best to add in some THC.
 
Lady Organic said:
does anyone who take CBD oil or THC/CBD oil have dry mouth as side effect?

I tried smoke cannabis 2 nights with a friend, just 3-4 puffs and the next mornings I woke up with very dry throat. This is something impossible for me to accept since I suffer from chronic pharyngitis and dryness is a factor aggravating my condition :(

I read THC synthetic medical pills Nabilone also have mouth dryness as possible side effects... Is this a side effect of THC only?

what about CBD?
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Parched mouth has long been a symptom of Cannabis users. Hence slurpie runs.
Ice cream or freezies also work great. I also stock up on the natural frozen lime juice.
 
I still wonder if taking CBD (oil) only will cause throat dryness. Im waiting for an appointment with my cannabis doctor to inquire more about that and possibly try that.

medical Oil has just been legalized for commercialization in Canada. I'd definitely want to go this route and avoid smoking.
 
Lady Organic said:
Ok so I have just called the clinic and Oil form of CBD will be legal and available in Canada within the next 60 days!!! I think Im going to wait to try that instead of trying the THC pharma pills the dr proposed to me, which I stil havent tried btw. The synthetic drug doesnt really appeal to me, nor the THC...

so gain my question is... How many drops of CBD do you take and what is the expected price?
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I take 2 cookies each night with dinner. Cost: free :)

Parched mouth: Cannabis has a way of alerting us to what we lack. Dehydration is a common problem with much of the population, not only crohn's sufferers. I haven't had parched mouth since increasing my overall general fluid intake, especially vegetable juices and stock. Parched mouth could be related to minerals and not only water?
 
thx Nym. Interesting, but my throat issue is immune related. So there is more to it than dehydration. I have greatly increased my water consumption since I am having this issue. Hydration is key to minimize symptoms and discomfort. I have a water bottle glued to me at all time :(
Color of urine is a good indicator of hydration status. The clearer it is, the more hydrated we are. Im keeping pretty good.

im just hoping CBD taken alone without THC would not indicate to me that my throat is dry in the morning!

any other experience or anyone else can share thoughts on CBD and throat dryness?

Cookies I cant eat because I fallow a pretty strict diet.
 
I'm using urine therapy to treat chronic renal failure - renal hypertension / thyroid - all thanks to mesasalazine. It hasn't hurt anything according to all my blood tests thus far.

You can put cannabis in any dietary treat you like.

My mouth would feel parched as soon as the THC effects were felt, this is how I knew to increase my fluid intake. Personally I wouldn't bother with all the CBD vs THC, that is unless you have a strong aversion to wanting any THC effects. I have tried several strains from various growers and the outcome is always the same - positive.
 
Lady 0
Try the SCD almond flour cookies made with honey just sub canna oil for the butter
You can also just add the butter to your food like on grilled fish or veggies.
THC has benefits for crohns and inflammation as well
The Israeli studies focused On THC.
 
thx guys. i would really prefer to use CBD only and avoid the side effects of THC. I like the buzz of THC, but that would be for occasions only, never on a regular basis. If I can get to try it, I will know pretty fast if only CBD can help fight inflammation or not since I have mild arthritis and pharyngitis. Those issues are far easier to monitor than crohn's. My crohn's is doing so well since a year now and I want to try cannabis for the other issues now.
 
You can always use fresh non decarbed THC and not get much of a high. The THC won't cross the blood brain barrier easily if it's not decarbed but you still get all the health benefits throughout the rest of the body.
 
It's just fresh MJ infused into oil or alcohol without heat. Heating MJ decarboxylizes the THC acid turning it into THC which can pass the blood brain barrier. Without heating it, it remains THC acid, which has a tough time getting across the blood brain barrier to get you high. It does however travel throughout the rest of the body and works it's magic without the head effect.
 
Lady Organic said:
and how is this kind consumed? Is this easily accessible? Ive never heard of this kind and wonder if it is available legally in Canada.
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It would be the raw, fresh plant. You can juice it from what I hear and has great benefits. Unfortunatley in Canada, unless you are allowed to grow for yourself, or know someone who does, you can't get your hands on fresh plant legally :(
 
Lady Organic said:
thx Nym. Interesting, but my throat issue is immune related. So there is more to it than dehydration. I have greatly increased my water consumption since I am having this issue. Hydration is key to minimize symptoms and discomfort. I have a water bottle glued to me at all time :(
Color of urine is a good indicator of hydration status. The clearer it is, the more hydrated we are. Im keeping pretty good.

im just hoping CBD taken alone without THC would not indicate to me that my throat is dry in the morning!

any other experience or anyone else can share thoughts on CBD and throat dryness?

Cookies I cant eat because I fallow a pretty strict diet.
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Funny, I had to take a first aid course for work yesterday and as the teacher was reading the symptoms of recognising diabetes I realised it sounded a lot like what I've been experiencing lately. Going to get tested, if there is a test.

Dry mouth is also one of the symptoms for diabetes. I am wondering how you know your dry mouth thing is "immune system" caused.

I was having dark urine and it was from kidney stones. Didn't want to drink much because it became really painful.

OK here is my expert response. Over the last year I have been taking about six different medications from Cannimed, all measured in THC/CBC. http://cannimed.ca/blogs/news/81069...eme-de-marijuana-medicale-par-gloria-galloway

The high-CBC strain I did feel was more 'smokey' and irritated my throat more. I did observe that this product was pre-milled and contained semi-intact buds, however there did not appear to be any 'kif' or bud crystals, although some might have a very light power of crystals. The CBD strain also tasted a bit different. Most of their strains did not have the fruity smell, it was almost industrial-pastic flavour - and this didn't really seem 'healthy'. The resulting ash was mainly black from the burned leaves. When burning or vaporizing high quality and highly crystalized buds the ash is grey or almost non-existant as all the material vaporizes.

Sad to just type this, would be so much better to talk about these things in person someday. I have a "friend" with MS. Literally, all he does is stay at home in his studio with the bed in it and smoke pot all day and write. He never contacts me to get together. I've considering looking for more pot friends on facebook but chicken out...I'm married.
 
thx both!

Infused oil is now legal in Canada since a couple of months. Is it from raw plant? I have to ask at my medical clinic. I have a appointment this coming week and will ask. In the meantime the producers market the oils, the clinic offers to infuse into oils for the patients. If raw infusions is available, I'd be willing to try a gram with THC then! Im excited!
 
Lady Organic said:
thx both!

Infused oil is now legal in Canada since a couple of months. Is it from raw plant? I have to ask at my medical clinic. I have a appointment this coming week and will ask. In the meantime the producers market the oils, the clinic offers to infuse into oils for the patients. If raw infusions is available, I'd be willing to try a gram with THC then! Im excited!
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I would love to try it, it's just I don't know any industrial-sized supplier, everything I have access to is already dried.

I got some capsules, about 5 different strengths, for my aunt dying of cancer (she passed away). They were all clear, no colour, and I don't recall if they had been raw though I doubt it since they would be green and no real 'active ingredient'. I've put dried cannabis in tea and felt a mild effect. It is very mild and probably the way it was meant to be taken, with honey and lemon.
 
Lady Organic said:
does anyone who take CBD oil or THC/CBD oil have dry mouth as side effect?

I tried smoke cannabis 2 nights with a friend, just 3-4 puffs and the next mornings I woke up with very dry throat. This is something impossible for me to accept since I suffer from chronic pharyngitis and dryness is a factor aggravating my condition :(

I read THC synthetic medical pills Nabilone also have mouth dryness as possible side effects... Is this a side effect of THC only?

what about CBD?
Click to expand...


Also, I would be somewhat humorous at my attempt to say, what you experienced is probably an experience of every single person who has ever smoked pot!

<<ugh man, that was HARSH!!>>

Am feeling some of that myself, had a 'dab' off a hot knife - was very thick, hot and smokey - bad for the throat. In fact I think I may have some ice cream! :dance:
 
I have a Davinci Ascent vaporizer. It is probably one of the best investments I have made. When done vaping, the cannabis is almost a tobacco like colour. I save it and then cook it in oil, and strain it then put the oil into capsules. There are still CBDs left in the cannabis. Or you can just take the vaped cannabis, grind it up really fine and put it into the capsules. I like to use coconut oil with it though, because when ingesting it, the body needs fat with it to break it down and get the CBDs out of it
 
Beaverley Hellbelly said:
.

Dry mouth is also one of the symptoms for diabetes. I am wondering how you know your dry mouth thing is "immune system" caused.
.
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I am fallowed by ENT doctor, what I have is called granular pharyngitis. It is chronic inflammation of pharynx, which causes dryness and discomfort in the back throat. we are still investigating cause at this point, but it is a immune reaction of my throat cells.
 
Ok guys, so I am back from the clinic and its been agreed with the dr I will take CBD oil. The strain that has been decided is 0,56% THC and 11% CBD.
I am going to start with the equivalent of 1 gram/day. Does this makes sense to you?
The plan is I will buy a 30 g bulk, which will then be heated and infused in coconut oil. This woud give me bottle of 300ml of oil for a month. I would take 3ml/day. does this makes sense to you?

They told me a story about a fighting CD woman who was brought to full remission using cannabis only. Tears came to my eyes. so amazing and encouraging to me. I have so much hope we can come one day to beat this beast with natural means.

@NORBY: I asked about non decarbed THC and they explained to me that CBD has to be heated in order to be effective, so it would not be ideal scenario for me to not heat my cannabis... They were confident CBD alone with minimal THC would help me, be anti-inflammatory and regulate immune system.
 
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Kero said:
I have a Davinci Ascent vaporizer. It is probably one of the best investments I have made. When done vaping, the cannabis is almost a tobacco like colour. I save it and then cook it in oil, and strain it then put the oil into capsules. There are still CBDs left in the cannabis. Or you can just take the vaped cannabis, grind it up really fine and put it into the capsules. I like to use coconut oil with it though, because when ingesting it, the body needs fat with it to break it down and get the CBDs out of it
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Those are great ideas, I vape with a Pax and usually smoke the leftovers - you still need to heat up the mixture of material and oil to get benefit from it, right?
 
Beaverley Hellbelly said:
Those are great ideas, I vape with a Pax and usually smoke the leftovers - you still need to heat up the mixture of material and oil to get benefit from it, right?
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Yes, you do have to heat it. I usually put into a glass jar, put some water in the bottom of my slow cooker and then cook on high for 8-10 hours. I then filter out the plant material. :)
 
Hi, I'm new here and new to Crohns. I was finally diagnosed in Sept. Entocort treatment failed and I'm now on week 5 of predinsone and MTX. Now, I do smoke cannabis occasionally and have absolutely found it helps calm my gut. furthermore, because I'm still in such a terrible flare that I can't eat much so (I have lost 40lbs since May and am now skin and bones!) the weed helps promote an appetite with not as much gut issues following. Anyhow, I'm excited to explore more about using cannabis. So happy I found this forum. :)
 
Hi all...just joined the forum yesterday. I was diagnosed with Crohn's 9 years ago after a "double-dip" (colonoscopy+endoscopy)...my flareups were rather infrequent - maybe once a month.

I was prescribed a probiotic and some other med (don't recall at this point) but have had much better success after following a suggestion from a fellow sufferer and cutting out milk/ice cream from my diet (along with an almost daily dose of MJ). Unfortunately, I had a new flareup for the first time in about 7 years the other night, but I'm convinced it was overeating something that didn't agree with me.

Looking forward to continued progress with legalization across the US to ease experimenting with different strains, concentrates, etc. Good to hear about relief with high CBD strains...has anyone looked into Cannabis Ruderalis as a source?

I sympathize with all of you...this condition is far from pleasant event for a mild case like mine; can't really fathom what some of you must go through.
 
Norby said:
You can always use fresh non decarbed THC and not get much of a high. The THC won't cross the blood brain barrier easily if it's not decarbed but you still get all the health benefits throughout the rest of the body.
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I just started CBD strain oil. I have been told by the cannabis producer and councellor at my clinic we must heat the THC in order for it to become activated and effective.

Where can I get information on your claim that non decarbed THC has medicinal effect?
thank you!
 
So I was surprised that noone has yet to mention or comment how the legalazation of medical marijuana at the federal level just recently will effect, hopefully in a positive way, and I cannot see it being anything BUT that. It's such a great thing to see that is is finally being legalized in medical form across the country at the frderal level. Now people with so many other disorders as well wont have to feel shamed when taking things that don't even get you high such as cbd's to help with whatever affliction they are dealing with. Hopefully now it wont be too long before they actually legalize it across the board at the federal level. Just makes so much sense to do so, although I am sure I will catch a lot of flack for that statement, I don't see how it could effect society more negatively than compared to alcohol. Riddle me that. Anyway, hats of to big govt for figuring a way to profit like a mofo off it, cuz i bet thats the only reason it was legalized for medical purposes. Either way, it is a good thing for all who are suffering.
 
BigBoss said:
So I was surprised that noone has yet to mention or comment how the legalazation of medical marijuana at the federal level just recently will effect, hopefully in a positive way, and I cannot see it being anything BUT that. It's such a great thing to see that is is finally being legalized in medical form across the country at the frderal level. Now people with so many other disorders as well wont have to feel shamed when taking things that don't even get you high such as cbd's to help with whatever affliction they are dealing with. Hopefully now it wont be too long before they actually legalize it across the board at the federal level. Just makes so much sense to do so, although I am sure I will catch a lot of flack for that statement, I don't see how it could effect society more negatively than compared to alcohol. Riddle me that. Anyway, hats of to big govt for figuring a way to profit like a mofo off it, cuz i bet thats the only reason it was legalized for medical purposes. Either way, it is a good thing for all who are suffering.
Click to expand...

I'm with ya. It's something I'm looking into.
 
I have a 15 year old son who was diagnosed at 8 years old with severe Crohn's with perianal involvement. He has suffered for many years and has been on 6mp, remicade, and many others over the years. he now is on Humira after having reactions to remicade. Does anyone know if the medical marijuana helps Crohn's patients with perianal involvement?
 
Lady Organic said:
I just started CBD strain oil. I have been told by the cannabis producer and councellor at my clinic we must heat the THC in order for it to become activated and effective.

Where can I get information on your claim that non decarbed THC has medicinal effect?
thank you!
Click to expand...


it's a start i guess,but im not sure this has been looked into that much yet. Study says THCa, or in other words unheated nondecarboxylated THC, inhibits tnf-alpha.
http://www.ncbi.nlm.nih.gov/pubmed/16504929
 
Smoking it immediately relieves my urgency to have a bowel movement and any discomfort or pain.
Consuming it (Oil/edibles) has a longer lasting effect. During a flare up I use both in tandem along with strict dietary changes. I no longer use pharmaceuticals to maintain inflammation.
I have an appetite to promote weight gain, I can get to sleep without having to bm every hour and I am less stressed.
Experiencing how drastically marijuana has helped my condition makes me wish anyone else suffering can also experience the same benefits.
 
I got extreme relief from smoking these new concentrates, dabs, oils, whatever you want to call them. They are amazing at helping revive my appetite and hunger, I get hungry, and not like the munchies, but hungry for food. It also is tremendously helpful with aiding in sleep, and relaxing the pain in my stomach. Although, for me, it wasnt enough for pain control by itself. I would only smoke at night, before bed, and with pain meds, i would actually get to sleep more than an hour at a time, without having to run to the bathroom every hour.
Back in 2010, I was having issues eating, before I knew I had crohn's, and I was like naseuas especially when it was time to eat, so the only thing that helped was to eat like half a marijuana cookie 30 mins before dinner, and i would have appetite, my nauseous feeling would subside, and I would be able to eat a meal. Looking back at my life, its crazy to see all the things that pointed towards having crohn's for most of my life for at least 30yrs of my 37yrs of life.... not extremely bad, but def symptoms of having crohn's.
 
Hi guys , im new to this hole cbd oil do u rate it? Is it worth a try i wanna tey it but not get high as I can't go to work high cuz i will be putting my guys at risk! Everyone has told me about it but I don't really no a lot can anyone help me out wot would u suggest ?
 
kikidee said:
Hi guys , im new to this hole cbd oil do u rate it? Is it worth a try i wanna tey it but not get high as I can't go to work high cuz i will be putting my guys at risk! Everyone has told me about it but I don't really no a lot can anyone help me out wot would u suggest ?
Click to expand...

Hi kikidee, Im currently using 2 grams a day of CBD oil and there is no psychoactive side effects. psychoactive side effects comes with strains with THC.
 
im already in CD remission. Im using it in hopes to maintain remission and for other immune issues somehow related to CD. Im on my second month trial, cant pronounce myself yet on efficacy.
 
Hey Guys,

I know the answer is somewhere probably in this thread but its 47 pages long.

Has anyone found a study where CBD OIL (Without THC) has induced remission? or has CBD oil only been proven to reduce disease activity?
 
I haven't seen any studies indicating that CBD alone can induce remission. So far, all indications are that some THC is necessary. I found this study particularly helpful in arriving at a ratio: https://www.cbd.org/sites/cbd/files/downloads/cbdpatientsurvey_september2015_carebydesign.pdf

We're currently using a 1:4 THC:CBD, and my kiddo has been asymptomatic for months. However, we just got his latest calprotectin test back, and it's over 500 (had been down to 125 earlier in treatment, when we were using a higher proportion of THC). I'm thinking we may need to up the THC in the ratio to get this down. Anyone have insight on this -- addressing inflammation when symptoms aren't a problem?
 
treatment should be the same for histologic (biopsy) or clinical symptoms. Before becoming symptomatic, inflammation always starts at a microscopic level, it is so minor we dont feel it. I'd definately return to the previous THC dose your son was getting. Good luck and let us know.
 
J'sMom, my son doesn't use medical marijuana as treatment but wanted to chime in on the active inflammation/no symptoms as this has been the course of his disease for some time. He has active inflammation yet experiences no symptoms and has been in this state for maybe 2.5 years. It was actually this way for 1.5 years then he required surgery due to the severity.

The gold standard GIs try to achieve is deep stable remission which incudes clinical (no symptoms), endoscopic (visually clean) and histologic (clean biopsy)with mucosal healing. Studies have shown this level of remission lessens the risk of permanent damage from simmering inflammation that can lead to obstructions, stricturing and surgery. Which is important in kids since they have a higher risk of multiple surgeries due to more aggressive disease.

Hope treatment works to bring everything under control quickly!
 
Thank you. We actually just had MR enterography yesterday, and his gut looked really good -- no strictures, fistulas, or thickening of the bowel lining. Looks like we've got pretty good control over all.
 
I'd be interested to know what dosages and ratios others use, both for maintenance and when they need to address active inflammation. I just visited the MMJ doc and was hoping for more specific guidance, but he basically tells me I'm the expert. I appreciate that, but I'd like to think someone has more expertise than I do in what ratios tend to work best for IBD.
 
This is a loooong thread, and I have to admit to being too lazy to browse more than just a few pages. I see a lot of "I tried it and it helped" anecdotal posts, but I'm wondering - are there any folks who tried it and it did nothing for them? I'm not trying to rain on the parade (I have no particular dog in this fight, and heck, I'd love to have another possible tool in the toolbox), but it would be nice to know whether it really is this holy grail with nothing negative to say about it (other than the side effects of marijuana itself).
 
I'd be interested in the same Isaac. However, I wouldn't be surprised if nobody reports that it did NOTHING as, if you have a positive experience with marijuana, it is going to make you feel better for some duration even if it doesn't affect the state of your disease at all.
 
Greeko said:
Anybody benefitted from medical marijuana to help from strictures and blood?
Click to expand...
I use it to help with pain, appetite, vomiting, and sleep. Best thing I've ever used for crohns in my life, but I am the 5 to 10 percent of patients that can't tolerate the crohns meds. I have had active disease for 10 yrs with no relief and 2 surgeries. I've tried everything but entyvio which I am saving so I have some sort of hope for my future even though I know it's not going to work for me. The side effects from my pain meds and anti nausea meds make me sleep all the time and when I smoke I can actually get out of bed and do some things around the house and spend time with my family. My aunt passed away from liver failure due to pain killers she was on for crohns so that is why i was looking for an alternative to pain meds. I actually have a life worth living when i smoke. I'm not 100% yet but in my opinion it's my miracle drug. If I didn't have it I would probably be in the hospital and in so much pain I would be wishing for death because that's how I feel when I don't smoke. Smoking is new to me so I have no clinical proof yet that my strictures have improved but my doc made it sound like there is no healing me at this point. He seems to think it's permanently damaged and I will need another surgery very soon. I have noticed less blood and sometimes even no blood which has never in my life happened. I have tried cbd oil once and plan to work with my gi. Since I don't have any other options my gi said he would do what he can to help with dosing and to monitor me while on cbd oil. I find it amusing he warned me that it may help but it's not going to cure me. I find it funny because I never once got that warning before any of the meds I tried and they almost killed me. Having severe crohns for such a long time and knowing all of the meds available make me worse and cause more problems I think the docs and research and meds available for crohns is bs. People are dying from crohns yet its always recorded as a complication of crohns. My insurance won't cover a dietician in less I have diabetes. And they also don't cover holistic docs but they have no problem pumping poison in my veins that can kill me or give me cancer. And some meds even have mouse DNA wtf? Although we have come a long way with crohns awareness and research we are still extremely far away from where I think we should be now. I'm going on vacation soon and I'm worried about my kids finding out I'm on medical marijuana. I can't bring anything on the plane so I'm hoping they will let me go to their dispensaries with my card. Which means traveling is going to be a painful hell for me and hopefully I don't throw up in front of anyone. I have to buy all new smoking devices because those can't even go on the plane. I can't smoke in the hotel with my kids so I have to smoke outside which may not go over to well with people or even cops walking by, but I don't see any other option. I can use edibles I guess but smoking is instant relief so I prefer it. I just can't believe this day in age and I have to be worried about getting in trouble just so I can live a somewhat normal life with crohns. I don't even have the freedom to make my own decisions about my health care cause my insurance won't cover it. And I've already had to file for bankruptcy once because of medical bills and expensive meds I was on before they had these assistance programs that they have today. We're not nearly as far as we should be with crohns research. In my opinion most people don't even know how serious this disease really is which is extremely frustrating.
 
Marijuana helped my son feel better, definitely gave him an appetite, but it may have also masked his symptoms. It actually made him get very paranoid the last couple of times he used it. No miracle for us, sadly. He hasn't used it in over a year and we live in Colorado, so he could if he wanted to.
 
Hi All, What a long post. There is certainly a lot of interest in the topic. It begs for more medical research. I think we all know how long these studies take. It can get pretty frustrating. I am new to the forum and I must say I love it. You guys have so much covered here. I have been doing some research on the subject with a recent flare. I smoked as a teenager and may of done it twice a year the last 20 years. I too am extremely curious about 'does it work or are we just getting high?' question. Last weekend I made my own oil and drank it in a cup of tea. I put probably a gram in a cupcake pan, covered it with coconut oil, put aluminum foil over it, put the oven on 350 for 25 minutes and voila ...oil. I didn't think it would work until I put a 1/2 teaspoon in my cup of tea (not a lot) it took two hours to kick in ..but it most certainly did. No doubt I felt good and the urgency died down the next day as well as I had the best night sleep in weeks.
 
lenny said:
Marijuana helped my son feel better, definitely gave him an appetite, but it may have also masked his symptoms. It actually made him get very paranoid the last couple of times he used it. No miracle for us, sadly. He hasn't used it in over a year and we live in Colorado, so he could if he wanted to.
Click to expand...

FYI, making sure you're getting a substantial amount of CBD along with the THC can help to reduce paranoia and anxiety. Also, you don't mention how your son used it, but ingesting works better than smoking and also delivers the medicine right to the gut, where it can work best.
 
SOrry, for some reason I haven't got updates on the thread and with my new computer I lost my password and can't get the site to send me a new one. I just directed someone here and when I looked up the site I found this post.

I can't remember right now where I read it. I think it was personal experience on an MJ website. here are some links to the benefits of THCA.

unitedpatientsgroup website blog on CBD, THC, THCA, CBN etc. has a good resource for the benefits of juicing cannabis or using non decarbed for autoimmune diseases. Unfortunately I need 10 posts to give the link but a search of THCA and crohns should bring them up

leafly and CBDFARM websites also have info on THCA

Lady Organic said:
I just started CBD strain oil. I have been told by the cannabis producer and councellor at my clinic we must heat the THC in order for it to become activated and effective.

Where can I get information on your claim that non decarbed THC has medicinal effect?
thank you!
Click to expand...
 
Hi there. Have some questions for you folks.

Someone who is not me has been having some intense GI issues for 6 months. Upper endoscopy revealed little. No colonoscopy has been done. Marijuana helps this person.

This person has been recommended to get a calprotectin test done.

This person wants to minimize the chances of a false negative. This person gets bad cramps all day long, mucous plugs, general unsightly poos with horrible odor and gut is increasingly distended yet a CT reveals no catastrophic processes.

This person also regretfully consumes an excess of alcohol, which shall be dealt with promptly. However, this person wants the calprotectin test to show anything if there is anything to show. Since cannabis is so effective at treating some of the symptoms, should someone who is not me be cautious about the use of cannabis and the possibility of a false negative on a calprotectin test?

This is my first post.
 
So I searched this thread for keys to whether any part of MMJ would help with fistulae. I only saw one post by Farkle that did not look good. I'm hoping someone has new (good) answers.

Every med i've gone on has wreaked havoc on my body and brain.
 
mish2575 said:
So I searched this thread for keys to whether any part of MMJ would help with fistulae. I only saw one post by Farkle that did not look good. I'm hoping someone has new (good) answers.

Every med i've gone on has wreaked havoc on my body and brain.
Click to expand...

After multiple surgeries for peri-anal, and watching the drugs carefully, I can't say anything positive about MMJ as far as helping this issue. The basics are the hot sit baths and watching medications and diet.
I got through many of them without surgeries, all of them horrible.
Recently, one of my doctors tried to get me to take a vitamin D, once a week thing. I immediately started again with the fistula soreness. I went online and discovered two connective studies saying that it causes this. I asked that doctor and they said no, so I showed them the studies. They still don't see any connection. So ignorance will stay ignorance.
What I have discovered, is that the usual cause for me is an imbalance of serotonin in the gut, usually caused by serotonin producing bacteria. Yes, there is such a thing. Reduction can be as simple as drinking lots of tonic water with quinine, or you can try tianeptine to reduce it.
I feel much better now and I'm glad I don't have that issue, working on the rest of the health now, slowly, a piece at a time.
Let me know if you need any pointers.
 
I've been on vitamin D for many yrs (5000IU) and have never had resultant fistula pain. I used coconut oil after my last surgery. I also use cannabis (ingested) but the biggest improvements have been noted when using raw fresh ginger. I ate so much of it that it blocked the tract. The pain was as great as the intial abscess and I thought I was headed back to hospital. I did a few sitz baths and found the tract clogged with fibrous ginger root! I've not had any issue with that tract since. I also take a natural vitamin E and have started using LivingTree bovine colostrum powder twice daily - wow, the healing continues to surprise me! Small things like moles, a small cyst I had for yrs are now gone. Even a recent flare up was nothing like past experiences. I was still actually able to get around, even walk the dog on a few 'feel safe' days. This would have never happened in the past. I also eat a lot of dandelions, stevia, tarragon and many other herbs & veg from my own yard. I also render my own lard and drink lots of vege and bone broths/stocks.

Good health to us all and remember: one size does not fit all.
 
Very interesting!

Can you expand on how you are healing? Specifically the fistula. How many or how big was it/they? And now? After how long of these supplements?

I'm a little concerned about the ginger fiber clog.


Thanks :)
 
I was put on prescription vitamin D in 2004 but after constant blood tests showed low vitamin D and drs not increasing the dose I dropped it around 2009 and didn't take anything for yrs.

Hospitalised in 2004 for abscess. My aftercare was poor from a medical standpoint and I wasn't even aware it was Crohn's-related.

2007 that same spot turned abscess again, this time resulting in fistula, seton placement - just hideous! A hole as a big as my pinkie finger left in my body. That's when I really started researching and found all these issues are drug-suppressed immune system symptoms. Survived the pain by using anesethic-based roid ointment mixed with recently discovered coconut oil.

2011 when I had the ginger binge and haven't had an issue with the fistula since - meaning I could now sit without giving it a second thought, drive without being tense, sneeze without worrying about any pain etc. I applied coconut oil to the area many times a day after that and also eat a tsp a day.

Note: that ginger was stuck in the tract for some days before I tried the sitz bath, as I was convinced it was an abscess. The pain wasn't unbearable given the rewards.

I also dumped the Imuran in 2011 and started building myself up with high- density nutrition -- homemade bone / chicken broths/vege stocks etc. I was spending a fortune on heartburn remedies until someone put me onto the wonders of apple cider vinegar. The result was instant and I haven't bought any heartburn concoctions since around 2010/11.

Started taking 5000IU dose in 2013 and now my blood tests come back great. My dr said, " whatever you are doing for vitamin D, don't stop!" I use the sun on my skin in winter and the 5000IU in summer.

2016 started taking bovine colostrum and just feel well! Gums are healing. Fistula feels nice and soft - no issues if I sit on a hard surface for a short time.

I still eat ginger most days in some form or another; smoothies, tea, bone broths.

A 3cm chunk (peeled) goes into my green apple, dandelion and pineapple smoothie (high healing vitamin C) each morning. I also use lots of coconut water and coconut cream / milk. High density nutrition is the key, at least for me.

I hope this helps Mish, I had to get out my medical records for some of the dates lol. Time passes so fast!
 
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